Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Headaches Related To Celiac?

mac3

By mac3
in Related Issues & Disorders

Recommended Posts

mac3 Apprentice
mac3
Posted

My daughter was diagnosed in April this year with celiac disease. The last month she's been complaining about fairly consistent headaches. Ibuprofen and tylenol seem to work but I would like to find out what the underlying cause is...if I can. Does anyone out there have any information as to whether her headaches are related to the celiac disease or not?

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


trents Grand Master
trents
Posted

Have you had her checked for other food allergies/sensitivities? They can often cause headaches and celiacs tend to develop sensitivities to other foods that don't contain gluten. It comes with the territory. The damage to the intestinal mucosa allows incompletely digested food molecules into the bloodstream where they ae interpreted by the body's immune system as invaders. How old is your daughter?

Steve

Guest cassidy
Guest cassidy
Posted

What were her symptoms before going gluten-free?

mac3 Apprentice
mac3
Posted
  • Author

My daughter is 10. Before her diagnosis she would get pale and complain of a stomach ache pretty much every time we ate...then she'd spend 20 minutes in the bathroom and not eat anymore even though she wasn't full. She has only complained of a stomachache once...maybe twice...since we've gone gluten free. It's just been the past month that the headaches have become an issue. The other culprit is that it might be her glasses...I just tend to question the celiac disease first! She is also slightly allergic to milk.

Guest cassidy
Guest cassidy
Posted

I had headaches before going gluten-free and I still get them now when I'm glutened. If she has always had stomach symptoms when she is glutened then I would think the headaches would only be tied to gluten if she got them at the same time as the stomach aches. If you have been very careful with her diet, then I would look for other answers. Hopefully it is the glasses becauses that is an easy fix.

mike007 Newbie
mike007
Posted
My daughter was diagnosed in April this year with celiac disease. The last month she's been complaining about fairly consistent headaches. Ibuprofen and tylenol seem to work but I would like to find out what the underlying cause is...if I can. Does anyone out there have any information as to whether her headaches are related to the celiac disease or not?

I don't know if this will help her or not but I was diagnosed with celiac disease a few years ago and I suffer from chemical sensitivities and get severe headaches when I am around fresh paint, solvents, people wearing

perfume, etc. These substances are classified as contianing volitile organic compounds or voc's. Even new computers or computer monitors can give off low levels of voc's. I hope that that is not her problem but if it is then keeping away from the offending chemical substances should help.

  • 2 weeks later...
mac3 Apprentice
mac3
Posted
  • Author

Time has gotten away from me and I failed to check the messages here 'til today! Whoops. Thanks for your input - my mind doesn't get as carried away when there's input coming from another source!! She's still getting headaches. I can't think of any perfumes, paints, in the house...her whiteboard markers might be bothering her but that wouldn't explain the outdoor-headaches. I've been working hard at going totally gluten-free but I've unknowingly slipped up a couple of times so I wouldn't say that I've been 100% perfect there. We'll check-out the glasses too. Again, thank you all!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


tarnalberry Community Regular
tarnalberry
Posted

Dairy gave me headaches, before I discovered I was intolerant to it (through an elimination diet) and removed it from my diet.

DEE BAERTSCH Newbie
DEE BAERTSCH
Posted

Before I found out I had celiac disease I had headaches every day. Now that I'm gluten free they are gone. If I do get gluttened I will get a headache; I no longer get diarrhea. Your reaction to gluten can change as you have less in your diet. The important thing is to get good at finding where the gluten is. It is very easy to inadvertently ingest gluten. Your daughter will have to be the most vigilant; it must be impossible for you to always prevent it. To be a celiac has to be the hardest on children. Good Luck!

Dee

azmom3 Contributor
azmom3
Posted

Does she have any allergies (other than milk), seasonal or environmental? Any sinus problems? (sinus pain, drainage, coughing from post-nasal drip, sore throat, etc.)? Have you had a change in weather in the last month? Did she start any new medications that might have this as a side effect?

