Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Just Wondering

tabasco32

Recommended Posts

tabasco32 Apprentice
tabasco32
Posted

Hi

I have been reading on here for some time now. I was wondering if the enterolab is safe and reasuring. I have a disease that is called interstitial cystitis which occured about last april at the end. At the same time I got some pretty bad GI issues. Mostly constipation real bad. I also have some undigested food in my stool which I never really had. Hair loss, weight loss, I weigh 105 pounds and I am 34 year old female. I was 145 pounds before I got the IC bladder disease. I have not been eating gluten for about 4 months now. I don't know if I am gluten sensitive. I am hispanic and no one in my whole family has this disease. Some doctors say it's ibs so I don't know. I am very fustrated because no matter how much I eat I still feel hungry. Even being off of gluten for 4 months none of my symptoms have went away at all. My feet and hands are always cold. I wonder if it is celiac or maybe leaky gut. If I even smell artificial sugars or cane sugar I get excuse me vaginal discharge which seems to be wierd right? I have seen many doctors and none know about it. So i want to get tested for this disease and malabsorbtion. I am sugar, corn, dairy, and gluten free as of right now. Sometime I will eat some organic greek yougurt or goats milk but that's it. Corn bloats me and it never use to before. I am at a loss people. I now pray to the lord everyday almost all day for some answers to this illness. Sometimes I wonder, Is it cancer? I live on milk of magnesia and I know it's not good for you but nothing else works. Trust me I tried. Any help would be appreciated.

thank you

lisa marie

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


e&j0304 Enthusiast
e&j0304
Posted

I'm not really sure about some of your symptoms but some of them do sound as though they could be caused by a thyroid problem. Have you ever had your thyroid tested? If you have been completely gluten free for 4 months now I would say that you should have at least seen some improvement. I am not saying that you couldn't be gluten intolerant because you certainly may be. I just feel as though maybe you should be looking into some other areas. It sounds like maybe you need to try a new dr. I know finding a good one is sounds easier than it really is.

Good luck to you. I am going to go against the grain here and not recommend enterolab. They will likely tell you that you're gluten intolerant and that you should be on the diet. You are already on the diet and you are still having problems so you need to figure those out. Enterolab isn't going to figure out what else is wrong with you. A trail of the diet will tell you just as much as enterolab for MUCH cheaper.

I hope you are on the road to feeling better soon

tabasco32 Apprentice
tabasco32
Posted
  • Author

thank you

yes I did have my thyroid checked and everything was fine. I am so baffled. I haven't had my period in 4 months either. :(

I'm not really sure about some of your symptoms but some of them do sound as though they could be caused by a thyroid problem. Have you ever had your thyroid tested? If you have been completely gluten free for 4 months now I would say that you should have at least seen some improvement. I am not saying that you couldn't be gluten intolerant because you certainly may be. I just feel as though maybe you should be looking into some other areas. It sounds like maybe you need to try a new dr. I know finding a good one is sounds easier than it really is.

Good luck to you. I am going to go against the grain here and not recommend enterolab. They will likely tell you that you're gluten intolerant and that you should be on the diet. You are already on the diet and you are still having problems so you need to figure those out. Enterolab isn't going to figure out what else is wrong with you. A trail of the diet will tell you just as much as enterolab for MUCH cheaper.

I hope you are on the road to feeling better soon

  • 4 weeks later...
gfbrooklyngal Newbie
gfbrooklyngal
Posted

I just saw this now--not sure if you've figured things out yet, but I had very similar symptoms about four years ago, and after 10 months(!!) of not having a period they finally diagnosed me with Polycystic Ovarian Syndrome (PCOS). My doctor discovered it through blood tests, which showed that I had slightly higher than normal levels of testosterone and slightly lower than normal estrogen. Some doctors also diagnose it through pelvic ultrasound, but mine didn't do that with me because he was doubtful that I actually had the syndrome--many doctors think that PCOS can't happen to thin people (about 60 percent of PCOS women are obese and often have diabetes, and those happen to be the cases that get the most attention).

It might be worth it to check with your doc about PCOS if you haven't already. I now take a birth control pill that's specifically tailored to PCOS (it's called Yasmin, and it has only one hormone instead of a combination, which most pills have). I started getting periods again and stopped losing weight, but I still have the recurrent yeast infections, the "IBS" (my doc calls it that, even though she acknowledged that I probably have non-celiac gluten intolerance since our trial of the gluten-free diet helped a lot), and intermittent constipation (though going gluten-free cut that down a lot).

I'm now also taking acidophilus pills on the advice of a naturopathic doctor, who said that recurrent yeast infections are a sign of candida overgrowth. I had been on antibiotics for two years for acne, and long-term antibiotic use can kill the body's good bacteria, making candida infection more likely. It seems to be helping some, though like you I often get symptoms after eating sweets.

I hope some of this is helpful in pointing you toward a diagnosis, and I wish you all the best--I know how horribly frustrating it is to go through this kind of thing. Take care!

CarlaB Enthusiast
CarlaB
Posted

It sounds like you may have candida. Are you taking probiotics? Coconut oil is also good for getting rid of candida.

