Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Mozart And The Whale


2kids4me

Recommended Posts

2kids4me Contributor
How did you manage to keep her unvaccinated before symptoms showed up
I'm in Canada - first vaccines arent until they are 2 mo(?) Kathryn had signs of trouble from birth and they delayed vaccines past the 3 month mark - Kathryn was premature, a difficult birth, and hypotonic from birth - the birth was induced because she stopped moving in utero - so in Kathryn's case - something happned before she was born and the difficult birth did not help any..

One of my biggest fears is telling my parents. My mother will get all sympathetic and will oohhhh and ahhhhh over it. My father will become angry and tell me that all this "stuff" is in my head.

You will have to prepare yourself mentally for this one - do not expect any support - that is what sets people up for disappointment - expecting the familes to be supportive,

My mom - said if she had Kathryn for week - she would "fix her up"... followed years later by: she's just fine, stop worrying and fussing so much. Then my mom had her for one week when Kathryn was about 11. When I picked her up, My mom gave me a hug and said how hard it must be dealing with the different issues. She walked a mile in my shoes before she ever admitted something "might be different".

My sister ( a nurse) - has tried to give my kids granola bars then making a face at me when I said - it has gluten in it. When Kathyrn was diagnosed Aspoergers, her reposnse? "Who told you THAT? Did you diagnose this yourself?" and that was it for her support .

YOU know the diagnosis is bang on and you are the one who is advocating for him and it sounds like you are doing fabulous.

Do not feel weakness for the label of autism any more than the label of celiac, diabetes, learning disorder...it is what it is...this is the gift you have been given.The gift of being different and through this gift, you will have your eyes opened to a world you never knew. You will find the next time you see a child in a store having a meltdown for no apparent reason, you will feel empathy and wonder what sensory issue set the child off instead of assuming its a kid having a tantrum (which in some cases it is :rolleyes: )

Sandy


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



  • Replies 81
  • Created
  • Last Reply
Fiddle-Faddle Community Regular
A parent has the right to say no.

Absolutely correct--and I know that NOW, but had no clue they were planning to vaccinate so early when my first was born (3 weeks early and 48 hours after I went in to the hospital for a routine ultrasound, and I was in no condition to do research at that point!).

Fiddle-Faddle Community Regular
I'm in Canada - first vaccines arent until they are 2 mo(?) Kathryn had signs of trouble from birth and they delayed vaccines past the 3 month mark - Kathryn was premature, a difficult birth, and hypotonic from birth - the birth was induced because she stopped moving in utero - so in Kathryn's case - something happned before she was born and the difficult birth did not help any..

Canada is obviously way ahead of the States on that one. My oldest's birth was very similar, although he "caught up" after several months; however, things were complicated by heart defects (and then open-heart surgery when he was 2).

Also, I had a long history of reactions to mercury in shots AND in eyedrops (I told every doctor I ever saw, but nobody told me that it was in childhood vaccines), and it is possible that some crossed the placenta while I was pregnant. Apparently, it can stay in your body, but when you are pregnant, it can cross the placenta--but not cross back. Ugh.

But you are right, there's an awful lot to learn yet.

2kids4me Contributor

Vaccine protocols and types of vaccine are different between US and Canada!

Maybe its cause both my kids were born more than 10 yrs ago but they never even discussed a vaccine at birth...holy cow, we dont even do that to animals.

Found this on a Canada gov't site:

Open Original Shared Link

In Canada, the only thimerosal-containing vaccine included in the regular childhood vaccination schedule is hepatitis B vaccine. Other routine childhood vaccines such as those for measles, mumps, and rubella (MMR) and PentacelTM (for diphtheria, tetanus, acellular pertussis, Haemophilus influenzae type b, and inactivated polio) do not contain thimerosal as a preservative. Hence, Canadian infants are not subject to the same cumulative level of mercury exposure due to vaccine during the first 6 months of life as American infants.

they go on to say how the amount of mercury in the Hep B shot is minimal...umm, why is there at all?

I am curious because we dont use thimerosol as preservative in animal vaccine (cattle, horses) so obviously there are lots of options to preserve vaccine...maybe they dont want it in the food chain but they are fine with giving it direct ? :blink::blink:

Michi8 Contributor
Vaccine protocols and types of vaccine are different between US and Canada!

Maybe its cause both my kids were born more than 10 yrs ago but they never even discussed a vaccine at birth...holy cow, we dont even do that to animals.

Found this on a Canada gov't site:

they go on to say how the amount of mercury in the Hep B shot is minimal...umm, why is there at all?

I am curious because we dont use thimerosol as preservative in animal vaccine (cattle, horses) so obviously there are lots of options to preserve vaccine...maybe they dont want it in the food chain but they are fine with giving it direct ? :blink::blink:

The report you quoted is from 1999, so it's very old info already. More recent info is here: Open Original Shared Link Vaccines and schedules have changed tremedously since that time (and schedules vary from province to province), and there is a thimerosol-free version of the hep B vaccine now.