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,855
    • Most Online (within 30 mins)
      7,748
    Tara M
    Newest Member
    Tara M
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • cristiana
      Ibuprofen

      By cristiana · Posted

      @Colleen H   I am just curious,  when you were tested for coeliac disease, did the doctors find out if you had any deficiencies? Sometimes muscle pain can be caused by certain deficiencies, for example, magnesium, vitamin D, calcium, and potassium.   Might be worth looking into having some more tests.  Pins and needles can be neuropathy, again caused by deficiencies, such as iron and B12,  which can be reversed if these deficiencies are addressed. In the UK where I live we are usually only tested for iron, B12 and vitamin D deficiencies at diagnosis.   I was very iron anemic and supplementation made a big difference.  B12 was low normal, but in other countries the UK's low normal would be considered a deficiency.  My vitamin D was low normal, and I've been supplementing ever since (when I remember to take it!) My pins and needles definitely started to improve when my known deficiencies were addressed.  My nutritionist also gave me a broad spectrum supplement which really helped, because I suspect I wasn't just deficient in what I mention above but in many other vitamins and minerals.  But a word of warning, don't take iron unless blood tests reveal you actually need it, and if you are taking it your levels must be regularly monitored because too much can make you ill.  (And if you are currently taking iron, that might actually be making your stomach sore - it did mine, so my GP changed my iron supplementation to a gentler form, ferrous gluconate). Lastly, have you been trying to take anything to lessen the pain in your gut?  I get a sore stomach periodically, usually when I've had too much rich food, or when I have had to take an aspirin or certain antibiotics, or after glutening.  When this happens, I take for just a few days a small daily dose of OTC omeprazole.  I also follow a reflux or gastritis diet. There are lots online but the common denominators to these diets is you need to cut out caffeine, alcohol, rich, spicy, acidic food etc and eat small regularly spaced meals.   When I get a sore stomach, I also find it helpful to drink lots of water.  I also find hot water with a few slices of ginger very soothing to sip, or camomile tea.  A wedge pillow at night is good for reflux. Also,  best not to eat a meal 2-3 hours before going to bed. If the stomach pain is getting worse, though, it would be wise to see the doctor again. I hope some of this helps. Cristiana    
    • Me,Sue
      Knowing what to do when feeling unwell.

      By Me,Sue · Posted

      I was diagnosed with coeliac disease a couple of years ago [ish]. I love my food and a variety of food, so it's been hard, as it is with everyone. I try and ensure everything I eat doesn't contain gluten, but occasionally I think something must have got through that has gluten in. Mainly I know because I have to dash to the loo, but recently I have noticed that I feel nauseous after possibly being glutened. I think the thing that I have got better at is knowing what to do when I feel wiped out after a gluten 'episode'. I drink loads of water, and have just started drinking peppermint tea. I also have rehydration powders to drink. I don't feel like eating much, but eventually feel like I need to eat. Gluten free flapjacks, or gluten free cereal, or a small gluten free kids meal are my go to. I am retired, so luckily I can rest, sometimes even going to bed when nothing else works. So I feel that I am getting better at knowing how to try and get back on track. I am also trying to stick to a simpler menu and eat mostly at home so that I can be more confident about what I am eating. THANKS TO THOSE WHO REPLIED ABOUT THE NAUSEA .
    • Francis M
      The Happy Tart review

      By Francis M · Posted

      Thanks. Since the back and forth and promises of review and general stalling went on for more than six months, the credit company will no longer investigate. They have a cutoff of maybe six months.
    • Scott Adams
      The Happy Tart review

      By Scott Adams · Posted

      Is this the same restaurant? https://www.facebook.com/TheHappyTartFallsChurch/ Is it too late to take this up with your credit card company? Normally you have a few months to do a chargeback with them. It seems very odd that they are taking this approach with someone who is likely to be a regular customer--not a good business-minded way of handling things!
    • Scott Adams
      Stomach burning and neuropathy

      By Scott Adams · Posted

      Many people with celiac disease, especially those who are in the 0-2 year range of their recovery, have additional food intolerance issues which could be temporary. To figure this out you may need to keep a food diary and do an elimination diet over a few months. Some common food intolerance issues are dairy/casein, eggs, corn, oats, and soy. The good news is that after your gut heals (for most people who are 100% gluten-free this will take several months to two years) you may be able to slowly add some these items back into your diet after the damaged villi heal. This article may be helpful: The most common nutrient deficiencies associated with celiac disease that may lead to testing for the condition include iron, vitamin D, folate (vitamin B9), vitamin B12, calcium, zinc, and magnesium.  Unfortunately many doctors, including my own doctor at the time, don't do extensive follow up testing for a broad range of nutrient deficiencies, nor recommend that those just diagnosed with celiac disease take a broad spectrum vitamin/mineral supplement, which would greatly benefit most, if not all, newly diagnosed celiacs. Because of this it took me decades to overcome a few long-standing issues I had that were associated with gluten ataxia, for example numbness and tingling in my feet, and muscle knots--especially in my shoulders an neck. Only long term extensive supplementation has helped me to resolve these issues.        
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.