Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Could This Be Celiac?

floridanative

By floridanative
in Related Issues & Disorders

Recommended Posts

floridanative Community Regular
floridanative
Posted

My exercise teacher told me last night about her friend who is 45 and is NYC this week for a second opinion about why her bones are so brittle. She has about four pins in her body from various breaks, all from doing normal activities as far as I can tell. The doctors in Atlanta have not been much help and one of them 'thinks' she could have bone cancer but isn't sure of that. Can anyone tell me if someone with Celiac could have such problems? I have a mild case of osteopenia at 43, due to my Celiac so I figured it's worth asking. This woman has been looking for answers for a while now. Thanks if anyone has any insight on this matter.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Jestgar Rising Star
Jestgar
Posted

It seems pretty likely. More likely than bone cancer anyway. If you aren't absorbing nutrients properly, you aren't remodeling your bones properly.

Fiddle-Faddle Community Regular
Fiddle-Faddle
Posted

I lost a dear frined to multiple myeloma, which caused multiple bone breaks. She was 82, so for several years, they just assumed that it was osteoporosis. It wasn't. Here is a link: Open Original Shared Link.

Obviously, I hope it's celiac instead.

AZKat Newbie
AZKat
Posted
My exercise teacher told me last night about her friend who is 45 and is NYC this week for a second opinion about why her bones are so brittle. She has about four pins in her body from various breaks, all from doing normal activities as far as I can tell. The doctors in Atlanta have not been much help and one of them 'thinks' she could have bone cancer but isn't sure of that. Can anyone tell me if someone with Celiac could have such problems? I have a mild case of osteopenia at 43, due to my Celiac so I figured it's worth asking. This woman has been looking for answers for a while now. Thanks if anyone has any insight on this matter.

My husband was diagnosed with advanced osteoporosis at the age of 45. He had elevated parathyroid hormone as well. The reason we found out was that he broke his ankle just walking on the sidewalk in front of our house. No trip, fall, stumble, nothing. We knew there hadn't been enough trauma to break a normal bone, but it took several months to convince the doctor to order a bone scan. We had to offer to pay for it ourselves before she took us seriously and ordered it. When the results came in she was absolutely stunned. He had given up wheat in general before this happened because it didn't agree with him, so any tests from endocrinologists would not have picked up celiac. After 5 years of searching for the answer, we finally found out his vitamin D was low recently (he had started eating wheat again) and we started reading about celiac. Enterolab results confirm moderate malabsorption and gluten intolerance. After being put on high doses of prescription Vit D his parathyroid hormone came back to normal as well. His blood test still came back negative for celiac. We are now both gluten/casein free.

Nancym Enthusiast
Nancym
Posted

Probably vit. D deficiency is one of the major causes. We get so little sun on our bodies these days.

Here's an interesting lecture from a doctor about vit. D: Open Original Shared Link

floridanative Community Regular
floridanative
Posted
  • Author

Thanks for the replies and info. I think it's worth this woman getting tested for Celiac if she has not been. I met her briefly and don't know how to contact her but my instructor will make sure and tell her that it's important she at least rule Celiac out. I have a feeling that no doc has thought of this but maybe they will in NYC. She is either just back from there or coming back this weekend.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      132,202
    • Most Online (within 30 mins)
      7,748
    PatBurnham
    Newest Member
    PatBurnham
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • trents
      Taking Probiotics but Still Getting Sick After Gluten – Advice?

      By trents · Posted

      NCGS does not cause damage to the small bowel villi so, if indeed you were not skimping on gluten when you had the antibody blood testing done, it is likely you have celiac disease.
    • Scott Adams
      Taking Probiotics but Still Getting Sick After Gluten – Advice?

      By Scott Adams · Posted

      I will assume you did the gluten challenge properly and were eating a lot of gluten daily for 6-8 weeks before your test, but if not, that could be the issue. You can still have celiac disease with negative blood test results, although it's not as common:  Clinical and genetic profile of patients with seronegative coeliac disease: the natural history and response to gluten-free diet: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5606118/  Seronegative Celiac Disease - A Challenging Case: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9441776/  Enteropathies with villous atrophy but negative coeliac serology in adults: current issues: https://pubmed.ncbi.nlm.nih.gov/34764141/  Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If your symptoms go away on a gluten-free diet it would likely signal NCGS.
    • Xravith
      Taking Probiotics but Still Getting Sick After Gluten – Advice?

      By Xravith · Posted

      I'm very confused... My blood test came out negative, I checked all antibodies. I suppose my Total IgA levels are normal (132 mg/dl), so the test should be reliable. Still, I'm not relieved as I can't tolerate even a single biscuit. I need to talk to my doctor about whether a duodenal biopsy is necessary. But it is really possible to have intestinal damage despite having a seronegative results? I have really strong symptoms, and I don't want to keep skipping university lectures or being bedridden at home.
    • Scott Adams
      CT with contrast.

      By Scott Adams · Posted

      They may want to also eliminate other possible causes for your symptoms/issues and are doing additional tests.  Here is info about blood tests for celiac disease--if positive an endoscopy where biopsies of your intestinal villi are taken to confirm is the typical follow up.    
    • Scott Adams
      New labs are now very elevated

      By Scott Adams · Posted

      In the Europe the new protocol for making a celiac disease diagnosis in children is if their tTg-IgA (tissue transglutaminase IgA) levels are 10 times or above the positive level for celiac disease--and you are above that level. According to the latest research, if the blood test results are at certain high levels that range between 5-10 times the reference range for a positive celiac disease diagnosis, it may not be necessary to confirm the results using an endoscopy/biopsy: Blood Test Alone Can Diagnose Celiac Disease in Most Children and Adults TGA-IgA at or Above Five Times Normal Limit in Kids Indicates Celiac Disease in Nearly All Cases No More Biopsies to Diagnose Celiac Disease in Children! May I ask why you've had so many past tTg-IgA tests done, and many of them seem to have been done 3 times during short time intervals?    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.