Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Problems In Pregnancy With Cd


laelfin

Recommended Posts

laelfin Newbie

My husband and I are planning on starting a family soon and I was curious if anyone knows about additional complications related to my celiac disease diagnosis. Is there anthing I should plan for?

:huh:


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



seeking-wholeness Explorer

Hi, laelfin!

I have two kids, ages 3.5 and 1.5, but I just found out I have celiac disease a few months ago (and so do they!). Well, my body is just now starting to get interested in maybe having another one, so I have to consider my options....

First of all, it is not uncommon for a woman with (undiagnosed) celiac disease to experience repeated miscarriages. It might be a good idea to hold off on conceiving until you have a good grasp of the gluten-free diet and a repertoire of meals that you know you can eat safely, so your body doesn't end up deciding that it can't support a pregnancy after all!

Another consideration is, can you maintain the gluten-free diet EVEN IF YOU HAVE TERRIBLE MORNING SICKNESS? I had serious trouble with food aversions with both of my pregnancies--I couldn't even LOOK at fresh vegetables without starting to gag, and I just about lived on Pop Tarts and Pizza Hut! Even so, I LOST weight (10 and 6 pounds, respectively) during the first trimester of each pregnancy. I also COULD NOT force myself to cook for the duration of the pregnancies; it made me feel too ill, and I would rather have gone hungry. If I were to conceive again, I would HAVE to cook and eat gluten-free meals regardless of my cravings and aversions, and I'm not sure I could do it! I just read that morning sickness may be attributable to vitamin deficiencies (which are, of course, almost guaranteed to be a problem if you have celiac disease), so here again is another reason to consider postponing conception until your body is well on its way toward healing.

I did just read here at celiac.com that birth outcomes are no worse for mothers with celiac disease than for "healthy" mothers, which is certainly reassuring. The baby, of course, may turn out to have celiac disease as well, but that is a different can of worms! Breastfeeding is an excellent way to get your baby off to a good start and support his or her developing immune system, which would be especially important if he or she were to turn out to have celiac disease. These are just the things I have thought of, being in a position similar to yours right now. I don't mean to scare you off of having a family, but pregnancy is a roller coaster under the best of circumstances, and celiac disease may make day-to-day coping a real challenge! I wish you and your husband the best of luck as you start your family!

Connie R-E Apprentice

laelfin,

Yes, there is a higher incidence of miscarriages with celiac disease....

I experienced more than I wanted! --even being gluten-free for 5 years, and taking vitamins!

My doctor noticed that my progesterone was to low to "hold" a pregnancy, so my advice would be to have your progesterone levels checked very early on--like as soon as you get pregnant! I ususally miscarried at 3-4 weeks, so well before that window!

Don't let being celiac deter you from trying to have a family, just work a little more closely with your doctor. :)

Good luck!

Connie

--32 weeks pregnant with boy #2 ! :wub:

  • 4 weeks later...
Guest Blackheartedwolf
My husband and I are planning on starting a family soon and I was curious if anyone knows about additional complications related to my celiac disease diagnosis. Is there anthing I should plan for?

:huh:

This is the boat I am in. I found out I have celiac disease last Thursday. I have had 2 children when I was younger, and as far as I know, have never miscarried.

My husband and I were married this past Halloween, and we want to have a baby. I am worried now that I know I have celiac disease.

I read that doctors usually prescribe 1 baby aspirin a day to pregnant Celiacs, to help prevent miscarriages.

I hope that will work! I never had a problem getting pregnant before.

  • 4 weeks later...
andyc Newbie

I am not sure if this has anything to do with celiac disease - But it probably has something to do with malabsorption -

I had a miscarriage and a pregnancy where there was a problem. I do however have two great kids. With each of them I gained a tremendous amount of weight and they were big babies - very healthy. So I guess it all depends upon your nutritional status at the time of the pregnancy. I would take vitamins and make sure that the foods I ate where gluten-free.

hapi2bgf Contributor

I'm in a similar position to all of you. I started dropping weight and then got pregnant before I knew I was in trouble with undiagnosed Celiacs. I had a text book pregnancy except for the fact that I was skin and bones. The baby gained enough weight and was fine. So far she has tested negative to Celiacs, but she does have some serious poop issues that are beginning to make me wonder about her (She is three now). I am now ready to have another child and I am terribfied that the Celics will cause problems during the pregnancy or to the baby. I'm at the point of thinking about eating absolutely nothing that is processed and nothing that I did not make myself. I think it is overreaction, but I am scared for the baby.

The second issue is what do you do once the baby is born? I breast fed my daugther for the first year, she got everything according to the schedules and recommendations and she ended up with a peanut allergy, slight hearing loss due to the numerous ear infections, two ear tubes, and a poop problem that has me concerned. And that was following the text book rules about when to introduce all of the foods etc.

Do Celiac Mom's have trouble breast feeding? If formula is used, should it be gluten free?

