Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Soy Intolerance?


Corkdarrr

Recommended Posts

Corkdarrr Enthusiast

So, quick background. I've been doing an elimination diet and I just added soy back in two or three days ago. I chose soy because it's IN a lot of things, although I don't ever really eat a whole lot of it.

The last two days I ate tofu stirfry, as it's best to reintroduce an item using its purest form. And while soy is IN a lot of things, I wasn't really sure what else I could use.

Yesterday I felt fine after dinner. Today I had some Imagine or Pacific gluten-free CF cream of mushroom soup - which uses soy milk. After eating that I felt somewhat nauseous which then gave way to some mild gas and mild bloating. An hour or two later I made my tofu stirfry again and didn't feel nauseous, but had the same mild gas, mild bloating and also some mild heartburn.

I don't know if I felt sick simply because I was so hungry and had simply waited too long to eat, or if I do, in fact, have a soy intolerance. Or maybe because the soup was kinda ucky? I'm sorry..there's just no replacement for casein. :(

I guess I'm wondering how I can tell the severity of this soy thing. Because I never eat tofu and the only soy I normally would consume would be in small amounts in prepackaged items, do I need to be that worried about it?

I have been eating chocolate wiht soy lecitin in it for a few days now and it hasn't bothered me at all. Is this enough proof that I should avoid soy in the future? Should I continue to eat tofu for the next few days and see if the symptoms worsen or stay the same? Or can I please move on to something else...like tomatoes!

Thanks

Courtney


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



lonewolf Collaborator

Soy can cause minor digestive upset like you described. Soy lecithin doesn't cause me trouble at all, and I react badly to soy. What this might be telling you is that large amounts of soy protein upset your stomach, but small amounts don't. Sorry I'm not much help - it's been a long day.

Corkdarrr Enthusiast

Thanks, Liz! That's what I'm hoping. I guess my big question is that I don't know is if small amounts can build up in your system and end up causing problems, or how any of that works.

I just finished eating a little bit more of my chocolate and about a half cup of soy milk, so we'll see what that does...

Anyone else out there with soy intolerances/sensitivity that could perhaps shed some more light on this?

Courtney

AndreaB Contributor

I went off soy in February and found out later that I was intolerant to it. I haven't wanted to test it to see what reactions I would have.

Soy lecithin and soy oil are touted as being ok, but many people still react to them. It's really a personal choice. Probably wouldn't hurt for the occasional thing, I wouldn't worry about it....unless you start getting reactions.

Budew Rookie

Cork-

I react to all of the things mentioned in your signature except caffine. I have found it helpful to avoid grain lectins, dairy lectins, and nightshade lectins. Try looking at classes of foods, it may save you time and illness.

Sometimes foods can be tolerated in small infrequent amounts. Glutens should be avoided 100% if you test positve for it.

I eliminated soy and corn recently, I still have some pain issues. I hope by cutting out the all the grain lectins (including rice) will help with the muscle pain.

You might want to read the Lectin Story.

Best of luck.

  • 2 weeks later...
RP4Me Newbie

Hi Cork -

I too am on the elimination diet - isn't it a pain??? I just found out I can tolerate corn, so I'm happy about that, but like you I can't tolerate casein. I just found that out yesterday after eating mozzerrela cheese and becoming tired, anxious and really crabby about two hours after eating it. My mood went from pretty good to terrible within hours - crazy! My symptoms aren't so much gastrointestinal as they are mood and headache.

I'd been gluten-free for years but still had trouble, so my doctor suggested I do this. I'm just hoping I can figure it all out. Next on my list is soy, so I'll let you know.

Kelley

Guest Kathy Ann

I recently talked to a notable scientist with a supplement company. He said that most allergies are actually due to the proteins in foods. So in that case soy protein isolate might be the worst and other parts of soy might be OK in moderation.

I showed a soybean allergy on an ELISA test. I really need to do the Enterolab test for soy to see if it's truly an inherited intolerance to the protein in the soy or just an acquired allergy that could eventually go away.

And it's true, there seems to be no substitute for casein. I'm still looking for a dynamite mayonnaise and even a good tasting cheese substitute when you can't have dairy, soy or eggs.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



haphenomenon Newbie

I am starting to wonder whether I have a soy intolerance also. I've been vegetarian my whole life so it has always been a big part of my diet. I have been gluten free for four years and finally broke down and admitted casein problem and eliminated it completely two years ago. I have been wondering about soy....

