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Ds And Bowel Issues?

andersonfam06

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andersonfam06 Apprentice
andersonfam06
Posted

So, my oldest(not little Lanigan this time) is having an issue. He tries to poop so hard he almost makes himself throw up. Although, he acts like he has no control over his pushing. Nothing happens. No poop. Then about 1-3 hours later, he will have HORRIBLE runny stools. Like water. And his belly hurts. He is also peeing all the time. Every 30 minutes to an hour. And not just a little bit, a LOT. His fabulous(that was said with much sarcasm) here said he is peeing to much because he is constipated and not emptying his bladder all the way. Well, he has to be emptying it completely. I stand there with him. He pees FOREVER. I have even measured his pee in a hat. He is peeing more than 200cc's each time. And he might be constipated, but then he has the horrible diareah. All in the same stinking day. She wants me to put him on Miralax, but after researching this, I feel very uncomfortable doing so. She told me to keep him on it for 6 months. It is recommended that it is used for no longer than 2 weeks to avoid dependency. I am just frustrated.

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Guest nini
Guest nini
Posted

I can't remember, is Langdon gluten-free? Is anyone else in your family Celiac? Have you tried the gluten-free diet with your oldest?

My personal opinion would be to try the diet before any drugs... and if these problems go away then you have your answer... but that's just me.

Michi8 Contributor
Michi8
Posted
So, my oldest(not little Lanigan this time) is having an issue. He tries to poop so hard he almost makes himself throw up. Although, he acts like he has no control over his pushing. Nothing happens. No poop. Then about 1-3 hours later, he will have HORRIBLE runny stools. Like water. And his belly hurts. He is also peeing all the time. Every 30 minutes to an hour. And not just a little bit, a LOT. His fabulous(that was said with much sarcasm) here said he is peeing to much because he is constipated and not emptying his bladder all the way. Well, he has to be emptying it completely. I stand there with him. He pees FOREVER. I have even measured his pee in a hat. He is peeing more than 200cc's each time. And he might be constipated, but then he has the horrible diareah. All in the same stinking day. She wants me to put him on Miralax, but after researching this, I feel very uncomfortable doing so. She told me to keep him on it for 6 months. It is recommended that it is used for no longer than 2 weeks to avoid dependency. I am just frustrated.

If he is having runny stools, then is it actually constipation? Is he feeling the sudden need to have a bowel movement, but nothing happens? Is he having stomach cramping before the need to have a movement? Is it possible this is not constipation, but an intolerance reaction (lactose intolerance for example)? I know from my own intolerance reactions, that I have cramping and a sudden need to go, but then nothing happens...this pattern repeats itself until I finally am able to have a bowel movement...sometimes hours later.

If it truly is constipation, then it can have an effect on the bladder as well, but it sounds like, in your son's case, something else is likely going on. In terms of Miralax, it is a better choice of laxative than others out there, and can be used as recommended by your doctor. My son is on Miralax, because of chronic constipation that resulted in a distended bowel and lack of control over bladder and bowel movements. He will be on Miralax for a loooong time...apparently it takes a couple of years for a distended bowel to return to normal. I suspect there is a dietary issue at play, but we haven't figured it out yet, and the doctor is positive it's simply a slow metabolism. <_<

Michelle

andersonfam06 Apprentice
andersonfam06
Posted
  • Author

From all the research I have done on Miralax, and from my younger sons GI doc's recommendation, I just do not feel comfortable with Miralax. "I" don't think he is constipated at all. I think his guts are contracting, trying to poop, but there is nothing there to poop. Eventually he will go, but his tummy hurts til he does.

Michi8 Contributor
Michi8
Posted
From all the research I have done on Miralax, and from my younger sons GI doc's recommendation, I just do not feel comfortable with Miralax. "I" don't think he is constipated at all. I think his guts are contracting, trying to poop, but there is nothing there to poop. Eventually he will go, but his tummy hurts til he does.

It's important that you are comfortable with the method of treatment. :) Have you tested your son for allergies or intolerances?

We're still trying to figure out my son's intolerances, and will push for complete allergy testing (he's only been tested and confirmed for severe penicillin allergy). We tried going dairy free with some success (my son seemed to have more energy and fewer tummy upsets without dairy in his diet.) At this point we've significantly reduced his dairy consumption.

Michelle

andersonfam06 Apprentice
andersonfam06
Posted
  • Author

Avery has had no allergy testing as of yet. We finally got a referral to my younger son's GI doc this morning. Hopefully he will know something that helps.

skipper30 Enthusiast
skipper30
Posted

Your situation sounds familiar to ours. Our son was originally dx'ed(by a GI) with chronic d, then by an ER doc with chronic C..(very long story) when we finally got to our "on the ball" GI, we asked about the conflicting dx's. She said that he actually was both. Because the Celiac was causing him to not completely empty his bowels when he would go...then he would just "leak" around the mass that was in his bowels.(sorry that is kind of graphic). We had him on Miralax for 4 days before his scoping and she said he was still very full at the thime of the procedure.

