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The Good Life

Guest ~wAvE WeT sAnD~

By Guest ~wAvE WeT sAnD~
in Coping with Celiac Disease

Recommended Posts

BamBam Community Regular
BamBam
Posted

We don't have to take any yucky medicine where the side effects are worse than the original problem. Also, we eat healthier and it gives us a reason to come together and discuss our lives!

Bernadette

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Carriefaith Enthusiast
Carriefaith
Posted

I eat a lot healthier now than I used too! More fruites and veggies!

Carriefaith Enthusiast
Carriefaith
Posted

Also, I appreciate food more now than I used to. I waste less food and basically cherish all my special gluten free foods. Like gluten-free bagels, and gluten-free bread.

ponita Newbie
ponita
Posted

It really has been amazing how little food I waste. I used to look at leftovers as something less than attractive but now....

if I have gluten-free leftovers, that are foods that I don't have to forage for.

Lunch has been my toughest time of day and having the leftovers has truly been my savior.

  • 2 weeks later...
Almedingen Newbie
Almedingen
Posted

One of our family friends has cancer and she has to undergo very serious chemotherapy treatments.

I feel so blessed that all I have to do to get well is eat right.

Guest Libbyk
Guest Libbyk
Posted

the change in my quality of life. Lat fall, I felt sewn into the couch- tired cranky, and tired. this fall, I startes cyclo cross racing, sort of like mountain biek racing on road bikes., It is an incredibly arobic, deep lung pain, muddy, great sport.

When I crossed the finish line of my first race, (last) I threw up my arm in victory. truly one of the greatest moments of my life. My dad came over to take my bike and give me water, and I just looked at him, grinning with tears in my eyes, and I said, dad, I'm not a sickly girl any more!

thats what 10 months gluten-free can do

Lib

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    • par18
      Is it gluten?

      By par18 · Posted

      Thanks for the reply. 
    • Scott Adams
      nothing has changed

      By Scott Adams · Posted

      What you’re describing is actually very common, and unfortunately the timing of the biopsy likely explains the confusion. Yes, it is absolutely possible for the small intestine to heal enough in three months on a strict gluten-free diet to produce a normal or near-normal biopsy, especially when damage was mild to begin with. In contrast, celiac antibodies can stay elevated for many months or even years after gluten removal, so persistently high antibody levels alongside the celiac genes and clear nutrient deficiencies strongly point to celiac disease, even if you don’t feel symptoms. Many people with celiac are asymptomatic but still develop iron and vitamin deficiencies and silent intestinal damage. The lack of immediate symptoms makes it harder emotionally, but it doesn’t mean gluten isn’t harming you. Most specialists would consider this a case of celiac disease with a false-negative biopsy due to early healing rather than “something else,” and staying consistently gluten-free is what protects you long-term—even when your body doesn’t protest right away.
    • Scott Adams
      Is it gluten?

      By Scott Adams · Posted

      Yes, I meant if you had celiac disease but went gluten-free before screening, your results would end up false-negative. As @trents mentioned, this can also happen when a total IGA test isn't done.
    • Seaperky
      Trip to Anaheim/Disney

      By Seaperky · Posted

      I found at Disney springs and Disney they have specialist that when told about dietary restrictions they come and talk to you ,explain cross contamination measures tsken and work with you on choices. Its the one place I dont worry once I've explained I have celiac disease.  Thier gluten free options are awesome.
    • Churley
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By Churley · Posted

      Have you tried Pure Encapsulations supplements? This is a brand my doctor recommends for me. I have no issues with this brand.
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