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The Good Life

Guest ~wAvE WeT sAnD~

By Guest ~wAvE WeT sAnD~
in Coping with Celiac Disease

Recommended Posts

BamBam Community Regular
BamBam
Posted

We don't have to take any yucky medicine where the side effects are worse than the original problem. Also, we eat healthier and it gives us a reason to come together and discuss our lives!

Bernadette

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Carriefaith Enthusiast
Carriefaith
Posted

I eat a lot healthier now than I used too! More fruites and veggies!

Carriefaith Enthusiast
Carriefaith
Posted

Also, I appreciate food more now than I used to. I waste less food and basically cherish all my special gluten free foods. Like gluten-free bagels, and gluten-free bread.

ponita Newbie
ponita
Posted

It really has been amazing how little food I waste. I used to look at leftovers as something less than attractive but now....

if I have gluten-free leftovers, that are foods that I don't have to forage for.

Lunch has been my toughest time of day and having the leftovers has truly been my savior.

  • 2 weeks later...
Almedingen Newbie
Almedingen
Posted

One of our family friends has cancer and she has to undergo very serious chemotherapy treatments.

I feel so blessed that all I have to do to get well is eat right.

Guest Libbyk
Guest Libbyk
Posted

the change in my quality of life. Lat fall, I felt sewn into the couch- tired cranky, and tired. this fall, I startes cyclo cross racing, sort of like mountain biek racing on road bikes., It is an incredibly arobic, deep lung pain, muddy, great sport.

When I crossed the finish line of my first race, (last) I threw up my arm in victory. truly one of the greatest moments of my life. My dad came over to take my bike and give me water, and I just looked at him, grinning with tears in my eyes, and I said, dad, I'm not a sickly girl any more!

thats what 10 months gluten-free can do

Lib

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  • Recent Activity

    1. trents
      - trents replied to melthebell's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
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      Persistent isolated high DGP-IGG in child despite gluten-free diet

      Most recent gluten challenge guidelines call for the consumption of at least 10g of gluten (about the amount in about 4-6 slices of wheat-based bread) for at least 2 weeks. When celiacs have been on gluten free diets for long periods of time, they often find that when they consume a good amount of gluten, they react much more strongly than they did...
    2. melthebell
      - melthebell replied to melthebell's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
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      Persistent isolated high DGP-IGG in child despite gluten-free diet

      Will definitely keep you posted. We live in Japan and will fly to Australia for the endoscopy end of April so until then, for the next ten weeks, we will just start adding gluten daily. 2 slices of white bread a day is what the guidelines seem to say. But I welcome advice from members here who have done successful gluten challenges. I know they...
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      - trents replied to melthebell's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
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      Persistent isolated high DGP-IGG in child despite gluten-free diet

      What is your plan for the gluten challenge?
    4. trents
      - trents replied to melthebell's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
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      Persistent isolated high DGP-IGG in child despite gluten-free diet

      @melthebell, keep us posted. We are learning more and more about gluten disorders as time goes on. One of the things that has become apparent to me is that gluten disorders don't always like to fit into the neat little pigeon hole symptomatic and diagnostic paradigms we have created for them. There seems to be a lot more atypical stuff going on than we once...
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      - melthebell replied to melthebell's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
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      Persistent isolated high DGP-IGG in child despite gluten-free diet

      Thanks very much for taking the time to write. I have been reading a lot about this and it definitely is not straight forward. My first port of call is the gene test - probably should have had it done before we left Australia because they don’t run the test in Japan. So I’ve ordered a third party test kit and just swabbed his cheek. Then we start the glu...
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    • trents
      Persistent isolated high DGP-IGG in child despite gluten-free diet

      By trents · Posted

      Most recent gluten challenge guidelines call for the consumption of at least 10g of gluten (about the amount in about 4-6 slices of wheat-based bread) for at least 2 weeks.  When celiacs have been on gluten free diets for long periods of time, they often find that when they consume a good amount of gluten, they react much more strongly than they did before going gluten free. They have lost all tolerance to the poison they had when consuming wheat products regularly. That is certainly the case with me. A couple of years ago I accidentally consumed a wheat biscuit my wife had made thinking it was a gluten free one and it made me violently ill. So, I mention that as I don't know if your son has started the gluten challenge yet.
    • melthebell
      Persistent isolated high DGP-IGG in child despite gluten-free diet

      By melthebell · Posted

      Will definitely keep you posted. We live in Japan and will fly to Australia for the endoscopy end of April so until then, for the next ten weeks, we will just start adding gluten daily. 2 slices of white bread a day is what the guidelines seem to say.    But I welcome advice from members here who have done successful gluten challenges. I know they are not always successful.    I have also read I should monitor his growth. Is that really a concern for 10 weeks of gluten consumption? He is growing and has always followed his curve but he’s no basketball player at 20-25th centile. 
    • trents
      Persistent isolated high DGP-IGG in child despite gluten-free diet

      By trents · Posted

      What is your plan for the gluten challenge?
    • trents
      Persistent isolated high DGP-IGG in child despite gluten-free diet

      By trents · Posted

      @melthebell, keep us posted. We are learning more and more about gluten disorders as time goes on. One of the things that has become apparent to me is that gluten disorders don't always like to fit into the neat little pigeon hole symptomatic and diagnostic paradigms we have created for them. There seems to be a lot more atypical stuff going on than we once realized.
    • melthebell
      Persistent isolated high DGP-IGG in child despite gluten-free diet

      By melthebell · Posted

      Thanks very much for taking the time to write. I have been reading a lot about this and it definitely is not straight forward. My first port of call is the gene test - probably should have had it done before we left Australia because they don’t run the test in Japan. So I’ve ordered a third party test kit and just swabbed his cheek. Then we start the gluten challenge and see how it goes. 
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