Should Gluten be introduced later than most "normal" babies?

Just think these are my question before I am pregnant! :P

plantime Contributor

Hapi, Overreacting? Not on your life! No processed foods and only what you prepare is pretty much the only guarantee a celiac has of uncontaminated food. I think (IMHO) that you should at least have the gene test done on your child, since celiac disease is genetic. I don't think there would be any problem with breastfeeding, as long as the mom is getting enough to eat.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



scribble Newbie

I'm a celiac -- eight weeks pregnant -- and the only problem i've run into is food aversions. many of the gluten-free foods disgust me right now (especially rice bran and rice flour). And, as of this week, I'm totally grossing out on flax. the biggest bummer is that i'm actually craving many forbidden foods -- mcdonalds cheeseburgers, pizza, etc. -- and i, of course, can't satisfy these cravings. i'm just doing the best i can, but it can be tough. other than that, i've been ok.

Connie R-E Apprentice

Congratulations, scribble! :D

"...i'm actually craving many forbidden foods -- mcdonalds cheeseburgers, pizza, etc..."

Maybe you just need more fat in your diet!! I used to crave bacon!

It was the only fatty food I ate...

Good luck!

Connie

~ 9 months and 5 days...and still waiting!

KayJay Enthusiast

Pizza cravings? I just made a rice pizza last week (got the recipe on this site) I thought it was really good. I don't know if you could tolerate rice but if you can it is worth a try.

good luck

  • 6 months later...
judi Newbie

Cany anyone suggest a prenatel viatamin that does not contain gluten? Is there one over the counter or do I need to ask the doctor. I just found out I am pregnant with my 6th child and want to get viatamins asap.

Thanks for your help.

Judi

  • 3 weeks later...
hapi2bgf Contributor

I use Nature Made Vitamins. It does not require a prescription and states gluten-free on the bottle. I bought mine at BJs (warehouse store).

So far I am 5 months along, had several gluten accidents last month, but the baby is just fine.

FYI: You may want to look into the sonogram schedule at least as far as your OB is concerned. I go to a great OB but she could careless about Celiacs. The High resolution sonogram meant I went to a Specialist. She recommends seeing her Celiacs pregnant Mamas at 28 and 34 weeks in addition to the normal 20 week check up. I don't know if she would have preferred that I came in before 20 weeks.

Good luck!

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,016
    • Most Online (within 30 mins)
      7,748

    Chloelouise04
    Newest Member
    Chloelouise04
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Jmartes71
      Im so frustrated and still getting the run around trying to reprove my celiac disease which my past primary ignored for 25 years.I understand that theres a ray of medical that doctors are limited too but not listening and telling the patient ( me) that im not as sensitive as I think and NOT celiac!Correction Mr white coat its not what I think but for cause and affect and past test that are not sticking in my medical records.I get sick violently with foods consumed, not eating the foods will show Im fabulous. After many blood draws and going through doctors I have the HLA- DQ2 positive which I read in a study that Iran conducted that the severity in celiac is in that gene.Im glutenfree and dealing with related issues which core issue of celiac isn't addressed. My skin, right eye, left leg diagestive issues affected. I have high blood pressure because im in pain.Im waisting my time on trying to reprove that Im celiac which is not a disease I want, but unfortunately have.It  has taken over my life personally and professionally. How do I stop getting medically gaslight and get the help needed to bounce back if I ever do bounce back to normal? I thought I was in good care with " celiac specialist " but in her eyes Im good.Im NOT.Sibo positive, IBS, Chronic Fatigue just to name a few and its all related to what I like to call a ghost disease ( celiac) since doctors don't seem to take it seriously. 
    • trents
      @Martha Mitchell, your reaction to the lens implant with gluten sounds like it could be an allergic reaction rather than a celiac reaction. It is possible for a celiac to be also allergic to gluten as it is a protein component in wheat, barley and rye.
    • JoJo0611
    • Martha Mitchell
      Scott I also have different symptoms than most people. It affects me bad. Stomach ache, headache, nauseous, heart racing, whole body shaking, can't walk then my throat starts to close. It attacks my nervous system. The only thing that saves me is a 1/2 of Xanax...it calms down my nervous system 
    • Martha Mitchell
      Scott Adams. I was dealing with a DR that didn't care about me being celiac. I repeatedly told him that I was celiac and is everything gluten-free. He put an acrylic lens from j&j. I called the company to ask about gluten and was told yes that the acrylic they use has gluten....then they back tracked immediately and stopped talking to me. The Dr didn't care that I was having issues. It took me 6 months and a lot of sickness to get it removed.... which can only happen within 6 months. The Dr that took it out said that it was fused and that's why I lost vision. If they would have removed it right away everything would be fine. He put in a silicone one that was gluten-free and I've had no issues at all in the other eye. Do not do acrylic!
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.