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Narcotic Painkillers

GlutenWrangler

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GlutenWrangler Contributor
GlutenWrangler
Posted

Hey Everyone,

I have an extremely rare kidney disorder that causes chronic pain. It is called Loin Pain Hematuria Syndrome. I have bleeding in the microtubules of my right kidney, which then causes cramping and sometimes blood and blood clots in my urine. I have been taking narcotic painkillers for about 5 years for this disorder. I used to have to take MS Contin and Percocet daily to control it. I have cut down considerably to just one 7.5mg Vicodin tablet. I know that narcotic painkillers can cause gut permeability, possibly enhancing gluten's ability to get through. I was wondering if anyone else has had experience with celiac disease and taking narcotic painkillers. I just don't know if the Vicodin could slow my healing because if its gastrointestinal effects. Does anyone know? Thanks for your help.

-Brian

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tiffjake Enthusiast
tiffjake
Posted
Hey Everyone,

I have an extremely rare kidney disorder that causes chronic pain. It is called Loin Pain Hematuria Syndrome. I have bleeding in the microtubules of my right kidney, which then causes cramping and sometimes blood and blood clots in my urine. I have been taking narcotic painkillers for about 5 years for this disorder. I used to have to take MS Contin and Percocet daily to control it. I have cut down considerably to just one 7.5mg Vicodin tablet. I know that narcotic painkillers can cause gut permeability, possibly enhancing gluten's ability to get through. I was wondering if anyone else has had experience with celiac disease and taking narcotic painkillers. I just don't know if the Vicodin could slow my healing because if its gastrointestinal effects. Does anyone know? Thanks for your help.

-Brian

I have never heard of that (which doesn't mean anything!). I just didn't want you to think no one cared about your post. Sorry I can't be of help! Hope things turn around for you!

NicoleAJ Enthusiast
NicoleAJ
Posted

I'm really not sure about long term effects of pain killers. I'm on Vicodin currently for nerve pain in my face, but I've only been on it for five days, just to hold me over until my appointment with my neurologist on Friday. I have celiac and ulcerative colitis, but I haven't noticed any difference in my gut on the Vicodin.

DElizabethE Apprentice
DElizabethE
Posted
Hey Everyone,

I have an extremely rare kidney disorder that causes chronic pain. It is called Loin Pain Hematuria Syndrome. I have bleeding in the microtubules of my right kidney, which then causes cramping and sometimes blood and blood clots in my urine. I have been taking narcotic painkillers for about 5 years for this disorder. I used to have to take MS Contin and Percocet daily to control it. I have cut down considerably to just one 7.5mg Vicodin tablet. I know that narcotic painkillers can cause gut permeability, possibly enhancing gluten's ability to get through. I was wondering if anyone else has had experience with celiac disease and taking narcotic painkillers. I just don't know if the Vicodin could slow my healing because if its gastrointestinal effects. Does anyone know? Thanks for your help.

-Brian

Hi Brian,

I may not be much help either but I wanted to reply. I have been on vicodin (mostly 5mg but sometimes 7.5) for severe abdominal pain since last June. The pain started long before that but I suffered through it. After many procedures and 4 ER visits I was diagnosed with Celiac at the beginning of Nov. When I started being gluten free I was taking the vicodin almost everyday. I didn't like being on it but I couldn't function with the pain. And no...I wasn't addicted. Now after 2 1/2 months my bloodwork came back with much improvement. I now am only taking the vicodin a couple of times a week for the pain. So I just thought I'd let you know that it didn't slow my healing but really helped me through those days of pain. Maybe someone else would know a little more though. Hope everything goes well for you.

Diane

Mtndog Collaborator
Mtndog
Posted

I've never been on narcotic painkillers for extended periods of time but I have been on NSAIDS for arthritis forever and they supposedly do the same thing. It has taken me about two years to heal but I was VERY VERY VERY sick and symptomatic when I went gluten-free. Maybe I would have healed faster without them, but would have been miserable.

If you need them for a medical condition, and are worried about healing your gut, or keeping it well, you can look into taking L-glutamine and acidopholus. A lot of people here, myself included, have taken or do take them to help with gut permeability. Hope this helps!