I live in India where the diet is very starch based. I tend to have blood sugar disturbances as it seems many of us do.... So I always try to find protein sources. I may have gone overboard on the soy in the past week but I've had some major gastro disturbances. I have had soy nuts, soymilk, I made soy yogurt from kefir starter, and ate some gluten-free cookies with soy lecithin.

I thought maybe the yogurt was bothering me since perhaps the kefir starter was grown on dairy even though its dried and sterilized...

When i've had soy I get headaches, feel kind of "clogged" in my head and lethargic, and I tend to fall asleep right after eating it. Also heartburn, bloating, gas etc

It would be dissapointing not to be able to use soy as a protein source but important to know for sure.

Has anyone found a protein powder that is gluten free, casein free, and soy free? I"ve used hemp seed protein before but it was sort of unpleasant tasting.

Does anyone know if whey protein can be casein free?

Corkdarrr Enthusiast
I am starting to wonder whether I have a soy intolerance also. I've been vegetarian my whole life so it has always been a big part of my diet. I have been gluten free for four years and finally broke down and admitted casein problem and eliminated it completely two years ago. I have been wondering about soy....

I live in India where the diet is very starch based. I tend to have blood sugar disturbances as it seems many of us do.... So I always try to find protein sources. I may have gone overboard on the soy in the past week but I've had some major gastro disturbances. I have had soy nuts, soymilk, I made soy yogurt from kefir starter, and ate some gluten-free cookies with soy lecithin.

I thought maybe the yogurt was bothering me since perhaps the kefir starter was grown on dairy even though its dried and sterilized...

When i've had soy I get headaches, feel kind of "clogged" in my head and lethargic, and I tend to fall asleep right after eating it. Also heartburn, bloating, gas etc

It would be dissapointing not to be able to use soy as a protein source but important to know for sure.

Has anyone found a protein powder that is gluten free, casein free, and soy free? I"ve used hemp seed protein before but it was sort of unpleasant tasting.

Does anyone know if whey protein can be casein free?

I, too have asked the whey question. I believe CarlaB answered me by saying that she doesn't trust it since how do you really separate the two proteins that make milk...

I use a protein powder called MediClear. You can find it on Naturallyempowered.com. It tastes very much like powdered cardboard, but you get used to it after a while.

Rebecca47 Contributor

I started another food diary on the 22nd, Nov to see what else has been getting me. The other day i had refried beans and the contained soy and I felt sick. So here we go again. Milk in my cereal seems to be ok so far.

anyway i thought I would add my 2 cents. :)

rebecca

marciab Enthusiast

I'm still on the elimination diet too ... :blink:

Sounds like you can handle small amounts of soy. But the negative reaction you had to the tofu and soy milk is not considered acceptable. Food should not make you uncomfortable.

I can eat a small amount of soy too in chocolate, but if I drink soy milk, I get tons of phlegm in my throat immediately.

To answer your question about it building up ...

My sister has a not so pleasant to look at reaction to chocolate, like Will Smith in the movie Hitch. Her face swells unevenly. But, she can eat a small amount every few days and be fine. She has been like this all of her life. And she is 50 ish.

If I were you, I'd move on to tomatoes and avoid large quantities of soy. :D Worst case scenario is that you check it again sometime down the road.

Marcia

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to lizzie42's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      6

      Son's legs shaking

    2. - lizzie42 replied to lizzie42's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      6

      Son's legs shaking

    3. - knitty kitty replied to lizzie42's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      6

      Son's legs shaking

    4. - lizzie42 replied to lizzie42's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      6

      Son's legs shaking

    5. - Scott Adams replied to Russ H's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      Anti-endomysial Antibody (EMA) Testing

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,870
    • Most Online (within 30 mins)
      7,748

