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Just Wondering


tabasco32

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tabasco32 Apprentice

Hi

I have been reading on here for some time now. I was wondering if the enterolab is safe and reasuring. I have a disease that is called interstitial cystitis which occured about last april at the end. At the same time I got some pretty bad GI issues. Mostly constipation real bad. I also have some undigested food in my stool which I never really had. Hair loss, weight loss, I weigh 105 pounds and I am 34 year old female. I was 145 pounds before I got the IC bladder disease. I have not been eating gluten for about 4 months now. I don't know if I am gluten sensitive. I am hispanic and no one in my whole family has this disease. Some doctors say it's ibs so I don't know. I am very fustrated because no matter how much I eat I still feel hungry. Even being off of gluten for 4 months none of my symptoms have went away at all. My feet and hands are always cold. I wonder if it is celiac or maybe leaky gut. If I even smell artificial sugars or cane sugar I get excuse me vaginal discharge which seems to be wierd right? I have seen many doctors and none know about it. So i want to get tested for this disease and malabsorbtion. I am sugar, corn, dairy, and gluten free as of right now. Sometime I will eat some organic greek yougurt or goats milk but that's it. Corn bloats me and it never use to before. I am at a loss people. I now pray to the lord everyday almost all day for some answers to this illness. Sometimes I wonder, Is it cancer? I live on milk of magnesia and I know it's not good for you but nothing else works. Trust me I tried. Any help would be appreciated.

thank you

lisa marie


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e&j0304 Enthusiast

I'm not really sure about some of your symptoms but some of them do sound as though they could be caused by a thyroid problem. Have you ever had your thyroid tested? If you have been completely gluten free for 4 months now I would say that you should have at least seen some improvement. I am not saying that you couldn't be gluten intolerant because you certainly may be. I just feel as though maybe you should be looking into some other areas. It sounds like maybe you need to try a new dr. I know finding a good one is sounds easier than it really is.

Good luck to you. I am going to go against the grain here and not recommend enterolab. They will likely tell you that you're gluten intolerant and that you should be on the diet. You are already on the diet and you are still having problems so you need to figure those out. Enterolab isn't going to figure out what else is wrong with you. A trail of the diet will tell you just as much as enterolab for MUCH cheaper.

I hope you are on the road to feeling better soon

tabasco32 Apprentice

thank you

yes I did have my thyroid checked and everything was fine. I am so baffled. I haven't had my period in 4 months either. :(

I'm not really sure about some of your symptoms but some of them do sound as though they could be caused by a thyroid problem. Have you ever had your thyroid tested? If you have been completely gluten free for 4 months now I would say that you should have at least seen some improvement. I am not saying that you couldn't be gluten intolerant because you certainly may be. I just feel as though maybe you should be looking into some other areas. It sounds like maybe you need to try a new dr. I know finding a good one is sounds easier than it really is.

Good luck to you. I am going to go against the grain here and not recommend enterolab. They will likely tell you that you're gluten intolerant and that you should be on the diet. You are already on the diet and you are still having problems so you need to figure those out. Enterolab isn't going to figure out what else is wrong with you. A trail of the diet will tell you just as much as enterolab for MUCH cheaper.

I hope you are on the road to feeling better soon

  • 4 weeks later...
gfbrooklyngal Newbie

I just saw this now--not sure if you've figured things out yet, but I had very similar symptoms about four years ago, and after 10 months(!!) of not having a period they finally diagnosed me with Polycystic Ovarian Syndrome (PCOS). My doctor discovered it through blood tests, which showed that I had slightly higher than normal levels of testosterone and slightly lower than normal estrogen. Some doctors also diagnose it through pelvic ultrasound, but mine didn't do that with me because he was doubtful that I actually had the syndrome--many doctors think that PCOS can't happen to thin people (about 60 percent of PCOS women are obese and often have diabetes, and those happen to be the cases that get the most attention).

It might be worth it to check with your doc about PCOS if you haven't already. I now take a birth control pill that's specifically tailored to PCOS (it's called Yasmin, and it has only one hormone instead of a combination, which most pills have). I started getting periods again and stopped losing weight, but I still have the recurrent yeast infections, the "IBS" (my doc calls it that, even though she acknowledged that I probably have non-celiac gluten intolerance since our trial of the gluten-free diet helped a lot), and intermittent constipation (though going gluten-free cut that down a lot).

I'm now also taking acidophilus pills on the advice of a naturopathic doctor, who said that recurrent yeast infections are a sign of candida overgrowth. I had been on antibiotics for two years for acne, and long-term antibiotic use can kill the body's good bacteria, making candida infection more likely. It seems to be helping some, though like you I often get symptoms after eating sweets.

I hope some of this is helpful in pointing you toward a diagnosis, and I wish you all the best--I know how horribly frustrating it is to go through this kind of thing. Take care!

CarlaB Enthusiast

It sounds like you may have candida. Are you taking probiotics? Coconut oil is also good for getting rid of candida.

The loss of menstruation could be because of the weight loss. Estrogen is fat soluble, so when youre body fat gets too low, you can stop having your periods.

Are you sure you're completely gluten-free?

Google Dr. Broda Barnes ... thyroid tests are not always accurate. Dr. Barnes studied how basal temperatures are a more accurate indicator of thyroid.

Could these symptoms be from your other disease? I'm not familiar with it, so I don't know. I hope you find answers soon.

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    • Scott Adams
      After years of stable management, developing new symptoms to historically safe foods like nuts and fish strongly suggests a secondary issue has developed. It is highly unlikely to be a new gluten issue if the foods themselves are certified gluten-free. The most probable explanations are a new, separate food intolerance (perhaps to a specific protein in certain nuts or fish) or a true IgE-mediated food allergy, which can develop at any age. The symptoms you describe—cramps and the urge to vomit—can be consistent with either. It is crucial he sees an allergist for proper testing (like a skin prick or blood test) to identify the specific culprit and rule out a serious allergy, as reactions can sometimes worsen with repeated exposure.
    • trents
      Nuts are a common source of food allergy reaction/intolerance/sensitivity. But fish usually not. Of course, intolerances can develop to any food, whether or not they are common ones. I'm at a loss here.
    • Scott Adams
      Your doctor's recommendation to wait three months is very sound and aligns with general advice for celiac disease. While the acute GI symptoms resolve quickly, the autoimmune response and intestinal inflammation can linger, impairing nutrient absorption crucial for early fetal development. This three-month window allows your body to calm the immune response and for your gut to fully heal, ensuring you are in the best possible nutritional health for conception and pregnancy. In the meantime, focus on hydrating, eating nourishing, easily digestible foods, and resting—your body needs time to recover. It's a frustrating delay, but it's the best step for a healthy pregnancy.
    • Celiacpartner
      He’s noticed it after having a few different kinds of nuts and nuts on top of a gluten free nut bar. and it’s happened after having some fresh caught fish, and tonight from packaged plain salmon from the supermarket. He has stomach cramps and feels the need to vomit to try and relieve the symptoms. 
    • trents
      Welcome to the forum, @Celiacpartner! Does this happen with all nuts and all fish or just certain kinds? And are we talking about products that are advertised as gluten-free eaten at home or things served in a restaurant?
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