Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Finally, Enterolab Results!


The One

Recommended Posts

The One Apprentice

Well, I finally got my Enterolab results, I'm sure you all know the story, no doctor listens, put on antacids, etc etc. So after almost a year of stomach issues they are all gone in 2 weeks!

Here is what I got:

Gluten Sensitivity Stool Test

Fecal Antigliadin IgA 105 (Normal Range <10)

Interpretation of Fecal Antigliadin IgA: Intestinal antigliadin IgA antibody was elevated, indicating that you have active dietary gluten sensitivity...

As for my med history and symptoms:

-Sensorineural hearing loss diagnosed around age 10

-Always sick with pneumonia, colds, flu, everything I could ever catch

-Childhood Arhtritis

-Tremors noticed at age 13 which still are present

-Vision problems

-Diabetes diagnosed at age 20

-Stomach pains and cramps [started around age 19

-Nausea and vomiting for the past year

-Weakness

-Peripheral Neuropathy diagnosed months after Diabetes dx

-Foggy mind

-Memory problems

-Excessive anxiety and on and off depression for years

-Facial rash in the past few months after ingesting and vomiting gluten

-Protruding left rib which I still have no answer for

I could not do a Celiac test, but I can pretty much assume there IS intestinal damage.

I'm just glad I could finally find some answers, now i'm taking these results to my doctor who never listened, I know he will deny I have a problem but I have to show them.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Ursa Major Collaborator

I am glad you finally figured it out, and are starting to feel better. That IgA is awfully high, for sure. It will take a while to get that down to normal levels, but be diligent on the gluten-free diet, and it will happen.

ravenwoodglass Mentor
Well, I finally got my Enterolab results, I'm sure you all know the story, no doctor listens, put on antacids, etc etc. So after almost a year of stomach issues they are all gone in 2 weeks!

Here is what I got:

Gluten Sensitivity Stool Test

Fecal Antigliadin IgA 105 (Normal Range <10)

Interpretation of Fecal Antigliadin IgA: Intestinal antigliadin IgA antibody was elevated, indicating that you have active dietary gluten sensitivity...

As for my med history and symptoms:

-Sensorineural hearing loss diagnosed around age 10

-Always sick with pneumonia, colds, flu, everything I could ever catch

-Childhood Arhtritis

-Tremors noticed at age 13 which still are present

-Vision problems

-Diabetes diagnosed at age 20

-Stomach pains and cramps [started around age 19

-Nausea and vomiting for the past year

-Weakness

-Peripheral Neuropathy diagnosed months after Diabetes dx

-Foggy mind

-Memory problems

-Excessive anxiety and on and off depression for years

-Facial rash in the past few months after ingesting and vomiting gluten

-Protruding left rib which I still have no answer for

I could not do a Celiac test, but I can pretty much assume there IS intestinal damage.

I'm just glad I could finally find some answers, now i'm taking these results to my doctor who never listened, I know he will deny I have a problem but I have to show them.

I'm glad you finally found some answers. Your doctor may not believe you now but he will after you have healed and you hardly ever need to see him anymore. I hope you get relief soon, it does take a while to heal for some of us.

The One Apprentice

Yes indeed it seems like it will take time, at least I am not having nausea anymore, which I had had for months and months and am not throwing up anymore of course, which I'm very happy about! What I'm having a hard time with is baking hehe I'm still not used to baking with these different flours and my breads come out hard like rock hehe but I"ll get a hold of it eventually.

ravenwoodglass Mentor
Yes indeed it seems like it will take time, at least I am not having nausea anymore, which I had had for months and months and am not throwing up anymore of course, which I'm very happy about! What I'm having a hard time with is baking hehe I'm still not used to baking with these different flours and my breads come out hard like rock hehe but I"ll get a hold of it eventually.

Yea the baking is tough at first. Bette Hagman has some good cookbooks and there are also gluten free flour mixes which make it less like being a chemist. There are some good premade baked goods out there, it's hard though because some are pricey and if you don't like them oh well. Things do get easier. I'm glad your already seeing some progress.

larry mac Enthusiast
..... What I'm having a hard time with is baking hehe I'm still not used to baking with these different flours and my breads come out hard like rock hehe but I"ll get a hold of it eventually.

TO,

The bread making is difficult. There are so many ingredients. I make a big batch of flours/starches blend ( half & half) and that saves a lot of time and confusion come baking time.

Make some muffins. Throw lots of stuff in there. Use the paper cups. You can get the muffin making down faster than the bread. Take 'em out of the pan, let 'em cool on a wire rack, then wrap them individually, put 'em in a freezer bag, and take one to work every day to heat up in the microwave as a snack. I've been making banana nut buttermilk, with butter, cinnamon, & turbanado sugar sprinked on top.

best regards, lm

The One Apprentice

I'll definitely try the muffins, I'm sure they're much easier to cook than bread :D

Which are the best flours to cook with? I've bought many different flours which I still have in my pantry, so far I"ve tried White Rice Flour, Brown Rice Flour, Potato Flour, Soy Flour, and White Lentils Flour [urid Flour]. They are all much heavier it seems.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      results from 13 day gluten challenge - does this mean I can't have celiac?

