Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Please Read - No Celiacs Can Have Soy!


srokie

Recommended Posts

sandsurfgirl Collaborator

Yes, and by no means am I saying that my doctor is the all-knowing being who could never be wrong.

But don't you guys think that - in the event she is right - I would be quite negligent as a fellow celiac not to share information that could make you all feel better?

I think it's wise to share information when it is proven to be valid. That means lengthy studies on varied populations and all of that scientific jazz. People come up with theories about all sorts of diseases all the time and maybe they look at a few things and say "Eureka! I've found the answer." It may or may not be. You have to be skeptical and careful about what information you take as the truth because ALL doctors (well most anyway) are confused about celiac or at least they don't agree with one another.

Testing is unreliable and if there's anything ALL celiacs know it's that celiacs are not ALL alike. There is such a wide range of symptoms, or lack of symptoms, levels of sensitivity from being able to cheat with no consequences to getting deathly ill from glutened shampoo.

You just cannot make a sweeping statement like that and expect us to all say "Okay, well out with the soy then!" I would bet all the bun-less hamburgers I will ever eat in the future that this research isn't going to turn up to be what this PhD (not medical doctor) is telling people that it is. There is too much anecdotal evidence to the contrary, let alone scientific evidence.

I think your heart is in the right place and it's wonderful that you want to share but people just aren't going to get up in arms about this and they are going to question it especially when it's coming from someone who isn't even a medical doctor. You can get a PhD in all sorts of things but that doesn't make you a "doctor" who treats patients and practices medicine. A PhD student doesn't do residency and work in a hospital, etc. Plus what is her PhD in anyway?

And since so many doctors have misdiagnosed us over the years or been totally clueless about what to do once they do diagnose us, we're all going to be skeptical of doctors period.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



  • Replies 103
  • Created
  • Last Reply
sandsurfgirl Collaborator

Well now I feel like a dork. I didn't realize this was such an old thread. I saw it at the top and replied.

:lol::lol::lol:

Lisa Mentor

Well now I feel like a dork. I didn't realize this was such an old thread. I saw it at the top and replied.

:lol::lol::lol:

Not to worry! This is one or our "Young and the Restless" threads...they never die. Hopefully, they just fade away. :blink::D

Might be time to close this one. B)

psawyer Proficient

This topic's "best before" date was about three years ago. I am closing it.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      130,229
    • Most Online (within 30 mins)
      7,748

    forsman
    Newest Member
    forsman
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.3k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • nataliallano
      Thanks Kitty for your guidance. I will do the test to see if I have nutrients deficiencies and at the same time re organize my diet to see if that helps with my vertigo and other symptoms.   
    • knitty kitty
      Yes, Vitamin D is frequently low in Celiac Disease and Meniere's both.  Ask for an Erythrocyte Transketolace test to check for thiamine insufficiency.  Diuretics can cause excess thiamine loss.  Benfotiamine is a form of thiamine that improves intestinal health.  Thiamine in the form TTFD (Tetrahydrofurfuryl Disulfide) helped improve my Meniere's syndrome.
    • nataliallano
      Kitty, to correct the anemia I got IV iron and B complex for 30 days. Then my next step will be test for nutritional deficiencies.   
    • knitty kitty
      Welcome to the forum, @nataliallano, There's a dozen or so vitamins and about as many minerals that our bodies need to live and thrive.  Our vitamins and minerals can become depleted in Celiac Disease due to malabsorption and inflammation, so we need to eat a nutritionally dense diet, and keep inflammation to a minimum.  
    • knitty kitty
      No, not if you've got an official diagnosis already.   Let's continue our conversation on this thread... Thanks
×
×
  • Create New...