    KABoston
    Newest Member
    KABoston
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • knitty kitty
      Blood tests for thiamine are unreliable.  The nutrients from your food get absorbed into the bloodstream and travel around the body.  So, a steak dinner can falsely raise thiamine blood levels in the following days.  Besides, thiamine is utilized inside cells where stores of thiamine are impossible to measure. A better test to ask for is the Erythrocyte Transketolace Activity test.  But even that test has been questioned as to accuracy.  It is expensive and takes time to do.   Because of the discrepancies with thiamine tests and urgency with correcting thiamine deficiency, the World Health Organization recommends giving thiamine for several weeks and looking for health improvement.  Thiamine is water soluble, safe and nontoxic even in high doses.   Many doctors are not given sufficient education in nutrition and deficiency symptoms, and may not be familiar with how often they occur in Celiac disease.  B12 and Vitamin D can be stored for as long as a year in the liver, so not having deficiencies in these two vitamins is not a good indicator of the status of the other seven water soluble B vitamins.  It is possible to have deficiency symptoms BEFORE there's changes in the blood levels.   Ask your doctor about Benfotiamine, a form of thiamine that is better absorbed than Thiamine Mononitrate.  Thiamine Mononitrate is used in many vitamins because it is shelf-stable, a form of thiamine that won't break down sitting around on a store shelf.  This form is difficult for the body to turn into a usable form.  Only thirty percent is absorbed in the intestine, and less is actually used.   Thiamine interacts with all of the other B vitamins, so they should all be supplemented together.  Magnesium is needed to make life sustaining enzymes with thiamine, so a magnesium supplement should be added if magnesium levels are low.   Thiamine is water soluble, safe and nontoxic even in high doses.  There's no harm in trying.
    • lizzie42
      Neither of them were anemic 6 months after the Celiac diagnosis. His other vitamin levels (d, B12) were never low. My daughters levels were normal after the first 6 months. Is the thiamine test just called thiamine? 
    • knitty kitty
      Yes, I do think they need a Thiamine supplement at least. Especially since they eat red meat only occasionally. Most fruits and vegetables are not good sources of Thiamine.  Legumes (beans) do contain thiamine.  Fruits and veggies do have some of the other B vitamins, but thiamine B 1 and  Cobalamine B12 are mostly found in meats.  Meat, especially organ meats like liver, are the best sources of Thiamine, B12, and the six other B vitamins and important minerals like iron.   Thiamine has antibacterial and antiviral properties.  Thiamine is important to our immune systems.  We need more thiamine when we're physically ill or injured, when we're under stress emotionally, and when we exercise, especially outside in hot weather.  We need thiamine and other B vitamins like Niacin B 3 to keep our gastrointestinal tract healthy.  We can't store thiamine for very long.  We can get low in thiamine within three days.  Symptoms can appear suddenly when a high carbohydrate diet is consumed.  (Rice and beans are high in carbohydrates.)  A twenty percent increase in dietary thiamine causes an eighty percent increase in brain function, so symptoms can wax and wane depending on what one eats.  The earliest symptoms like fatigue and anxiety are easily contributed to other things or life events and dismissed.   Correcting nutritional deficiencies needs to be done quickly, especially in children, so their growth isn't stunted.  Nutritional deficiencies can affect intelligence.  Vitamin D deficiency can cause short stature and poor bone formation.   Is your son taking anything for the anemia?  Is the anemia caused by B12 or iron deficiency?  
    • lizzie42
      Thank you! That's helpful. My kids eat very little processed food. Tons of fruit, vegetables, cheese, eggs and occasional red meat. We do a lot of rice and bean bowls, stir fry, etc.  Do you think with all the fruits and vegetables they need a vitamin supplement? I feel like their diet is pretty healthy and balanced with very limited processed food. The only processed food they eat regularly is a bowl of Cheerios here and there.  Could shaking legs be a symptom of just a one-time gluten exposure? I guess there's no way to know for sure if they're getting absolutely zero exposure because they do go to school a couple times a week. We do homeschool but my son does a shared school 2x a week and my daughter does a morning Pre-K 3 x a week.  At home our entire house is strictly gluten free and it is extremely rare for us to eat out. If we eat at someone else's house I usually just bring their food. When we have play dates we bring all the snacks, etc. I try to be really careful since they're still growing. They also, of course, catch kids viruses all the time so I  want to make sure I know whether they're just sick or they've had gluten. It can be pretty confusing when they're pretty young to even be explaining their symptoms! 
    • Scott Adams
      That is interesting, and it's the first time I heard about the umbilical cord beings used for that test. Thanks for sharing!
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.