Ursula

[kolka]

I saw your response to the crockpot question and I read your bio.

Your two grandbabies are sooooo cute!

My questions: How has the gluten-free diet helped asperger's syndrome? Why was it diagnosed so late? My daughter (4-1/2) was diagnosed two years ago with PDD. I just found out about the gluten-free/CF diet and we are now implementing it.

[Ursa Major]

I saw your response to the crockpot question and I read your bio.

Your two grandbabies are sooooo cute!

My questions: How has the gluten-free diet helped asperger's syndrome? Why was it diagnosed so late? My daughter (4-1/2) was diagnosed two years ago with PDD. I just found out about the gluten-free/CF diet and we are now implementing it.

Hi Kolka, Sorry for not answering sooner, I didn't see your post. The reason my AS wasn't diagnosed earlier - and in fact I diagnosed myself and then went to specialist and he confirmed my self-diagnosis - was simply, that when I was a kid NOBODY got diagnosed. The definition of AS didn't even exist until sometime in the 1980s (I think 1984).

And strangely, somehow most doctors act as if only children have AS. Which of course is nonsense, because what do they think happens to those kids when they grow up?

To your question if the diet has helped the AS, I have to say, no it hasn't. Because in my case, it is genetic. Some people's autism is caused by dietary intolerances, and that's why trying the gluten-free/df diet is always a good idea with any type of autism, ADHD etc., because often it is very helpful.

In my family, my father obviously had AS, and so do probably four of my six brothers, and my sister as well. My sister is an extreme case, she is so very odd. And strangely, she doesn't even think she is different (I asked her)! While I have always known that something is different about me.

I don't know if diet would have been beneficial when I was a kid. But by now it isn't helping any more. I feel that I am getting more autistic all the time. I can pretend I like being around people, and they don't know, but I'd prefer to be completely alone almost all the time. I feel that I resent my husband for being around (him being a total control freak is not helpful), and he resents me for wanting to be alone. Bad combination.