Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Went To The Gi Doctor Today


lyndszai

Recommended Posts

lyndszai Apprentice

Today I finally got to see the gi specliest.It took around 8 months to ger in .I was there for 3 hrs .I went on the gluten-free diet July 2 and he scedualed my biospy and colon something for sept. 21 .Im really nervus about it .He told me if I had celiac it would show up no matter if I was gluten-free before .I think its going to show neg. becauses I was on the diet previous.For the people who had to do this should I be loading on the gluten right now .Its kinda of hard with school starting .Have any advice im so scared because what if it shows neg. Im so positive its celiac.Any advice or opinions would be greatly appreachiated.thanks Lynds


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



GEF Explorer

If it makes you feel any better, I've had the endoscopy (the tube they insert down your throat), a sigmoidoscopy (a mini-colonoscopy) and a colonoscopy.... and none of them are that bad at all. Now, I'll fore-warn you, the preparation can be a little embarrassing, but it's not too bad. For the tests, they'll drug you up pretty good and you feel like "all is well" during it, so you really won't think it's bad at all... if you can even remember (the drugs sometimes give you amnesia). All the tests were normal for me... but, I don't regret getting them done. As nice as it is to get answers, it's also nice to rule other things out :D

From what I've heard, you should be loading up on the gluten before the test, or your results could be inconclusive. Sounds like a horrible thing to do, though.

Good luck with your tests. Keep us updated on how things are going for you ok?

Gretchen

lyndszai Apprentice

Ya I heard about the preperation .The problem is i have a 2 hrs drive to the hospital :( .which kind of worrys me because of the laxitives .They are gonig to put me to sleep and while im asleep there going to take my blood because I dont like needles .You are right it is good to rule somethings out i just hope they get to the bottem of it . thanks I will keep u updated .

GEF Explorer

Oh no... they shouldn't let you drive yourself. Normally they won't let you do the procedure unless someone drives you home... you might want to double check this with your doctor's office, though. Or were you just referring to the time to drive there, period? Usually by the time you're going to the hospital or office, the prep is pretty much completed... but, just in case, prepare to stop at a rest area.

I know.. . it's nice to get an answer to what's making your body react the way it does.

PS... I hate needles too! eewwwww! I haven't fainted yet, but I get close.

Gretchen

lyndszai Apprentice

Oh no lol I cant even drive yet .I was talking about the time becauses we have to go on a highway which means no rest rooms...for awhile

Alexolua Explorer

Hey lyndszai.

Have you seen the posts about enterolab.com in here? They do testing for celiac, and are supposed to be more accurate than the blood and biopsy are. And they can test you when you've been gluten-free for awhile.

The only problem you might have, is that I don't think medical insurance covers their testing, and your doctor may not accept their results.

What you do basically, is order the tests you want from their website, they mail them to you, then you give them a stool sample, send it back, and your results get emailed to you. Not too painful, lol.

My point though is if you are scared that nothing will show up since you've been gluten free, you could get tested by them too. That's what I did, just to be safe, incase my biopsy was negative, which it was, bleck.

Not trying to advertise though, just letting you know about another option aviable. =)

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,021
    • Most Online (within 30 mins)
      7,748

    maltawildcat
    Newest Member
    maltawildcat
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • NanCel
    • sleuth
      He is not just a psychiatrist.  He is also a neuroscientist.  And yes, I have already read those studies.   I agree with benfotiamine.  This is short term while glutened/inflammation occurs.  As I had already mentioned, these symptoms no longer exist when this phase passes.  And yes, I know that celiac is a disease of malnutrition.  We are working with a naturopath.
    • knitty kitty
      Please do more research before you settle on nicotine. Dr. Paul New house is a psychiatrist.  His latest study involves the effect of nicotine patches on Late Life Depression which has reached no long term conclusions about the benefits.   Effects of open-label transdermal nicotine antidepressant augmentation on affective symptoms and executive function in late-life depression https://pubmed.ncbi.nlm.nih.gov/39009312/   I'm approaching the subject from the Microbiologist's point of view which shows nicotine blocks Thiamine B1 uptake and usage:   Chronic Nicotine Exposure In Vivo and In Vitro Inhibits Vitamin B1 (Thiamin) Uptake by Pancreatic Acinar Cells https://pubmed.ncbi.nlm.nih.gov/26633299/   While supplementation with thiamine in the form Benfotiamine can protect from damage done by  nicotine: Benfotiamine attenuates nicotine and uric acid-induced vascular endothelial dysfunction in the rat https://pubmed.ncbi.nlm.nih.gov/18951979/   I suggest you study the beneficial effects of Thiamine (Benfotiamine and TTFD) on the body and mental health done by Dr. Derrick Lonsdale and Dr. Chandler Marrs.  Dr. Lonsdale had studied thiamine over fifty years.   Hiding in Plain Sight: Modern Thiamine Deficiency https://pmc.ncbi.nlm.nih.gov/articles/PMC8533683/ I suggest you read their book Thiamine Deficiency Disease, Dysautonomia, and High Calorie Malnutrition.     Celiac Disease is a disease of malabsorption causing malnutrition.  Thiamine and benfotiamine: Focus on their therapeutic potential https://pmc.ncbi.nlm.nih.gov/articles/PMC10682628/
    • sleuth
      Thanks for your response.  Everything you mentioned he is and has been doing.  Tobacco is not the same as nicotine.  Nicotine, in the form of a patch, does not cause gastrointestinal irritation.  Smoking does. He is not smoking.  Please do your research before stating false information. Dr. Paul Newhouse has been doing research on nicotine the last 40 years at Vanderbilt University Medical Center.  
    • Jmartes71
      Im so frustrated and still getting the run around trying to reprove my celiac disease which my past primary ignored for 25 years.I understand that theres a ray of medical that doctors are limited too but not listening and telling the patient ( me) that im not as sensitive as I think and NOT celiac!Correction Mr white coat its not what I think but for cause and affect and past test that are not sticking in my medical records.I get sick violently with foods consumed, not eating the foods will show Im fabulous. After many blood draws and going through doctors I have the HLA- DQ2 positive which I read in a study that Iran conducted that the severity in celiac is in that gene.Im glutenfree and dealing with related issues which core issue of celiac isn't addressed. My skin, right eye, left leg diagestive issues affected. I have high blood pressure because im in pain.Im waisting my time on trying to reprove that Im celiac which is not a disease I want, but unfortunately have.It  has taken over my life personally and professionally. How do I stop getting medically gaslight and get the help needed to bounce back if I ever do bounce back to normal? I thought I was in good care with " celiac specialist " but in her eyes Im good.Im NOT.Sibo positive, IBS, Chronic Fatigue just to name a few and its all related to what I like to call a ghost disease ( celiac) since doctors don't seem to take it seriously. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.