Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

My Twin Brother


JerryK

Recommended Posts

JerryK Community Regular

I've been talking to my brother about Celiac/Gluten Intolerance for a few weeks now. At first he was quite skeptical. He does admit that the symptom list describes him perfectly, but he's sold on the depression diagnosis. I'm telling him....go without gluten for a few days....then eat some.....

He's asking the right questions....what's got gluten in it...what should I eat...etc...

I finally got him to go a day or two without eating gluten...

This morning he's bragging he ate a sub sandwhich last night...feels fine.....

A little while later he e-mails me back...."Hmmm, I don't feel as good as yesterday.

I'm more tired, achey...I have a headache. Yesterday was a 7, today is a 4."

What do you think of that?...Identical twins...identical tooth enamel defects...identical symptoms

after eating gluten...

Oh, just a comment, I am the good looking one. ;)


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Viola 1 Rookie
I've been talking to my brother about Celiac/Gluten Intolerance for a few weeks now. At first he was quite skeptical. He does admit that the symptom list describes him perfectly, but he's sold on the depression diagnosis. I'm telling him....go without gluten for a few days....then eat some.....

He's asking the right questions....what's got gluten in it...what should I eat...etc...

I finally got him to go a day or two without eating gluten...

This morning he's bragging he ate a sub sandwhich last night...feels fine.....

A little while later he e-mails me back...."Hmmm, I don't feel as good as yesterday.

I'm more tired, achey...I have a headache. Yesterday was a 7, today is a 4."

What do you think of that?...Identical twins...identical tooth enamel defects...identical symptoms

after eating gluten...

Oh, just a comment, I am the good looking one. ;)

Sounds like it should be an identical diagnosis.

:lol: to the good looking one :rolleyes:

angel-jd1 Community Regular
I've been talking to my brother about Celiac/Gluten Intolerance for a few weeks now. At first he was quite skeptical. He does admit that the symptom list describes him perfectly, but he's sold on the depression diagnosis. I'm telling him....go without gluten for a few days....then eat some.....

He's asking the right questions....what's got gluten in it...what should I eat...etc...

I finally got him to go a day or two without eating gluten...

This morning he's bragging he ate a sub sandwhich last night...feels fine.....

A little while later he e-mails me back...."Hmmm, I don't feel as good as yesterday.

I'm more tired, achey...I have a headache. Yesterday was a 7, today is a 4."

What do you think of that?...Identical twins...identical tooth enamel defects...identical symptoms

after eating gluten...

Oh, just a comment, I am the good looking one. ;)

If you are identical twins, you have identical genes. Therefore, he has the celiac gene (not sure how you were diagnosed, but if you have the gene so does he).

The only difference would be the "trigger". Or what flips the switch to turn your symptoms on. However, sounds to me like his switch has been flipped and he has it also. Just my 2 cents :)

-Jessica :rolleyes:

JerryK Community Regular
If you are identical twins, you have identical genes. Therefore, he has the celiac gene (not sure how you were diagnosed, but if you have the gene so does he).

The only difference would be the "trigger". Or what flips the switch to turn your symptoms on. However, sounds to me like his switch has been flipped and he has it also. Just my 2 cents :)

-Jessica :rolleyes:

I'm guessing just plain stress to be the trigger. When we built a house 10 years ago, I suspect that might have been the trigger for me. Other than an Enterolab test, I have no official diagnosis, just

circumstantial evidence, like getting the runs for a week after eating bread.

Lisa Mentor

Jerry:

I do believe that stress can be a trigger. I had "IBS - I Be Stumped" for as long as I can remember.

During some HIGH stress business, celiac kicked in ONE day and I could not leave the house for two months. Sometimes I needed to get to the bathroom in ten seconds and it was eleven seconds away. :blink:

Yup, stress is a very bad thing in many ways.

Lisa

Nancym Enthusiast

I heard something really interesting last Saturday, I heard a doctor speak who treats autoimmune diseases and he was speaking about the one I had, they know it is something environmental that causes the disease, like a bacteria or virus because they breed rats with the gene who will get the disease. However they don't get the disease if they're placed in a germ-free sterile environment. I wonder if celiac acts like that? Perhaps it is just some common virus that can kick it off.

happygirl Collaborator

Nancy:

Thanks for sharing that. Its interesting to hear that, as for years, "autoimmune" theories have included bacterial or viral "triggers" as part of their hypotheses. Although it is just anecdotal stories, there are many of us on here that never got better after having mono. So I definitely think that some (it could be many---makes sense) viruses/bacterial infections, under the right conditions, can "trigger" something.

Thank you so much for posting!

Laura


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



tarnalberry Community Regular

Identical twins were at a 70% chance if one had it? Something like that.

Given his response, I think he probably has it. Good luck on that one. ;)

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,202
    • Most Online (within 30 mins)
      7,748

    PatBurnham
    Newest Member
    PatBurnham
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • trents
      NCGS does not cause damage to the small bowel villi so, if indeed you were not skimping on gluten when you had the antibody blood testing done, it is likely you have celiac disease.
    • Scott Adams
      I will assume you did the gluten challenge properly and were eating a lot of gluten daily for 6-8 weeks before your test, but if not, that could be the issue. You can still have celiac disease with negative blood test results, although it's not as common:  Clinical and genetic profile of patients with seronegative coeliac disease: the natural history and response to gluten-free diet: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5606118/  Seronegative Celiac Disease - A Challenging Case: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9441776/  Enteropathies with villous atrophy but negative coeliac serology in adults: current issues: https://pubmed.ncbi.nlm.nih.gov/34764141/  Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If your symptoms go away on a gluten-free diet it would likely signal NCGS.
    • Xravith
      I'm very confused... My blood test came out negative, I checked all antibodies. I suppose my Total IgA levels are normal (132 mg/dl), so the test should be reliable. Still, I'm not relieved as I can't tolerate even a single biscuit. I need to talk to my doctor about whether a duodenal biopsy is necessary. But it is really possible to have intestinal damage despite having a seronegative results? I have really strong symptoms, and I don't want to keep skipping university lectures or being bedridden at home.
    • Scott Adams
      They may want to also eliminate other possible causes for your symptoms/issues and are doing additional tests.  Here is info about blood tests for celiac disease--if positive an endoscopy where biopsies of your intestinal villi are taken to confirm is the typical follow up.    
    • Scott Adams
      In the Europe the new protocol for making a celiac disease diagnosis in children is if their tTg-IgA (tissue transglutaminase IgA) levels are 10 times or above the positive level for celiac disease--and you are above that level. According to the latest research, if the blood test results are at certain high levels that range between 5-10 times the reference range for a positive celiac disease diagnosis, it may not be necessary to confirm the results using an endoscopy/biopsy: Blood Test Alone Can Diagnose Celiac Disease in Most Children and Adults TGA-IgA at or Above Five Times Normal Limit in Kids Indicates Celiac Disease in Nearly All Cases No More Biopsies to Diagnose Celiac Disease in Children! May I ask why you've had so many past tTg-IgA tests done, and many of them seem to have been done 3 times during short time intervals?    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.