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Cd Doc In Kc, Mo


clanning

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clanning Rookie

I'm new to this forum. I have a GI doctor that I've fired several times. MY celiac disease is so out of control. My biopsy's were terrible (complete/total Villa atrophy), my lab's were all critical IGG (?#) IGA >150, Iron levels, sever anemia, WBC 3, low every thing.

I 2 wks ago I had to have my gallbladder remove due to severe chronic cholycystitis. Not helling well from it. Can not absorb the CO2 from the surgery. Dr's all say it's from my celiac disease being out of control.

I've since tried staying gluten-free but it's very hard. Getting recipe's now etc..

My GI doc tells me that I'm not going to be around in 3 yrs. if I do not straighten up. Does anyone know if that is true?

It has taken over my intestines. I'm ALWAYS constipated taking laxitives like candy (prescripted & OTC). I take several meds Nexium, Zelnorm, Lactulose, Mirlax and I'm still severly constipated.

I have weak spells & have recently passed out at work. (Thank God I work at a hospital) Migrains and a lot of the time the crabbiest person on earth.

I would like to find a DR. would listens to me!! Yes, I know I have to stay on the diet first.

I've read that a lot of people on this take other things, why is that and how does it help?

Charlotte


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  • Posts

    • Fayeb23
      Thank you that’s really helpful, hopeful won’t have to have a biopsy.
    • RMJ
      That means the normal range (i.e. not celiac disease) would be a result less than 14.99.  Your result is WAY above that. Some gastroenterologists would diagnose that as celiac disease even without a confirming biopsy because it is more than ten times the top of the normal range.
    • Redanafs
      Hi everyone. Back in 2022 I had blood work drawn for iga ext gliadin. Since then I’ve developed worse stomach issues and all other health issues. My doctor just said cut out gluten. He did no further testing. Please see my test results attached. I just need some direction cause I feel so ill and the stomach pain is becoming worse. Can this test show indications for other gastrointestinal diseases?
    • Fayeb23
      Thank you. These were the results TTG ABS NUMERICAL: > 250.0 U/mL [< 14.99]  Really don’t understand the results!
    • Scott Adams
      Clearly from what you've said the info on Dailymed is much more up to date than the other site, which hasn't been updated since 2017. The fact that some companies might be repackaging drugs does not mean the info on the ingredients is not correct.
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