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1 Month Gluten Free Tomorrow


vampella

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vampella Contributor

I am so happy I have my little girl back.

She's healthy again & from what I can tell on my scale she's gained 2 lbs in 2 weeks. that is so great since she lost about 5lbs in the last 2-3 months.

Happy 1 month gluten-free to EMMAH...woooohoooo


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kbtoyssni Contributor

Congrats!!!

MySuicidalTurtle Enthusiast

Aw, how nicw, Vampella.

vampella Contributor

Ok so my scale lies...LMAO BUT she did gain 1 FULL lb.!!! YAY!!!! in 2 weeks, he was so pleased. he said "normal" children sometimes don't gain that much in 6-9 months or a year. She doesn't have to go back for a MONTH woooooohoooooo!!!! we graduated from weekly to 2 weeks and now a full month.

I think when we go to the GI in january I'm gonna have a fight on my hands. Our ped keeps saying he's going to want her on gluten and I keep saying no.

He said well why not? I said I will NOT abuse my child by making her sick. I don't need an official diagnoses that bad, if he wants one too darn bad. lol he keeps saying I'll have to fight that one out with the GI spec. Well I WILL. no way in heck, she's healthy now and happy.

He said in his letter to the GI that he did say that she was gluten-free and that despite the neg blood work he HIGHLY suspects that she has celiac D & that she was responding great to the diet!!!!

He did request an IgA Test and I will get that done Monday. Here in manitoba they only have to run the TtG because "apparently" it's the best out there. for blood.

In a way I hope it's a low result because then I can say hey no way is she going back on gluten for a stupid biopsy, here is reason number 2...a low IgA causes faulse neg's and that is your positive result but either way she's NOT going back on gluten.

Thanks for letting me vent

Char

abigail Apprentice

happy month!!! I sahre your happines!!!!!!!!!

my son is today also gluten free for a month, and his belly is going back to normal, And hes is gaining a little weight too!!!

congratulations on your daily efforts mom!!!

Abi

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    • Rogol72
      Hey @Butch68, I also have dermatitis herpetiformis but don't suffer from it anymore. I used to drink Guinness too but I drink Cider now when out on social occasions. I assume you are in Ireland or the UK. If it's any good to you ... 9 White Deer based in Cork brew a range of gluten-free products including a gluten-free Stout. I'm not sure if they are certified though. https://www.9whitedeer.ie/ I haven't come across any certified gluten-free stouts this side of the pond.
    • Scott Adams
      This is a very common question, and the most important thing to know is that no, Guinness is not considered safe for individuals with coeliac disease. While it's fascinating to hear anecdotes from other coeliacs who can drink it without immediate issues, this is a risky exception rather than the rule. The core issue is that Guinness is brewed from barley, which contains gluten, and the standard brewing process does not remove the gluten protein to a level safe for coeliacs (below 20ppm). For someone like you who experiences dermatitis herpetiformis, the reaction is particularly significant. DH is triggered by gluten ingestion, even without immediate gastrointestinal symptoms. So, while you may not feel an instant stomach upset, drinking a gluten-containing beer like Guinness could very well provoke a flare-up of your skin condition days later. It would be a gamble with a potentially uncomfortable and long-lasting consequence. Fortunately, there are excellent, certified gluten-free stouts available now that can provide a safe and satisfying alternative without the risk.
    • MogwaiStripe
      Interestingly, this thought occurred to me last night. I did find that there are studies investigating whether vitamin D deficiency can actually trigger celiac disease.  Source: National Institutes of Health https://pmc.ncbi.nlm.nih.gov/articles/PMC7231074/ 
    • Butch68
      Before being diagnosed coeliac I used to love Guinness. Being made from barley it should be something a coeliac shouldn’t drink. But taking to another coeliac and they can drink it with no ill effects and have heard of others who can drink it too.  is this everyone’s experience?  Can I drink it?  I get dermatitis herpetiformis and don’t get instant reactions to gluten so can’t try it to see for myself. 
    • trents
      NCGS does not cause damage to the small bowel villi so, if indeed you were not skimping on gluten when you had the antibody blood testing done, it is likely you have celiac disease.
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