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The Good Life

Guest ~wAvE WeT sAnD~

By Guest ~wAvE WeT sAnD~
in Coping with Celiac Disease

Recommended Posts

BamBam Community Regular
BamBam
Posted

We don't have to take any yucky medicine where the side effects are worse than the original problem. Also, we eat healthier and it gives us a reason to come together and discuss our lives!

Bernadette

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Carriefaith Enthusiast
Carriefaith
Posted

I eat a lot healthier now than I used too! More fruites and veggies!

Carriefaith Enthusiast
Carriefaith
Posted

Also, I appreciate food more now than I used to. I waste less food and basically cherish all my special gluten free foods. Like gluten-free bagels, and gluten-free bread.

ponita Newbie
ponita
Posted

It really has been amazing how little food I waste. I used to look at leftovers as something less than attractive but now....

if I have gluten-free leftovers, that are foods that I don't have to forage for.

Lunch has been my toughest time of day and having the leftovers has truly been my savior.

  • 2 weeks later...
Almedingen Newbie
Almedingen
Posted

One of our family friends has cancer and she has to undergo very serious chemotherapy treatments.

I feel so blessed that all I have to do to get well is eat right.

Guest Libbyk
Guest Libbyk
Posted

the change in my quality of life. Lat fall, I felt sewn into the couch- tired cranky, and tired. this fall, I startes cyclo cross racing, sort of like mountain biek racing on road bikes., It is an incredibly arobic, deep lung pain, muddy, great sport.

When I crossed the finish line of my first race, (last) I threw up my arm in victory. truly one of the greatest moments of my life. My dad came over to take my bike and give me water, and I just looked at him, grinning with tears in my eyes, and I said, dad, I'm not a sickly girl any more!

thats what 10 months gluten-free can do

Lib

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  • Recent Activity

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      Awaiting dermatitis herpetiformis confirmation following biopsy

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    2. Rogol72
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    • suek54
      Awaiting dermatitis herpetiformis confirmation following biopsy

      By suek54 · Posted

      Many thanks for your reply Rogol72.  People have been very kind and made all sorts of suggestions. I am bearing them all in mind but at this early stage just desperately need to be itch free.  I have literally had this horrid rash from scalp to feet. My most recent outbreak was all across my face as well. At one stage it was so widespread I was having very bad thoughts. Dapsone has changed that.  I think my situation is worsened by Addison's Disease. I am totally steroid dependent. Its a constant trade-off between increasing steroids to cope with dermatitis herpetiformis vs increased risk of high steroids. I also have hypothyroidism. In fact dermatitis herpetiformis is my fifth autoimmune condition.  Hey ho, I'm muddling through. Its nice to hear that others with the condition have found various ways to get back on track.  I don't want to be on Dapsone a day longer than necessary but it's far better than the awful state I was in.  My dermatologist is keeping a close eye on my bloods. So far, so good.  Thank you again for your advice. Very much appreciated.  Sue    
    • Rogol72
      Awaiting dermatitis herpetiformis confirmation following biopsy

      By Rogol72 · Posted

      Hey @suek54, I also have Dermatitis Herpetiformis. I used to be on Dapsone but have managed to wean myself off it after many attempts. It's quiet a toxic drug, as it affects the bone marrow and red blood cells. It also artificially reduces Hemoglobin A1C. Mine was at 21 at one stage, I think normal is around 37. With dermatitis herpetiformis, you need to be really strict. It wasn't until I focused on getting the trace minerals the body needs that I managed to get off it. I believe getting the thyroid numbers in the optimal range also helped with Iodine and Selenium. Iodine doesn't bother me for some reason, but flares others as knitty kitty said. I take Viridian Trace Mineral complex and it's made a huge difference, among other vitamins and minerals. Now I can tolerate gluten free oats which I could never eat before. Though I only have them very occasionally in the form of gluten free soda bread . One thing I miss is my Mums Irish soda bread. Hope this helps.
    • suek54
      Awaiting dermatitis herpetiformis confirmation following biopsy

      By suek54 · Posted

      Hi all Biopsy confirmed dermatitis herpetiformis. Strict gluten free diet going OK, I cook nearly everything from scratch anyway and am finding gluten free  adaptations for most recipes.  I seem to be tolerating 50mg Dapsone well, regular blood tests OK so far.  Next derma appt in 8 weeks. I have some continuing itching and rash outbreaks, though nowhere near as severe as they were, so I am hoping for an increased dose, as the effect only seems to last 6-7 hours.  I think I may be burning through it more quickly than some due to other medication. Also I cannot mount a response to inflammation due to Addison's Disease.  I hope others are finding their way though the minefield that is dermatitis herpetiformis. Hang on in there! Sue (in UK)
    • trents
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      By trents · Posted

      @KeriRae, have you been diagnosed with celiac disease or with dermatitis herpetiformis?
    • KeriRae
      DH Photo Bank

      By KeriRae · Posted

      I've had this same rash on my back on and off for the last year or two.  I was taking LDN to help with other issues but quit awhile back. I'm wondering if LDN would help with this rash. 
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