At the time my second son was born (in Vancouver), they were innoculating routinely at 2 months for Hep B, because of large numbers of immigrants in that part of the province plus high day care usage rates. I'm really, really sorry my son got that vaccine (long story as to how/why he got it)...especially given his level of risk was soooo low with me being at home full time, and not putting him in day care at all. I'm pretty sure they were still using the thimerosol version at that time too. :(

Michelle

Fiddle-Faddle Community Regular

The Hep B vaccine is one of the 4 they gave my sons at birth. I remember trying to argue, asking why he needed it at all since I didn't see any risk for him. With my second son, I don't even remember being asked to sign any papers, and I think they vaccinated him without my consent! (Although it is possible that I was just too out of it after his birth to know what was going on.) With my third, I finally knew enough to discuss it with the pediatrician well in advance of the birth, and found out that it was coming from the hospital, not the pediatrician. THe pediatrician said, "We don't do that any more, but you have to make sure the hospital nurse doesn't just walk in and do it."

Which I did, thank Heavens.

Michi8 Contributor
The Hep B vaccine is one of the 4 they gave my sons at birth. I remember trying to argue, asking why he needed it at all since I didn't see any risk for him. With my second son, I don't even remember being asked to sign any papers, and I think they vaccinated him without my consent! (Although it is possible that I was just too out of it after his birth to know what was going on.) With my third, I finally knew enough to discuss it with the pediatrician well in advance of the birth, and found out that it was coming from the hospital, not the pediatrician. THe pediatrician said, "We don't do that any more, but you have to make sure the hospital nurse doesn't just walk in and do it."

Which I did, thank Heavens.

If the hospital had done that to my kids, I would have lost it. I had trouble enough with the fact my second baby was separated from me and unnecessarily kept in the NICU for 10 hours (they tried to keep him for 24-48!). I sent my husband to be with him and to advocate for him during that time (while I recovered from surgery.)

Michelle


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      129,567
    • Most Online (within 30 mins)
      7,748

    Silver82
    Newest Member
    Silver82
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.2k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Scott Adams
      Your genetic test results confirm that you carry the highest-risk markers for celiac disease, specifically the HLA-DQ2 haplotype (while being negative for HLA-DQ8). The fact that both HLA-DQA1*05 and HLA-DQB1*0201 appear twice means you inherited identical copies from each parent, making you homozygous for these genes. This double dose of the DQ2.5 haplotype is significant because it indicates an even stronger genetic predisposition to celiac disease compared to those who only inherit one copy. Research suggests that people with this homozygous pattern may have a higher likelihood of developing the disease, potentially more severe immune responses to gluten, and a stronger association with dermatitis herpetiformis (which aligns with your diagnosis). While this genetic profile doesn’t guarantee worse symptoms, it does reinforce why strict gluten avoidance is critical for you. Since you’re already diagnosed, the main takeaway is that your results explain your biological susceptibility—no further genetic counseling is needed unless you have family planning questions. The repeating variants simply mean both parents passed you the same high-risk alleles, which is why your body reacts so strongly to gluten. Ultimately, your diagnosis and management remain the same, but this insight helps underscore the importance of lifelong dietary diligence.
    • Scott Adams
      It sounds like you and your daughter are navigating celiac disease with a lot of care and dedication, and it’s wonderful that you’re prioritizing her health and growth during this critical time. Since her antibody levels and growth have plateaued, tightening up her diet by avoiding eating out (except at dedicated gluten-free places) is a smart move—even if it’s challenging socially. Many parents of celiac kids report significant growth spurts once gluten exposure is minimized, so there’s hope she’ll catch up if her levels improve. As for the future, while her growth window closing may reduce some risks, celiac is lifelong, and staying as strict as possible will likely always be best to avoid long-term complications, even if occasional cautious outings become manageable later. Navigating this with a teenager is tough, especially with spontaneous social events. For unplanned outings, keeping safe snacks (like GF protein bars, nuts, or fruit) in her bag or your car can help. To boost nutrition, try sneaking in variety where you can—like lentil or chickpea pasta instead of rice pasta, or adding veggies and proteins to her favorite dishes. Involving her in meal planning might help with pickiness, and connecting with other celiac families or support groups could provide social strategies and emotional support. It’s exhausting, but you’re doing an amazing job—your efforts now will set her up for a healthier future. Hang in there!
    • Scott Adams
      This is good news--I hope we can get this done on a national level!
    • Scott Adams
      I use a blender and have made various juice recipes over the years. 
    • captaincrab55
      Pharmacies personnel need training to prevent cross contamination.     
×
×
  • Create New...