Take that info for what you think it is worth. When we went gluten-free, we have had no need for the Miralax again.

Our oldest also had wierd bowel issues...he would get so constipated that he WOULD throw up when he was finally able to move his bowels...haven't had him tested though.

Good luck,

Dallas

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      I wanted to respond to your post as much for other people who read this later on (I'm not trying to contradict your experience or decisions) > Kirkland Signature Super Extra-Large Peanuts, 2.5 lbs, are labeled "gluten free" in the Calif Costcos I've been in. If they are selling non-gluten-free in your store, I suggest talking to customer service to see if they can get you the gluten-free version (they are tasty) > This past week I bought "Sliced Raw Almonds, Baking Nuts, 5 lbs Item 1495072 Best if used by Jun-10-26 W-261-6-L1A 12:47" at Costco. The package has the standard warning that it was made on machinery that <may> have processed wheat. Based on that alone, I would not eat these. However, I contacted customer service and asked them "are Costco's Sliced Almonds gluten free?" Within a day I got this response:  "This is [xyz] with the Costco Member Service Resolutions Team. I am happy to let you know we got a reply back from our Kirkland Signature team. Here is their response:  This item does not have a risk of cross contamination with gluten, barley or rye." Based on this, I will eat them. Based on experience, I believe they will be fine. Sometimes, for other products, the answer has been "they really do have cross-contamination risk" (eg, Kirkland Signature Dry Roasted Macadamia Nuts, Salted, 1.5 lbs Item 1195303). When they give me that answer I return them for cash. You might reasonably ask, "Why would Costco use that label if they actually are safe?" I can't speak for Costco but I've worked in Corporate America and I've seen this kind of thing first hand and up close. (1) This kind of regulatory label represents risk/cost to the company. What if they are mistaken? In one direction, the cost is loss of maybe 1% of sales (if celiacs don't buy when they would have). In the other direction, the risk is reputational damage and open-ended litigation (bad reviews and celiacs suing them). Expect them to play it safe. (2) There is a team tasked with getting each product out to market quickly and cheaply, and there is also a committee tasked with reviewing the packaging before it is released. If the team chooses the simplest, safest, pre-approved label, this becomes a quick check box. On the other hand, if they choose something else, it has to be carefully scrutinized through a long process. It's more efficient for the team to say there <could> be risk. (3) There is probably some plug and play in production. Some lots of the very same product could be made in a safe facility while others are made in an unsafe facility. Uniform packaging (saying there is risk) for all packages regardless of gluten risk is easier, cheaper, and safer (for Costco). Everything I wrote here is about my Costco experience, but the principles will be true at other vendors, particularly if they have extensive quality control infrastructure. The first hurdle of gluten-free diet is to remove/replace all the labeled gluten ingredients. The second, more difficult hurdle is to remove/replace all the hidden gluten. Each of us have to assess gray zones and make judgement calls knowing there is a penalty for being wrong. One penalty would be getting glutened but the other penalty could be eating an unnecessarily boring or malnourishing diet.
    • trents
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      By trents · Posted

      Thanks for the thoughtful reply and links, Wheatwacked. Definitely some food for thought. However, I would point out that your linked articles refer to gliadin in human breast milk, not cow's milk. And although it might seem reasonable to conclude it would work the same way in cows, that is not necessarily the case. Studies seem to indicate otherwise. Studies also indicate the amount of gliadin in human breast milk is miniscule and unlikely to cause reactions:  https://www.glutenfreewatchdog.org/news/gluten-peptides-in-human-breast-milk-implications-for-cows-milk/ I would also point out that Dr. Peter Osborne's doctorate is in chiropractic medicine, though he also has studied and, I believe, holds some sort of certifications in nutritional science. To put it plainly, he is considered by many qualified medical and nutritional professionals to be on the fringe of quackery. But he has a dedicated and rabid following, nonetheless.
    • Scott Adams
      Has anyone had terrible TMJ/ Jaw Pain from undiagnosed Celiac?

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      I'd be very cautious about accepting these claims without robust evidence. The hypothesis requires a chain of biologically unlikely events: Gluten/gliadin survives the cow's rumen and entire digestive system intact. It is then absorbed whole into the cow's bloodstream. It bypasses the cow's immune system and liver. It is then secreted, still intact and immunogenic, into the milk. The cow's digestive system is designed to break down proteins, not transfer them whole into milk. This is not a recognized pathway in veterinary science. The provided backup shifts from cow's milk to human breastmilk, which is a classic bait-and-switch. While the transfer of food proteins in human breastmilk is a valid area of study, it doesn't validate the initial claim about commercial dairy. The use of a Dr. Osborne video is a major red flag. His entire platform is based on the idea that all grains are toxic, a view that far exceeds the established science on Celiac Disease and non-celiac gluten sensitivity. Extraordinary claims require extraordinary evidence, and a YouTube video from a known ideological source is not that evidence."  
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