Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

G Tube Feeding In Celiacs

angigz32

Recommended Posts

angigz32 Newbie
angigz32
Posted

I was told my son had celiac from blood tests. Than the doc did the biospy and said he didn't have celiac. Also in his bowel movement I was told he had celiac. Well now he has a G tube from feeding, because he just wouldn't eat at all. I don't hear of no other parents that has there kids on a G tube. Is there any one out there with their child on a G tube? Also we are waitting for him to gain weight to lose weight for the tests that will cause him to lose weight. He might have something else wrong I don't know?

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


lovegrov Collaborator
lovegrov
Posted

The blood tests are rarely false positive but the biopsies frequently miss the damage.

Go gluten free and see if he improves. You have nothing to lose and possibly everything to gain.

richard

rgeelan Apprentice
rgeelan
Posted

I'm sorry to sound so stupid... What is a G tube?

angigz32 Newbie
angigz32
Posted
  • Author

A G tube is a tube that was put in my sons stomach. So he can get the nutrition, that he needs to grow. I have a machine and like a I.V. pole that holds the bag and the machine. Than the machine operates the tubeing to, 60 cc and that is what goes in my sons stomach

angigz32 Newbie
angigz32
Posted
  • Author

By the way he is on ELECARE already digested medical food.

angigz32 Newbie
angigz32
Posted
  • Author

O.K how come nobody else kid has a feeding tube? My son was totallly breast fed at 17 months. And weighted 16pds and they put the G tube for feeding. He also had all the systems of celiac. I guess they just feel he has another problem. What else could he have any one know?

ryebaby0 Enthusiast
ryebaby0
Posted

What tests are they going to do to "make him lose weight"? I've never heard of such a thing! What hospital are you with -- who put in the G-tube? I've heard of several children who had ng tubes (down the nose&throat) for elemental feedings, but G-tubes are much more serious things. You need to ask your doctors why they put in a G-tube, how long they want it in, and what besides celiac they think is wrong. (Don't blame yourself -- breastfeeding is no guarantee of good health) Maybe what you are asking is "is this how they treat celiac usually" and the answer is no... He could have Crohn's, autoimmune enteropathy, ulcerative colitis, short gut syndrome -- but they should have told you this.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


lovegrov Collaborator
lovegrov
Posted

I have to admit I have never heard of any child whose main or only problem is celiac having a G tube. If all he has wrong is celiac it sounds like your doctors went WAAAY overboard. If all he really has is celiac, stopping the gluten should stop the pain and solve everything.

richard

angigz32 Newbie
angigz32
Posted
  • Author

ryebabyo

Thank you you answered all my questions. The gastrologist put Zackary on the G tube. One of the test he is doing is putting him back on gluten. Because he is Gluten free now. The gastrologist put the G tube in because my son just wouldn't eat at all. It was like food hurt. But than again his intestines show no damage or nothing else wrong with his intestines.

kirst4588 Apprentice
kirst4588
Posted

oh my gosh, sweetie - i'm no expert - but can you get a second opinion - how old is your son now? how long was he gluten free? and, did it help him (ie did he gain weight? did he have symptoms while being gluten free?)

angigz32 Newbie
angigz32
Posted
  • Author

My son is 21months now. He weighs 21 pds. He has been Gluten free for six months. But he still would not eat. So he didn't gain weight. On friday the doc were going to send him to the hospital because he was running a fever. And having loose bowels. I don't know maybe he has a feeding problem? The doc seems to think something else is wrong. I think because of his blood work.

kirst4588 Apprentice
kirst4588
Posted

Please keep us updated - we'll say a prayer for you, for answers and recovery

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,543
    • Most Online (within 30 mins)
      7,748
    Carol Zimmer
    Newest Member
    Carol Zimmer
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Jsingh
      Protein or fat?

      By Jsingh · Posted

      Hi,  I care for my seven year old daughter with Celiac. After watching her for months, I have figured out that she has problem with two kinds of fats- animal fat and cooking oils. It basically makes her intestine sore enough that she feels spasms when she is upset. It only happens on days when she has eaten more fat than her usual every day diet. (Her usual diet has chia seeds, flaxseeds, and avocado/ pumpkin seeds for fat and an occasional chicken breast.) I stopped using cooking oils last year, and when I reintroduced eggs and dairy, both of which I had held off for a few months thinking it was an issue of the protein like some Celiac patients habe mentioned to be the case, she has reacted in the same fashion as she does with excess fats. So now I wonder if her reaction to dairy and eggs is not really because of protein but fat.   I don't really have a question, just wondering if anyone finds this familiar and if it gets better with time.  Thank you. 
    • Chanda Richard
      High Cost of Gluten-Free Foods

      By Chanda Richard · Posted

      Hello, My name is Chanda and you are not the only one that gose through the same things. I have found that what's easiest for me is finding a few meals each week that last. I have such severe reactions to gluten that it shuts my entire body down. I struggle everyday with i can't eat enough it feels like, when I eat more I lose more weight. Make sure that you look at medication, vitamins and shampoo and conditioner also. They have different things that are less expensive at Walmart. 
    • petitojou
      Frequent nausea after gluten-free diet

      By petitojou · Posted

      Thank you so much! I saw some tips around the forum to make a food diary and now that I know that the community also struggles with corn, egg and soy, the puzzle pieces came together! Just yesterday I tried eating eggs and yes, he’s guilty and charged. Those there are my 3 combo nausea troublemakers. I’m going to adjust my diet ☺️ Also thank you for the information about MCAS! I’m from South America and little it’s talked about it in here. It’s honestly such a game changer now for treatment and recovery. I know I’m free from SIBO and Candida since I’ve been tested for it, but I’m still going to make a endoscopy to test for H. Pylori and Eosinophilic esophagitis (EoE). Thank you again!! Have a blessed weekend 🤍
    • knitty kitty
      Unusual bright yellow but odourless discharge

      By knitty kitty · Posted

      Yes, I, too, have osteoporosis from years of malabsorption, too.  Thiamine and magnesium are what keep the calcium in place in the bones.  If one is low in magnesium, boron, selenium, zinc, copper, and other trace minerals, ones bone heath can suffer.  We need more than just calcium and Vitamin D for strong bones.  Riboflavin B 2, Folate B 9 and Pyridoxine B 6 also contribute to bone formation and strength.   Have you had your thyroid checked?  The thyroid is important to bone health as well.  The thyroid uses lots of thiamine, so a poorly functioning thyroid will affect bone heath.  
    • Celiac50
      Unusual bright yellow but odourless discharge

      By Celiac50 · Posted

      That sounds so very likely in my case! I will absolutely ask my doctor on my next bone check coming up in March... Thanks a lot! 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.