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stargirl

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stargirl Apprentice

Hi, my name is Laura and I'm 17. I have been Celiac free for 7 months and have met only one other teenager with the disease. I was hoping to find some people who could empathize with me. Any takers?


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celiac3270 Collaborator

I'm 13.......have been on diet for 6 months.....there are a lot of teens here with celiac disease, particularly 17-20 year-olds.

stargirl Apprentice

I keep hearing that everywhere but I never see anybody. I met one person that has the disease that is under 40 and that was last week. I just am tired of feeling alone. I live in a small town in California and for the size of it I know a lot of celiacs. Unfortunately, none of them are anywhere near my age. I just feel lonely. :(

MySuicidalTurtle Enthusiast

HELLO!

I have that problem here. The closest I can get ti "meeting" people my age with this is on-line. Maybe if you ask around your support groups or just keep looking you will find someone.

Kristina

WELCOME to the board!

stargirl Apprentice

Thanks Kristina. As far as I know there is no support group in my town but it is nice to read around on this website and see so many posts that I can agree with. Especially those referring to people's reactions and the constant explaining. It's nice to know that people understand, even if they are only on the computer. :D

flagbabyds Collaborator

I have been diagnosed since I was 20 months old, I am 14, what part of California do you live in?

stargirl Apprentice

Hi! I live by LA in a town named Bakersfield. Where do you live?


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      Thanks a lot for your response! Can you maybe specify which kind of cheeses I should be cautious about? Camembert/Brie and blue cheeses (the molds of which are nowadays mostly grown on gluten-free media, though, so I've read, right?) or other ones as well? Also, I was under the impression that yeast is generally gluten-free if not declared otherwise. Is that false?
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      Welcome to celiac.com, @Jane02! Have you had your serum D levels checked for deficiency/sufficiency? What about cod liver oil? Egg yolks can also be a good source of vitamin D.
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      Hello, I'm very discouraged. I've been trying to find a safe vitamin mineral supplement brand for months and am tired of testing one after the other and experiencing my typical 'glutening' reactions. I'm really feeling the nutritional deficiencies set in. I'm doing the best I can to get these nutrients from my food, although it's impossible for me to intake enough vitamin D as I can't have dairy and have insufficient sun exposure in the northern hemisphere. I've tried B Complex from Country Life (certified gluten-free) - horrible reaction. I've tried Metagenics vitamin D tab (certified glute-free) - bad reaction. I've tried liquid vitamin D Thorne and D Drops - reactions were mild since I tried a drop of a drop. I understand there could be other things I'm reacting to in my diet, although my diet/intake is pretty consistent with minimal variables so I do think it's something in these supplements. I understand I could be reacting to the active ingredient vitamin/mineral itself or even the filler ingredients. I tried the vitamin D drops since the only filler ingredient is coconut oil, in some brands, which I know I can tolerate really well on its own - I cook with coconut oil frequently and have no 'glutening' reactions at all. Perhaps I'm reacting to the vitamin D itself, although I eat fatty fish every few days, an entire fillet with no 'glutening' reactions, which contains anywhere between 400-600 IU per fillet so I shouldn't be sensitive to vitamin D. All this to say, I'm desperately looking for at least a safe vitamin D supplement. Does anyone know of a safe vitamin D supplement brand? I'd love to know if there are any supplement brands that have absolutely no gluten (especially in flour form) in their facilities. I've heard of Kirkman having no grains in their facility - I may try this brand. Has anyone reacted to this brand?   
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