Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

gluten-free For Month And A Half, Inconsistent Symptoms.

Woolygimp

By Woolygimp
in Coping with Celiac Disease

Recommended Posts

Woolygimp Contributor
Woolygimp
Posted

I've been gluten free for about 6 weeks, and my symptoms are like a roller coaster.

The first few weeks went great, I noticed an immediate improvement and started feeling very good. At about the two or three week mark I went from feeling amazing, to just rock bottom. Now some days I feel alright, and some I don't.

If I were to map how I felt over the time span of since I started I think it'd have to go something like...

(1-10 scale)

<start>3 4 6 7 7 9 10 2 3 2 5 3 5 6 3 4 4 5 6 3 5<now>

There's no way I'm getting glutened, because I moved into a new apartment and everything in here is gluten free. And it's the same stuff I've been eating since day 1 of the diet.

Other things bother me like, for instance the amount of saliva in my mouth. One minute I'll have plenty, and the next it will be incredibly dry and I'll be unable to draw any. Anybody experience dry mouth like this? Also on the days that I feel good, I'll never have this problem. Do you guys experience anything like this?

Also the only thing that I can see that has changed as far as my diet is the fact that I started drinking milk. I drank a lot, and felt immediate fatigue. Slept for about 5 hours afterwards, but had nothing as far as intestinal symptoms.

Could other things like milk be causing this?

I've also read posts where people explain that they feel great initially, then it worsens be it improves for good. Is this normal?

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Ursa Major Collaborator
Ursa Major
Posted

Hi, and welcome to these boards.

Yes, other things, especially dairy, could be causing you to feel so bad. When you described what happened after drinking milk, it is obvious that you really know that it was bad for you.

As can happen with gluten, with milk you can get only neurological outward symptoms as well, rather than gastrointestinal problems.

My husband's cousin's only symptom of an extreme dairy intolerance is almost immediate severe depression after consuming it. She was suffering from terrible depression for years (taking antidepressants), before they figured it out. As soon as she stopped drinking milk, her depression cleared. If she is being foolish and has milk, she'll be in that black hole within hours.

So, feeling extremely fatigued right after drinking milk and sleeping for several hours sounds to me like you need to eliminate dairy as well as gluten. Possibly other things as well, but start with dairy. You might be surprised at the difference it will make.

Paulr Rookie
Paulr
Posted

I AM ALSO 6 WEEKS GLUTEN FREE,THE LAST 5 DAYS I THOUGHT I WAS BETTER AS FAR AS BATHROOM GOES BUT I AM REALLY SICK TODAY ,I BUY ALL MY FOOD GLUTEN FREE NO GLUTEN IN MY SYSTEM,AGAIN I WONDER AS WELL IF THIS IS THE WAY IT GOES AT THE BEGINNING I AM ALSO LOOKING FOR THE SAME ANSWERS, YOUR NOT ALONE

Woolygimp Contributor
Woolygimp
Posted
  • Author
Hi, and welcome to these boards.

Yes, other things, especially dairy, could be causing you to feel so bad. When you described what happened after drinking milk, it is obvious that you really know that it was bad for you.

As can happen with gluten, with milk you can get only neurological outward symptoms as well, rather than gastrointestinal problems.

My husband's cousin's only symptom of an extreme dairy intolerance is almost immediate severe depression after consuming it. She was suffering from terrible depression for years (taking antidepressants), before they figured it out. As soon as she stopped drinking milk, her depression cleared. If she is being foolish and has milk, she'll be in that black hole within hours.

So, feeling extremely fatigued right after drinking milk and sleeping for several hours sounds to me like you need to eliminate dairy as well as gluten. Possibly other things as well, but start with dairy. You might be surprised at the difference it will make.

All dairy?

Cottage Cheese?

Yogurt?

Milk Chocolate?

Ursa Major Collaborator
Ursa Major
Posted
All dairy?

Cottage Cheese?

Yogurt?

Milk Chocolate?

Unfortunately, the answer is 'yes' to all of the above. Sorry about that, but that will leave you with an awful lot more food than I can tolerate!

Try it for a month. If you feel a whole lot better, you'll soon be happy you found the culprit, and won't mind eliminating your favourite foods so much.

Try dark chocolate, you might like it.

Woolygimp Contributor
Woolygimp
Posted
  • Author
Unfortunately, the answer is 'yes' to all of the above. Sorry about that, but that will leave you with an awful lot more food than I can tolerate!

Try it for a month. If you feel a whole lot better, you'll soon be happy you found the culprit, and won't mind eliminating your favourite foods so much.

Try dark chocolate, you might like it.