Fiddle-Faddle Community Regular
Fiddle-Faddle
Posted

Is percoset a narcotic? I was given it (well, actually, endocet, the generic equivalent) after shoulder surgery, and had a terrible reaction to it that landed me in the hospital for 12 hours of cardiac tests, which is not the greatest way to recover from surgery. It didn't touch the pain, and gave me chest pain, nausea, dizziness, sweating, and dry heaves. I took over-the-counter Advil one day, and Tylenol (also OTC) the next, and I was totally pain-free. I was thinking that some of these prescription painkillers are a total crock as far as real pain relief, but my experience was probably weird.

Honestly, I'd rather just deal with the pain than have to go through that again. Then again, because it was post-surgical pain, I knew that it would only last a few days. For something like severe stomach pain or facial nerve pain, I don't know--I sure hope you guys feel better very soon!

GlutenWrangler Contributor
GlutenWrangler
Posted
  • Author

Well it's good to hear that it probably won't slow my healing down. I'm currently taking L-Glutamine and HLC Intensive probiotics for gut permeability. I'm really not sure how much L-Glutamine I should be taking. The bottle says take one pill a day, each pill being 500mg. So that's what I've been taking, but I'm guessing its probably not enough. Does anyone know the recommended dose for people with celiac disease? Thanks,

-Brian

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    • trents
      celiac, chocolate and alcohol

      By trents · Posted

      So, you had both and endoscopy with biopsy and a colonoscopy. That helps me understand what you were trying to communicate. No, no! It never occurred to me that you were trying to mislead me. It's just that we get a lot of posters on the forum who are misinformed about what celiac disease is and how it is diagnosed so I need some clarification from you which you were so gracious to give.
    • barb simkin
      celiac, chocolate and alcohol

      By barb simkin · Posted

      I had both the genetic genes for celiac.  My gastroenologist advised he also took a biopsy during one of my colonoscopies and endoscopy and advised I had celiac disease, along with stomach ulcers from my esophagus stomach down to my small bowel. I was shown the ulcers on the catscan and endoscopy report.  I also had polyps in 3 places throughout my large bowel. I was on a strict diet for months following.  I am sorry if I didnt define how I was diagnosed with celiac disease.  I am sorry if you think I was misleading you. I also had to pay $150.00 for the genetic testing.
    • trents
      celiac, chocolate and alcohol

      By trents · Posted

      So, I'm a little confused here. I understand you to say that you have not been officially diagnosed with celiac disease. Is this correct?  You have had genetic testing done to check for the potential for developing celiac disease and that was positive. Is this correct? I think you meant to type "gluten sensitivity" but you typed "gluten insensitivity". Just so we are clear about the terminology, there is celiac disease and there is NCGS (Non Celiac Gluten Sensitivity). They are not the same but they have overlapping symptoms. Celiac disease causes damage to the small bowel lining but NCGS does not. NCGS is often referred to in short form as gluten sensitivity. However, people often use the terms celiac disease and gluten sensitivity interchangeably so it can be unclear which disease they are referring to. Genetic testing cannot be used to diagnose celiac disease but it can be used to establish the potential to develop active celiac disease. About 40% of the general population has one or both of  the genes that have been most strongly connected with the potential to develop active celiac disease but only about 1% of the population actually develops active celiac disease. This makes the genetic test useful for ruling out celiac disease but not for diagnosing it. A colonoscopy cannot be used to diagnose celiac disease because it doesn't permit the scope to go up into the small bowel where celiac disease does the damage. They use an endoscopy ("upper GI) for checking the small bowel lining for celiac damage.
    • barb simkin
      celiac, chocolate and alcohol

      By barb simkin · Posted

      I did nor read the chocolate pkg as it was of fered to me and I ate 2 pcs. I do know that only very dark chocolate and and a very few others are gluten free. Most alcohols contain gluten. I have several yrs of not knowing my celiac condition as docs would not do the test. After looking on the internet about my sufferings I insisted on the gene trsting which showed positive for gluten insensitivity and a biopsy on my next colonoscopy that also showed positive which could not help the damage done to my small bowel. So I very rarely have a glass of wine
    • trents
      celiac, chocolate and alcohol

      By trents · Posted

      @barb simkin, are you sure the chocolate products are gluten-free and not "manufactured on equipment that also handles wheat products and tree nuts", i.e., cross-contamination? And what kind of alcoholic beverages are we talking about? Most beers are made from gluten-containing grains. Just checking.
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