Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Carbamazepine Or Tegretol


NicoleAJ

Recommended Posts

NicoleAJ Enthusiast

I was just diagnosed with trigeminal neuralgia--a painful disorder involving the largest nerve in your face. The treatment the doctor prescribed is Tegretol, which is one of the various forms of carbamazepine, an anti-seizure medication. Have any of you taken this? Have you had problems with it. It looked like the ingredients were ok as far as celiac is concerned though I do need to call, but it seems like this is a serious med, and I wanted to know if you have had any problems with it in the past. Apparently, I need to get a medic alert bracelet with my dose since there are serious interaction risks with other drugs commonly administered in emergency situations.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



tarnalberry Community Regular

Here's a link to the Open Original Shared Link. (You'll actually have to scroll down and click 'more' next to the drug name.) I find it useful to google these (with the syntax "prescribing information <drug name>" when I take something new.

While the inactive ingredient listing in the PI does mention starch, it is often NOT wheat starch. As you noted, however, it is absolutely best to call, as it could be.

Make sure to read the Contraindications and Warnings section, as well as the two sections Agents That May Affect Tegretol Plasma Levels and Effect of Tegretol on Plasma Levels of Concomitant Agents so that you know what other medications will change the effective dosage of this one (like Claritin, Advil, and grapefruit juice, among other prescription drugs) and what other medications this one will change the dosage of (tylenol, corticosteroids, some antibiotics, and birth control, among other prescription drugs).

If you're not used to reading PI's *PLEASE remember to take the information in context*. It reports *a lot* of information. And it can sound scarier than the true picture. It's useful for reference, but don't let it make you paranoid about the drug either. The FDA requires a lot of warning and cautionary information - and with good cause - but if you're not used to reading them, they can easily scare you. There's information there to work with, but not to panic over. It's good to be informed, but still work with your doctor on the application of that knowledge. (I don't know if you're familiar with reading these things or not, so this bit may be totally unnecessary for you.)

NicoleAJ Enthusiast
Here's a link to the Open Original Shared Link. (You'll actually have to scroll down and click 'more' next to the drug name.) I find it useful to google these (with the syntax "prescribing information <drug name>" when I take something new.

While the inactive ingredient listing in the PI does mention starch, it is often NOT wheat starch. As you noted, however, it is absolutely best to call, as it could be.

Make sure to read the Contraindications and Warnings section, as well as the two sections Agents That May Affect Tegretol Plasma Levels and Effect of Tegretol on Plasma Levels of Concomitant Agents so that you know what other medications will change the effective dosage of this one (like Claritin, Advil, and grapefruit juice, among other prescription drugs) and what other medications this one will change the dosage of (tylenol, corticosteroids, some antibiotics, and birth control, among other prescription drugs).

If you're not used to reading PI's *PLEASE remember to take the information in context*. It reports *a lot* of information. And it can sound scarier than the true picture. It's useful for reference, but don't let it make you paranoid about the drug either. The FDA requires a lot of warning and cautionary information - and with good cause - but if you're not used to reading them, they can easily scare you. There's information there to work with, but not to panic over. It's good to be informed, but still work with your doctor on the application of that knowledge. (I don't know if you're familiar with reading these things or not, so this bit may be totally unnecessary for you.)

Thanks for the info, tarnalberry. I actually did read this yesterday, for the most part--I skimmed some parts of it (yes, definitely some scary worst-case scenarios even though those don't apply to everyone), but it is always good to let people know that this is out there. I googled it as well. I'm definitely going to have to double check on the birth control since I believe that mine is estrogen-based rather than progestin-based.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,893
    • Most Online (within 30 mins)
      7,748

    Sgp
    Newest Member
    Sgp
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Scott Adams
      You've done an excellent job of meticulously tracking the rash's unpredictable behavior, from its symmetrical spread and stubborn scabbing to the potential triggers you've identified, like the asthma medication and dietary changes. It's particularly telling that the rash seems to flare with wheat consumption, even though your initial blood test was negative—as you've noted, being off wheat before a test can sometimes lead to a false negative, and your description of the other symptoms—joint pain, brain fog, stomach issues—is very compelling. The symmetry of the rash is a crucial detail that often points toward an internal cause, such as an autoimmune response or a systemic reaction, rather than just an external irritant like a plant or mites. I hope your doctor tomorrow takes the time to listen carefully to all of this evidence you've gathered and works with you to find some real answers and effective relief. Don't be discouraged if the rash fluctuates; your detailed history is the most valuable tool you have for getting an accurate diagnosis.
    • Scott Adams
      In this case the beer is excellent, but for those who are super sensitive it is likely better to go the full gluten-free beer route. Lakefront Brewery (another sponsor!) has good gluten-free beer made without any gluten ingredients.
    • trents
      Welcome to the forum, @catsrlife! Celiac disease can be diagnosed without committing to a full-blown "gluten challenge" if you get a skin biopsy done during an active outbreak of dermatitis herpetiformis, assuming that is what is causing the rash. There is no other known cause for dermatitis herpetiformis so it is definitive for celiac disease. You would need to find a dermatologist who is familiar with doing the biopsy correctly, however. The samples need to be taken next to the pustules, not on them . . . a mistake many dermatologists make when biopsying for dermatitis herpetiformis. 
    • trents
      You state in an earlier post that you don't have celiac disease. Here in this post you state you will "be doing another test". What will this test be looking for? What kind of celiac disease testing have you had done? If you have used a Entero Labs it sounds like you have had stool testing done for celiac disease which is not widely accepted as a valid celiac disease diagnostic testing method. Have you had blood antibody testing for celiac disease done and do you realize that for antibody testing to be valid you must have been eating generous amounts of gluten for a period of weeks/months? 
    • Gigi2025
      No, I've not been diagnosed as celiac.  Despite Entero Labs being relocated to Switzerland/Greece, I'll be doing another test. After eating wheat products in Greece for 4 weeks, there wasn't any reaction.  However, avoiding it here in the states.   Thanks everyone for your responses.  
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.