The loss of menstruation could be because of the weight loss. Estrogen is fat soluble, so when youre body fat gets too low, you can stop having your periods.

Are you sure you're completely gluten-free?

Google Dr. Broda Barnes ... thyroid tests are not always accurate. Dr. Barnes studied how basal temperatures are a more accurate indicator of thyroid.

Could these symptoms be from your other disease? I'm not familiar with it, so I don't know. I hope you find answers soon.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. lizzie42
      - lizzie42 posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      0

      Son's legs shaking

      My 5yo was diagnosed with celiac last year by being tested after his sister was diagnosed. We are very strict on the gluten-free diet, but unsure what his reactions are as he was diagnosed without many symptoms other than low ferritin. He had a school party where his teacher made gluten-free gingerbread men. I almost said no because she made it in her...
    2. trents
      - trents replied to Paulaannefthimiou's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Bob red mill gluten free oats

      Not necessarily. The "Gluten Free" label means not more than 20ppm of gluten in the product which is often not enough for super sensitive celiacs. You would need to be looking for "Certified Gluten Free" (GFCO endorsed) which means no more than 10ppm of gluten. Having said that, "Gluten Free" doesn't mean that there will necessarily be more gluten than "Certified...
    3. trents
      - trents replied to jenniber's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      10

      Disaccharide deficient, confusing biopsy results, no blood test

      I think it is wise to seek a second opinion from a GI doc and to go on a gluten free diet in the meantime. The GI doc may look at all the evidence, including the biopsy report, and conclude you don't need anything else to reach a dx of celiac disease and so, there would be no need for a gluten challenge. But if the GI doc does want to do more testing, you...
    4. Paulaannefthimiou
      - Paulaannefthimiou posted a topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Bob red mill gluten free oats

      Are Bobresmill gluten free oats ok for sensitive celiacs?
    5. jenniber
      - jenniber replied to jenniber's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      10

      Disaccharide deficient, confusing biopsy results, no blood test

      thank you both for the insights. i agree, im going to back off on dairy and try sucraid. thanks for the tip about protein powder, i will look for whey protein powder/drinks! i don’t understand why my doctor refused to order it either. so i’ve decided i’m not going to her again, and i’m going to get a second opinion with a GI recommended to me b...
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      132,850
    • Most Online (within 30 mins)
      7,748
    Cindy Shreve
    Newest Member
    Cindy Shreve
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • lizzie42
      Son's legs shaking

      By lizzie42 · Posted

      My 5yo was diagnosed with celiac last year by being tested after his sister was diagnosed. We are very strict on the gluten-free diet, but unsure what his reactions are as he was diagnosed without many symptoms other than low ferritin.  He had a school party where his teacher made gluten-free gingerbread men. I almost said no because she made it in her kitchen but I thought it would be ok.  Next day and for a few after his behavior is awful. Hitting, rude, disrespectful. Mainly he kept saying his legs were shaking. Is this a gluten exposure symptom that anyone else gets? Also the bad behavior? 
    • trents
      Bob red mill gluten free oats

      By trents · Posted

      Not necessarily. The "Gluten Free" label means not more than 20ppm of gluten in the product which is often not enough for super sensitive celiacs. You would need to be looking for "Certified Gluten Free" (GFCO endorsed) which means no more than 10ppm of gluten. Having said that, "Gluten Free" doesn't mean that there will necessarily be more gluten than "Certified Gluten" in any given batch run. It just means there could be. 
    • trents
      Disaccharide deficient, confusing biopsy results, no blood test

      By trents · Posted

      I think it is wise to seek a second opinion from a GI doc and to go on a gluten free diet in the meantime. The GI doc may look at all the evidence, including the biopsy report, and conclude you don't need anything else to reach a dx of celiac disease and so, there would be no need for a gluten challenge. But if the GI doc does want to do more testing, you can worry about the gluten challenge at that time. But between now and the time of the appointment, if your symptoms improve on a gluten free diet, that is more evidence. Just keep in mind that if a gluten challenge is called for, the bare minimum challenge length is two weeks of the daily consumption of at least 10g of gluten, which is about the amount found in 4-6 slices of wheat bread. But, I would count on giving it four weeks to be sure.
    • Paulaannefthimiou
      Bob red mill gluten free oats

      By Paulaannefthimiou · Posted

      Are Bobresmill gluten free oats ok for sensitive celiacs?
    • jenniber
      Disaccharide deficient, confusing biopsy results, no blood test

      By jenniber · Posted

      thank you both for the insights. i agree, im going to back off on dairy and try sucraid. thanks for the tip about protein powder, i will look for whey protein powder/drinks!   i don’t understand why my doctor refused to order it either. so i’ve decided i’m not going to her again, and i’m going to get a second opinion with a GI recommended to me by someone with celiac. unfortunately my first appointment isn’t until February 17th. do you think i should go gluten free now or wait until after i meet with the new doctor? i’m torn about what i should do, i dont know if she is going to want to repeat the endoscopy, and i know ill have to be eating gluten to have a positive biopsy. i could always do the gluten challenge on the other hand if she does want to repeat the biopsy.    thanks again, i appreciate the support here. i’ve learned a lot from these boards. i dont know anyone in real life with celiac.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.