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The Good Life

Guest ~wAvE WeT sAnD~

By Guest ~wAvE WeT sAnD~
in Coping with Celiac Disease

Recommended Posts

BamBam Community Regular
BamBam
Posted

We don't have to take any yucky medicine where the side effects are worse than the original problem. Also, we eat healthier and it gives us a reason to come together and discuss our lives!

Bernadette

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Carriefaith Enthusiast
Carriefaith
Posted

I eat a lot healthier now than I used too! More fruites and veggies!

Carriefaith Enthusiast
Carriefaith
Posted

Also, I appreciate food more now than I used to. I waste less food and basically cherish all my special gluten free foods. Like gluten-free bagels, and gluten-free bread.

ponita Newbie
ponita
Posted

It really has been amazing how little food I waste. I used to look at leftovers as something less than attractive but now....

if I have gluten-free leftovers, that are foods that I don't have to forage for.

Lunch has been my toughest time of day and having the leftovers has truly been my savior.

  • 2 weeks later...
Almedingen Newbie
Almedingen
Posted

One of our family friends has cancer and she has to undergo very serious chemotherapy treatments.

I feel so blessed that all I have to do to get well is eat right.

Guest Libbyk
Guest Libbyk
Posted

the change in my quality of life. Lat fall, I felt sewn into the couch- tired cranky, and tired. this fall, I startes cyclo cross racing, sort of like mountain biek racing on road bikes., It is an incredibly arobic, deep lung pain, muddy, great sport.

When I crossed the finish line of my first race, (last) I threw up my arm in victory. truly one of the greatest moments of my life. My dad came over to take my bike and give me water, and I just looked at him, grinning with tears in my eyes, and I said, dad, I'm not a sickly girl any more!

thats what 10 months gluten-free can do

Lib

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  • Posts

    • Scott Adams
      Increased intraepithelial lymphocytes after 10 yrs gluten-free

      By Scott Adams · Posted

      Celiac disease is the most likely cause, but here are articles about the other possible causes:    
    • xxnonamexx
      FDA looking for input on Celiac Gluten sensitivity labeling PLEASE READ and submit your suggestions

      By xxnonamexx · Posted

      Please read: https://www.fda.gov/news-events/press-announcements/fda-takes-steps-improve-gluten-ingredient-disclosure-foods?fbclid=IwY2xjawPeXhJleHRuA2FlbQIxMABicmlkETFzaDc3NWRaYzlJOFJ4R0Fic3J0YwZhcHBfaWQQMjIyMDM5MTc4ODIwMDg5MgABHrwuSsw8Be7VNGOrKKWFVbrjmf59SGht05nIALwnjQ0DoGkDDK1doRBDzeeX_aem_GZcRcbhisMTyFUp3YMUU9Q
    • cristiana
      Increased intraepithelial lymphocytes after 10 yrs gluten-free

      By cristiana · Posted

      Hi @Atl222 As @trents points out, there could be many reasons for this biopsy result.  I am interested to know, is your gastroenterologist concerned?  Also, are your blood tests showing steady improvement over the years? I remember when I had my last biopsy, several years after diagnosis, mine came back with with raised lymphocytes but no villous damage, too! In my own case, my consultant wasn't remotely concerned - in fact, he said I might still get this result even if all I ever did was eat nothing but rice and water.   My coeliac blood tests were still steadily improving, albeit slowly, which was reassuring.
    • trents
      Increased intraepithelial lymphocytes after 10 yrs gluten-free

      By trents · Posted

      Welcome to the celiac.com community, @Atl222! Yes, your increased lymphocytes could be in response to oats or it could possibly be cross contamination from gluten that is getting into your diet from some unexpected source but not enough to damage the villi. And I'm certain that increased lymphocytes can be caused by other things besides celiac disease or gluten/oats exposure. See attachment. But you might try eliminating oats to start with and possibly dairy for a few months and then seek another endoscopy/biopsy to see if there was a reduction in lymphocyte counts. 
    • Scott Adams
      Brown Rice Vinegar (organic) from Eden Foods is likely gluten free

      By Scott Adams · Posted

      This is a solid, well-reasoned approach. You’re right that “koji” by itself doesn’t indicate gluten status, and the risk really does come down to which grain is used to culture it. The fact that you directly contacted Eden Foods and received a clear statement that their koji is made from rice only, with no wheat or barley, is meaningful due diligence—especially since Eden has a long-standing reputation for transparency. While the lack of gluten labeling can understandably give pause, manufacturer confirmation like this is often what people rely on for traditionally fermented products. As always, trusting your body after trying it is reasonable, but based on the information you gathered, your conclusion makes sense.
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