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The Good Life

Guest ~wAvE WeT sAnD~

By Guest ~wAvE WeT sAnD~
in Coping with Celiac Disease

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BamBam Community Regular
BamBam
Posted

We don't have to take any yucky medicine where the side effects are worse than the original problem. Also, we eat healthier and it gives us a reason to come together and discuss our lives!

Bernadette

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Carriefaith Enthusiast
Carriefaith
Posted

I eat a lot healthier now than I used too! More fruites and veggies!

Carriefaith Enthusiast
Carriefaith
Posted

Also, I appreciate food more now than I used to. I waste less food and basically cherish all my special gluten free foods. Like gluten-free bagels, and gluten-free bread.

ponita Newbie
ponita
Posted

It really has been amazing how little food I waste. I used to look at leftovers as something less than attractive but now....

if I have gluten-free leftovers, that are foods that I don't have to forage for.

Lunch has been my toughest time of day and having the leftovers has truly been my savior.

  • 2 weeks later...
Almedingen Newbie
Almedingen
Posted

One of our family friends has cancer and she has to undergo very serious chemotherapy treatments.

I feel so blessed that all I have to do to get well is eat right.

Guest Libbyk
Guest Libbyk
Posted

the change in my quality of life. Lat fall, I felt sewn into the couch- tired cranky, and tired. this fall, I startes cyclo cross racing, sort of like mountain biek racing on road bikes., It is an incredibly arobic, deep lung pain, muddy, great sport.

When I crossed the finish line of my first race, (last) I threw up my arm in victory. truly one of the greatest moments of my life. My dad came over to take my bike and give me water, and I just looked at him, grinning with tears in my eyes, and I said, dad, I'm not a sickly girl any more!

thats what 10 months gluten-free can do

Lib

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    • trents
      What should I expect from a UK restaurant advertising / offering "Gluten Free" food

      By trents · Posted

      @cristiana, I'm thinking the intensity of our response to the same amount of gluten can vary from time to time. Our bodies are a dynamic entity. 
    • Scott Adams
      Jersey Mike’s option: Gluten-free bread

      By Scott Adams · Posted

      I'm going to try Jersey Mike's soon--we have one nearby. Thanks for sharing!
    • cristiana
      What should I expect from a UK restaurant advertising / offering "Gluten Free" food

      By cristiana · Posted

      Hi @trents Two things can happen:  1/ For a very small gluten hit, I will get a slightly sore stomach for a few days, maybe a day or two following the glutening, and (TMI warning) maybe slightly loose BMs with mucus  for a couple of days.  2/ For a substantial glutening, and thankfully it's only happened once in recent years,  I get bad chills, followed by vomiting, and my heartbeat is all over the place and I can hardly stand.  It's pretty extreme.  That happens within about 2 hours of eating the gluten.  I might feel slightly dizzy for a couple of days after the glutening episode. Interestingly I've just been out to a cafe which hitherto has made a big thing about how their french fries are cooked in a separate fryer.  I shared some with a friend and they were served with chilli sauce, jalapenos, cheddar cheese and fried onions.  Definitely not health food!  Anyway,  I'd eaten half when I realised I'd not checked the menu to ensure that this dish is still gluten-free - and it turns out it isn't!!!  They've changed the ingredients and the fried onions are now cooked with wheat.   I came home expecting to feel dreadful as I had no idea how much gluten I have consumed but so far if anything I feel just little queasy.  I think I'd have thrown up by now had there been a lot of gluten in the onions.  
    • trents
      Persistent isolated high DGP-IGG in child despite gluten-free diet

      By trents · Posted

      It might be wise to start him on small amounts and work up to 10g. Monitor how he reacts. Some people simply cannot complete the gluten challenge because it makes them too ill. By the way, you can buy powdered gluten in health food stores, at least here in the states you can. With a food scale, it would be easy to measure the amount being consumed in a day. I'm not sure what the intensity of reaction to gluten tells you about what's actually going on with regard to celiac disease. I mean there are some celiacs like me who don't seem to react to minor exposure amounts but who get violently ill with larger exposures. Then there are celiacs who get some kind of reaction to even the tiniest amount of exposure but don't necessarily get violently ill. And how the reaction manifests itself is very different for different people. Some, like me, experience emesis and diarrhea. Others just get brain fog. Others get joint pain. It's all over the map.
    • melthebell
      Persistent isolated high DGP-IGG in child despite gluten-free diet

      By melthebell · Posted

      That's interesting - that's a lot of gluten! I'll be very curious to see how my son responds to the gluten. In some ways, I guess having a strong reaction would tell us something? It's tough navigating this as a parent and having it be not so clear cut ;\
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