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My First Question.


Karwei5

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Karwei5 Apprentice

My son is 18 and has Down syndrome. I just got the call today his biopsy confirmed celiac disease.

He has been out of school all Dec. and Jan. I have to get him back into school.

For job training at school he works at McDonalds wiping tables and picking up trays.(I know stereotypical job.) Do I have to worry about him being contaminated with gluten at this job?

When he goes back to school I have to know if he can go back to this job too.

Thanks,

Karol mom to Billy


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darlindeb25 Collaborator

As long as he is able to understand about gluten, he should be fine. He will have to know that he must be careful around burger buns and such and wash his hands often, keep them away from his face. 3 of my sons started out at Burger King, one later became the manager of a McDonalds. No shame in working there. ;)

MySuicidalTurtle Enthusiast

As long as Billy keeps in mind to only eat his food (it's hard to remember right away) and to wash his hands a lot/wear gloves and not touch his mouth while working he should be fine. If his co-workers/teachers/classmates know of his Celiac Disease and are helpful they can help make sure he does not get sick, too, by not offering him gluten food and just being supportive. Good luck Karol and Billy!

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    • Rogol72
      Hey @Butch68, I also have dermatitis herpetiformis but don't suffer from it anymore. I used to drink Guinness too but I drink Cider now when out on social occasions. I assume you are in Ireland or the UK. If it's any good to you ... 9 White Deer based in Cork brew a range of gluten-free products including a gluten-free Stout. I'm not sure if they are certified though. https://www.9whitedeer.ie/ I haven't come across any certified gluten-free stouts this side of the pond.
    • Scott Adams
      This is a very common question, and the most important thing to know is that no, Guinness is not considered safe for individuals with coeliac disease. While it's fascinating to hear anecdotes from other coeliacs who can drink it without immediate issues, this is a risky exception rather than the rule. The core issue is that Guinness is brewed from barley, which contains gluten, and the standard brewing process does not remove the gluten protein to a level safe for coeliacs (below 20ppm). For someone like you who experiences dermatitis herpetiformis, the reaction is particularly significant. DH is triggered by gluten ingestion, even without immediate gastrointestinal symptoms. So, while you may not feel an instant stomach upset, drinking a gluten-containing beer like Guinness could very well provoke a flare-up of your skin condition days later. It would be a gamble with a potentially uncomfortable and long-lasting consequence. Fortunately, there are excellent, certified gluten-free stouts available now that can provide a safe and satisfying alternative without the risk.
    • MogwaiStripe
      Interestingly, this thought occurred to me last night. I did find that there are studies investigating whether vitamin D deficiency can actually trigger celiac disease.  Source: National Institutes of Health https://pmc.ncbi.nlm.nih.gov/articles/PMC7231074/ 
    • Butch68
      Before being diagnosed coeliac I used to love Guinness. Being made from barley it should be something a coeliac shouldn’t drink. But taking to another coeliac and they can drink it with no ill effects and have heard of others who can drink it too.  is this everyone’s experience?  Can I drink it?  I get dermatitis herpetiformis and don’t get instant reactions to gluten so can’t try it to see for myself. 
    • trents
      NCGS does not cause damage to the small bowel villi so, if indeed you were not skimping on gluten when you had the antibody blood testing done, it is likely you have celiac disease.
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