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Went To The Gi Doctor Today


lyndszai

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lyndszai Apprentice

Today I finally got to see the gi specliest.It took around 8 months to ger in .I was there for 3 hrs .I went on the gluten-free diet July 2 and he scedualed my biospy and colon something for sept. 21 .Im really nervus about it .He told me if I had celiac it would show up no matter if I was gluten-free before .I think its going to show neg. becauses I was on the diet previous.For the people who had to do this should I be loading on the gluten right now .Its kinda of hard with school starting .Have any advice im so scared because what if it shows neg. Im so positive its celiac.Any advice or opinions would be greatly appreachiated.thanks Lynds


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GEF Explorer

If it makes you feel any better, I've had the endoscopy (the tube they insert down your throat), a sigmoidoscopy (a mini-colonoscopy) and a colonoscopy.... and none of them are that bad at all. Now, I'll fore-warn you, the preparation can be a little embarrassing, but it's not too bad. For the tests, they'll drug you up pretty good and you feel like "all is well" during it, so you really won't think it's bad at all... if you can even remember (the drugs sometimes give you amnesia). All the tests were normal for me... but, I don't regret getting them done. As nice as it is to get answers, it's also nice to rule other things out :D

From what I've heard, you should be loading up on the gluten before the test, or your results could be inconclusive. Sounds like a horrible thing to do, though.

Good luck with your tests. Keep us updated on how things are going for you ok?

Gretchen

lyndszai Apprentice

Ya I heard about the preperation .The problem is i have a 2 hrs drive to the hospital :( .which kind of worrys me because of the laxitives .They are gonig to put me to sleep and while im asleep there going to take my blood because I dont like needles .You are right it is good to rule somethings out i just hope they get to the bottem of it . thanks I will keep u updated .

GEF Explorer

Oh no... they shouldn't let you drive yourself. Normally they won't let you do the procedure unless someone drives you home... you might want to double check this with your doctor's office, though. Or were you just referring to the time to drive there, period? Usually by the time you're going to the hospital or office, the prep is pretty much completed... but, just in case, prepare to stop at a rest area.

I know.. . it's nice to get an answer to what's making your body react the way it does.

PS... I hate needles too! eewwwww! I haven't fainted yet, but I get close.

Gretchen

lyndszai Apprentice

Oh no lol I cant even drive yet .I was talking about the time becauses we have to go on a highway which means no rest rooms...for awhile

Alexolua Explorer

Hey lyndszai.

Have you seen the posts about enterolab.com in here? They do testing for celiac, and are supposed to be more accurate than the blood and biopsy are. And they can test you when you've been gluten-free for awhile.

The only problem you might have, is that I don't think medical insurance covers their testing, and your doctor may not accept their results.

What you do basically, is order the tests you want from their website, they mail them to you, then you give them a stool sample, send it back, and your results get emailed to you. Not too painful, lol.

My point though is if you are scared that nothing will show up since you've been gluten free, you could get tested by them too. That's what I did, just to be safe, incase my biopsy was negative, which it was, bleck.

Not trying to advertise though, just letting you know about another option aviable. =)

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      It is just so sad that health care in the United States has come to this.  Health insurance should be available to everyone, not just the healthy or the rich.  My heart goes out to you.  I would not hesitate to have the test and pay for it myself.  My big concern would be how you could keep the results truly private.  I am sure that ultimately, you could not.  A.I. is getting more and more pervasive, and all data is available somewhere.  I don't know if you could give a fake name, or pay for your test with cash.  I certainly would not disclose any positive results on a private insurance application.  As I understand it, for an official diagnosis, an MD needs to review your labs and make the call.  If you end up in the ER, or some other situation, just request a gluten free diet, and say it is because you feel better when you don't eat gluten.      Hang in there, though.  Medicare is not that far away for you, and it will remove a lot of stress from your health care concerns.  You will even be able to "come out of the closet" about being Celiac!
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      Yes, I've posted a few times about two companies: Request a Test and Ulta Labs. Also, pretty much we can all request any test we want (with the possible exception of the N protein Covid test and I'm sure a couple of others) with Lab Corp (or Pixel by Lab Corp) and Quest. I much prefer Lab Corp for their professionalism, ease of service and having it together administratively, at least in DC. And just so you know, Request a Test uses Lab Corp and Quest anyway, while Ulta Labs uses only Quest. Ulta Labs is cheaper than Request a Test, but I am tired of dealing with Quest, so I don't use them so much.
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      PS - I think you meant this site, but I don't believe it has been updated in years: http://glutenfreedrugs.com/ so it is best to use: You can search this site for prescriptions medications, but will need to know the manufacturer/maker if there is more than one, especially if you use a generic version of the medication: To see the ingredients you will need to click on the correct version of the medication and maker in the results, then scroll down to "Ingredients and Appearance" and click it, and then look at "Inactive Ingredients," as any gluten ingredients would likely appear there, rather than in the Active Ingredients area. https://dailymed.nlm.nih.gov/dailymed/   
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