    2. - knitty kitty replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      49

      My journey is it gluten or fiber?

    3. - catnapt replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      results from 13 day gluten challenge - does this mean I can't have celiac?

    4. - catnapt replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      results from 13 day gluten challenge - does this mean I can't have celiac?

    5. - xxnonamexx replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      49

      My journey is it gluten or fiber?

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,368
    • Most Online (within 30 mins)
      7,748

    Klairep
    Newest Member
    Klairep
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • knitty kitty
      @catnapt,  Wheat germ contains high amounts of lectins which are really hard to digest and can be irritating to the digestive tract.  They can stimulate IgG antibody production as your blood test shows.   Even beans have lectins.  You've simply eaten too many lectins and irritated your digestive tract.   You may want to allow your digestive tract to rest for a week, then start on gluten in "normal" food, not in concentrated vital wheat gluten. This explains it well: Lectins, agglutinins, and their roles in autoimmune reactivities https://pubmed.ncbi.nlm.nih.gov/25599185/
    • knitty kitty
      I take Now B-1 (100 mg) Thiamine Hydrochloride, and Amazing Formulas L-Tryptophan (1000 mg).   Both are gluten free and free of other allergens.  I've taken them for a long time and haven't had a problem with them. I take Vitamin A from BioTech called "A-25".  It's gluten and allergen free and made in the USA.  It's a powder form of Vitamin A.  I was having trouble digesting fats at one point, but found I tolerated the powder form much better and have stuck with it since.   Tryptophan and Vitamin A help heal the intestines as well as improves skin health.  I get Dermatitis Herpetiformis and eczema flairs when my stomach is upset.  So I'm healing the outside as well as the inside.   I take one 1000 mg Tryptophan before bedtime.   With the Thiamine HCl, take 100 mg to start.  If you don't notice anything, three hours later take another. You can keep increasing your dose in this manner until you do notice improvement.  Remember not to take it in the evening so it won't keep you too energized to sleep. When I first started Thiamine HCl, taking 500 mg to 1000 mg to start was recommended.  If you've been thiamine insufficient for a while, you do notice a big difference.  It's like the start of a NASCAR race: Zoom, Zoom, turn it up!   This scared or made some people uncomfortable, but it's just your body beginning to function properly, like putting new spark plugs in your engine.  I took 1000 mg all at once without food.  It kicked in beautifully, but I got a tummy ache, so take with food.  I added in Thiamine TTFD and Benfotiamine weeks later and felt like I was Formula One racing.  So cool.  You may feel worse for a couple days as your body adjusts to having sufficient thiamine.  Feels sort of like you haven't cranked your engine for a while and it backfires and sputters, but it will settle down and start purring soon enough.  Adjust your dose to what feels right for you, increasing your dose as long as you feel improvement.  You can reach a plateau, so stay there for several days, then try bumping it up again.  If no more improvements happen, you can stay at the plateau amount and experiment with increasing your Thiamine TTFD.  It's like being your own lab rat.  LoL Yes, take one Benfotiamine at breakfast and one at lunch.  Take the B Complex at breakfast. Take the TTFD at breakfast and lunch as well.  I like to take the vitamins at the beginning of meals and the NeuroMag at the end of meals.   You may want to add in some zinc.  I take Thorne Zinc 30 mg at breakfast at the beginning of the meal.   Are you getting sufficient Omega Threes?  Our brains are made up mostly of fat.  Flaxseed oil supplements, sunflower seed oil supplements (or eat the seeds themselves) can improve that.  Cooking with extra virgin olive oil, avocado oil, or coconut oil is also helpful.   @Wheatwacked likes phosphotidyl choline supplements for his Omega Threes.  He's also had dramatic health improvement by supplementing thiamine.  You're doing great!  Thank you for sharing your journey with us.  This path will smooth out.  Keep going!  
    • catnapt
      good luck! vital wheat gluten made me violently ill. I will touch the stuff ever again.  
    • catnapt
      I wouldn't consider this lucky. I can NOT tolerate the symptoms. And I googled it and I was not even getting 10 grams of gluten per day and I was extremely ill. They'd have to put me in the hospital. I'm not kidding.   I will have my first appt with a GI dr on March 4th   I will not eat gluten again - at least not on purpose   they are going to have to come up with a test that doesn't require it. 
    • xxnonamexx
      What Thiamine Hydrochloride brand do you take? Is it like the other vitamins I have added? What brand Tryptophan and amount do you take. Thanks
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.