There a dark chocolate Reese's peanut butter cup? :unsure:

Just kidding, thanks for the advice. I'll give it a go.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Churley
      - Churley replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      10

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      Have you tried Pure Encapsulations supplements? This is a brand my doctor recommends for me. I have no issues with this brand.
    2. asaT
      - asaT replied to Scott Adams's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      48

      Supplements for those Diagnosed with Celiac Disease

      plant sources of calcium, such as spinach, have calcium bound to oxalates, which is not good. best source of calcium is unfortunately dairy, do you tolerate dairy? fermented dairy like kefir is good and or a little hard cheese. i do eat dairy, i can only take so much dietary restriction and gluten is hard enough! but i guess some people do have bad reactions...
    3. asaT
      - asaT replied to Scott Adams's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      48

      Supplements for those Diagnosed with Celiac Disease

      i take b12, folate, b2, b6, glycine, Nac, zinc, vk2 mk4, magnesium, coq10, pqq, tmg, creatine, omega 3, molybdnem (sp) and just started vit d. quite a list i know. I have high homocysteine (last checked it was 19, but is always high and i finally decided to do something about it) and very low vitamin d, 10. have been opposed to this supp in the past...
    4. nanny marley
      - nanny marley replied to hjayne19's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      20

      Insomnia help

      Great advise there I agree with the aniexty part, and the aura migraine has I suffer both, I've also read some great books that have helped I'm going too look the one you mentioned up too thankyou for that, I find a camomile tea just a small one and a gentle wind down before bed has helped me too, I suffer from restless leg syndrome and nerve pain hence I...
    5. David Blake
      - David Blake commented on Scott Adams's article in Product Labeling Regulations
      1

      FDA Moves to Improve Gluten Labeling—What It Means for People With Celiac Disease

      My question I have proposed to the FDA through their website is why Prescription and OTC drug manufacturers are not required to list what binding ingredients were used to bine the drug? They list this on Capsules which are made of cellulose but not on pills? As it stands I or my pharmacist must contact the manufacturer to find out and my list is long from...
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,345
    • Most Online (within 30 mins)
      7,748
    Scottweath
    Newest Member
    Scottweath
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • Churley
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By Churley · Posted

      Have you tried Pure Encapsulations supplements? This is a brand my doctor recommends for me. I have no issues with this brand.
    • asaT
      Supplements for those Diagnosed with Celiac Disease

      By asaT · Posted

      plant sources of calcium, such as spinach, have calcium bound to oxalates, which is not good. best source of calcium is unfortunately dairy, do you tolerate dairy? fermented dairy like kefir is good and or a little hard cheese. i do eat dairy, i can only take so much dietary restriction and gluten is hard enough! but i guess some people do have bad reactions to it, so different for everyone.  
    • asaT
      Supplements for those Diagnosed with Celiac Disease

      By asaT · Posted

      i take b12, folate, b2, b6, glycine, Nac, zinc, vk2 mk4, magnesium, coq10, pqq, tmg, creatine, omega 3, molybdnem (sp) and just started vit d. quite a list i know.  I have high homocysteine (last checked it was 19, but is always high and i finally decided to do something about it) and very low vitamin d, 10. have been opposed to this supp in the past, but going to try it at 5k units a day. having a pth test on friday, which is suspect will be high. my homocysteine has come down to around 9 with 3 weeks of these supplements and expect it to go down further. i also started on estrogen/progesterone. I have osteoporosis too, so that is why the hormones.  anyway, i think all celiacs should have homocysteine checked and treated if needed (easy enough with b vit, tmg). homocysteine very bad thing to be high for a whole host of reasons. all the bad ones, heart attack , stroke, alzi, cancer..... one of the most annoying things about celiacs (and there are so many!) is the weight gain. i guess i stayed thin all those years being undiagnosed because i was under absorbing everything including calories. going gluten-free and the weight gain has been terrible, 30#, but i'm sure a lot more went into that (hip replacement - and years of hip pain leading to inactivity when i was previously very active, probably all related to celiacs, menopause) yada yada. i seemed to lose appetite control, like there was low glp, or leptin or whatever all those hormones are that tell you that you are full and to stop eating. my appetite is immense and i'm never full. i guess decades or more ( i think i have had celiacs since at least my teens - was hospitalized for abdominal pain and diarrhea for which spastic colon was eventually diagnosed and had many episodes of diarrhea/abdominal pain through my 20's. but that symptom seemed to go away and i related it to dairy much more so than gluten. Also my growth was stunted, i'm the only shorty in my family. anyway, decades of malabsorption and maldigestion led to constant hunger, at least thats my theory. then when i started absorbing normally, wham!! FAT!!!    
    • nanny marley
      Insomnia help

      By nanny marley · Posted

      Great advise there I agree with the aniexty part, and the aura migraine has I suffer both, I've also read some great books that have helped I'm going too look the one you mentioned up too thankyou for that, I find a camomile tea just a small one and a gentle wind down before bed has helped me too, I suffer from restless leg syndrome and nerve pain hence I don't always sleep well at the best of times , racing mind catches up I have decorated my whole house in one night in my mind before 🤣 diet changes mindset really help , although I have to say it never just disappears, I find once I came to terms with who I am I managed a lot better  , a misconception is for many to change , that means to heal but that's not always the case , understanding and finding your coping mechanisms are vital tools , it's more productive to find that because there is no failure then no pressure to become something else , it's ok to be sad it's ok to not sleep , it's ok to worry , just try to see it has a journey not a task 🤗
    • nanny marley
      nothing has changed

      By nanny marley · Posted

      I agree there I've tryed this myself to prove I can't eat gluten or lactose and it sets me back for about a month till I have to go back to being very strict to settle again 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.