Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Do I Have Celiac?


razn

Recommended Posts

razn Newbie

So i've been feeling really sick after I eat, and VERY tired these last few months. I never knew about gluten until my friends mom said this might be my problem. After I eat, I usually notice my heart beat more, my stomach feels bloated and ill, and then I get really irratable and very tired, many signs of the disease.

The other day I had no gluten, and felt fine all day. Today, all I had was an apple, and than a gluten free pizza, and I felt fine. Than I had some Reese's Ice Cream, and got stomach aches soon after.

Now, I haven't had any constipation or diarreah, and I have been gaining weight, which are symptoms that most people have on here.

Also, I have been very hungry these last few months, and never seem to get full. Only stomach aches. I also haven't been able to have more than one or two beers without getting very sick.

I go to the doctor to get tested on Monday, but am wondering what everyone here thinks about it. Could it be anything else?

Tomorrow I am going to go completley gluten free, and have some rum at night and see how I feel.

Thanks in advance! Everyone seems very helpful here.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Riayn Newbie

Celiac disease can have many different presentations. Not everyone who has celiacs has GI symptoms.

If you are getting the blood test done on Monday, the important thing is to remain eating gluten until then. If you go gluten-free you run the risk of testing negative even though you may have Celiacs.

Best of luck!

Guest cassidy

Celiac certainly could be your problem. Testing can be a bit tricky. Many people don't test positive enough though they have a problem with gluten. If you go off gluten before you get tested, then you may have a negative result, even if it would have been positive if you stayed on gluten.

Also, it took me 2 weeks to notice a difference after going gluten-free. It is great that you have already had a good day, but it takes a while to get out of your system so eating gluten one day and not the next really won't tell you much. You really need to give it a month or so of being gluten-free to see if the diet is going to work for you. There is so much hidden gluten that you may gluten yourself in the beginning without realizing it. At the same time, the only reason you would feel better by excluding gluten is if you have a problem with gluten, so you may have already figured things out.

Good luck and just realize that it may be a bit challenging in the beginning, but things do get much easier.

Guhlia Rising Star

For the first twenty five years of my life I was constantly fatigued, tired, and depressed. I slept as often as I could, sometimes 15 hours a day or more. All I ever wanted to do was sleep, it was horrible. Then, at 25 I began to get constipated along with the chronic fatigue. My joints ached and I was beginning to experience significant memory loss. Less than a year later I started in with what appeared to be a stomach virus, diarrhea and nausea constantly. This never went away. The D lasted for almost 6 months until I was diagnosed and went gluten free. The point of my story is that yes, you can have fatigue as your only symptom. Actually, you can be completely asymptomatic and still have Celiac. It seems to me that you have already determined that you have a problem with gluten, whether it's Celiac or not. Will you be planning on trying the gluten free lifestyle even if you test negative. It's really not that hard once you've done it for a while. I don't even think about it anymore.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Scott Adams replied to HAUS's topic in Gluten-Free Foods, Products, Shopping & Medications
      7

      Sainsbury's Free From White Sliced Bread - Now Egg Free - Completely Ruined It

    2. - Scott Adams replied to deanna1ynne's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      13

      Inconclusive results

    3. - deanna1ynne replied to deanna1ynne's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      13

      Inconclusive results

    4. - cristiana replied to HAUS's topic in Gluten-Free Foods, Products, Shopping & Medications
      7

      Sainsbury's Free From White Sliced Bread - Now Egg Free - Completely Ruined It


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,440
    • Most Online (within 30 mins)
      7,748

    Lillian Steele
    Newest Member
    Lillian Steele
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Who's Online (See full list)

    • There are no registered users currently online
  • Upcoming Events

  • Posts

    • Scott Adams
      In the U.S., most regular wheat breads are required to be enriched with certain B-vitamins and iron, but gluten-free breads are not required to be. Since many gluten-free products are not enriched, we usually encourage people with celiac disease to consider a multivitamin.  In the early 1900s, refined white flour replaced whole grains, and people began developing serious vitamin-deficiency diseases: Beriberi → caused by a lack of thiamin (vitamin B1) Pellagra → caused by a lack of niacin (vitamin B3) Anemia → linked to low iron and lack of folate By the 1930s–40s, these problems were common in the U.S., especially in poorer regions. Public-health officials responded by requiring wheat flour and the breads made from it to be “enriched” with thiamin, riboflavin, niacin, and iron. Folic acid was added later (1998) to prevent neural-tube birth defects. Why gluten-free bread isn’t required to be enriched? The U.S. enrichment standards were written specifically for wheat flour. Gluten-free breads use rice, tapioca, corn, sorghum, etc.—so they fall outside that rule—but they probably should be for the same reason wheat products are.
    • Scott Adams
      Keep in mind that there are drawbacks to a formal diagnosis, for example more expensive life and private health insurance, as well as possibly needing to disclose it on job applications. Normally I am in favor of the formal diagnosis process, but if you've already figured out that you can't tolerate gluten and will likely stay gluten-free anyway, I wanted to at least mention the possible negative sides of having a formal diagnosis. While I understand wanting a formal diagnosis, it sounds like she will likely remain gluten-free either way, even if she should test negative for celiac disease (Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If her symptoms go away on a gluten-free diet, it would likely signal NCGS).        
    • JoJo0611
    • deanna1ynne
      Thank you all so much for your advice and thoughts. We ended up having another scope and more bloodwork last week. All serological markers continue to increase, and the doc who did the scope said there villous atrophy visible on the scope — but we just got the biopsy pathology report back, and all it says is, “Duodenal mucosa with patchy increased intraepithelial lymphocytes, preserved villous architecture, and patchy foveolar metaplasia,” which we are told is still inconclusive…  We will have her go gluten free again anyway, but how soon would you all test again, if at all? How valuable is an official dx in a situation like this?
    • cristiana
      Thanks for this Russ, and good to see that it is fortified. I spend too much time looking for M&S gluten-free Iced Spiced Buns to have ever noticed this! That's interesting, Scott.  Have manufacturers ever said why that should be the case?  
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.