Test Results Are In

[hillyb6]

i am very disappointed i ws sure they would be pos, sigh they said they were neg

i was soo disappointed that i didnt even ask any thing else, i just called back to ask

for the actual test ran and tehir actual numbers so i am now waiting a call back for that info

so how many of your kids blood work came back normal and they were still found to be celiac

[angel-jd1]

  hillyb6 said:

i am very disappointed i ws sure they would be pos, sigh they said they were neg

i was soo disappointed that i didnt even ask any thing else, i just called back to ask

for the actual test ran and tehir actual numbers so i am now waiting a call back for that info

so how many of your kids blood work came back normal and they were still found to be celiac

Just curious how young your little one is (can't remember from your other posts)? Keep in mind that results in young children are often skewed. Don't rule out the posability that they DO have celiac or another food intollerance just because of the results. There are always false negatives, especially in young children.

-Jessica

[hillyb6]

  angel_jd1 said:

Just curious how young your little one is (can't remember from your other posts)? Keep in mind that results in young children are often skewed. Don't rule out the posability that they DO have celiac or another food intollerance just because of the results. There are always false negatives, especially in young children.

-Jessica

she is 8 not young so i dont know what to think she still has her gi appointment but still very disappointed

[hillyb6]

ok if this makes any sense

she had gliadin antibodi panel

igg was 4

iga 3

endomysial antibodie screen

her iga was neg and retiuline iga antibobies was less than 1-5 antibodies not detected

does that at all m ake any sense

[Kelgs]

so how many of your kids blood work came back normal and they were still found to be celiac

[shayesmom]

  hillyb6 said:

ok if this makes any sense

she had gliadin antibodi panel

igg was 4

iga 3

endomysial antibodie screen

her iga was neg and retiuline iga antibobies was less than 1-5 antibodies not detected

does that at all m ake any sense

My mom gets tested and scoped about every 3 years (this has been going on for over a decade). Negative every time. However, she does notice a huge difference when she's on the diet. Since she has no formal diagnosis, she doesn't adhere to the diet 100% and so "picks and chooses" when she's going to poison herself and take her time out in the bathroom. It's quite interesting to watch how she juggles all of it as to me, it would just be easier to give the diet a real shot and go from there.

My dd's tests came back negative as well. But she had a great response to the diet and we do not mess around with trying to re-challenge her (that's what cross-contamination by accident is for....all with horrible GI distress, hyperactivity and tummy problems....now with headaches as well).

Now that the testing is over, you may want to give the diet a shot for a few weeks to see if the results make sense. Believe me, you will KNOW if gluten is a problem once you do the diet.

[hillyb6]

  shayesmom said:

My mom gets tested and scoped about every 3 years (this has been going on for over a decade). Negative every time. However, she does notice a huge difference when she's on the diet. Since she has no formal diagnosis, she doesn't adhere to the diet 100% and so "picks and chooses" when she's going to poison herself and take her time out in the bathroom. It's quite interesting to watch how she juggles all of it as to me, it would just be easier to give the diet a real shot and go from there.

My dd's tests came back negative as well. But she had a great response to the diet and we do not mess around with trying to re-challenge her (that's what cross-contamination by accident is for....all with horrible GI distress, hyperactivity and tummy problems....now with headaches as well).

Now that the testing is over, you may want to give the diet a shot for a few weeks to see if the results make sense. Believe me, you will KNOW if gluten is a problem once you do the diet.

yes i think that is exactly what were gonna do this week i plan to go and start replacing our glutened food wiht nonglutened foods dd has been gluten free for 3days not on purpose just been soo sick she hasnt eaten anything with gluten i cant say she feels better cause she has the flu, but she hasnt complained once that her stomach hurt i just plan on continueing this she has her gi appointment jan 31st so i guess we see what they say about the blood work and if they want to order more test

even if her blood work was pos not sure i would want the biospy i was reading where for most to be considered celiac pos a pos biospy, then gluten free 6mos then a neg biopsy then eat gluten for 3months then anouther pos biopsy was needed, umm i ams orry but if they know that gluten is causing the damage and they actually want you to eat stuff htat is posion to your body that seems contradictory to the oath

do no harm doesnt it

[rez]

They don't do the 3 biopsy thing anymore. One abnormal is enough for diagnosis. I didn't see the tTG results on your test. That is actually the best screen for Celiac.

[hillyb6]

  rez said:

They don't do the 3 biopsy thing anymore. One abnormal is enough for diagnosis. I didn't see the tTG results on your test. That is actually the best screen for Celiac.

ye from what i can gather they didnt do all the test i dont know why other than they dont know about the others or what i will ask the gi dr about it