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Help! Oversleep & Fatigued

Heather9500
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Guest andie
Guest andie
Posted

Hi

Before putting hubby on gluten free diet he slept 18 hours a day. Whenever he could basically.

Within a month of gluten-free he had amazing results. Energy plus!

The last week he is again slipping back into those 'habits'. If he sits down within 5 min he is snoring.

At work when he gets under equipment he is nodding off on the floor. When cutting wood he lays down in the dirt and konks out. He says its weird.

On gluten-free he has none of the other symptoms he had before. In fact he doesn't even feel the fatigue he did before, he just nods off. He is however having major brain fog. (Sent ham and cabbage sandwiches in the kids lunch instead of lettuce.)

We are adding nightshade elimination to the diet. (That's hard) but don't know what else to do.

Have been on gluten-free for 4 months.

Anyone else have similar symptoms? Do you think it is a result of being glutened? We're still learning.

Andie

However even at his worst, I don't think he was THAT fatigued. I agree. That needs to be checked out by a DR.

  • 2 weeks later...
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Centa Newbie
Centa
Posted

Heather, thanks so very much for starting this thread. Having sleep problems was one of the first things that manifested for me.

What gave me sleep, rest and strength back was taking wheat out of my diet. It took about a month before I noticed change in the sleep/rest, but it definitely came back, after I cut out the gluten.

Nancym Enthusiast
Nancym
Posted

Wow, you need to talk to your doctor and mention the word narcolepsy. There is a connection between gluten intolerance and narcolepsy but still, you'd better explore this further.

jewels1961 Newbie
jewels1961
Posted
Wow, you need to talk to your doctor and mention the word narcolepsy. There is a connection between gluten intolerance and narcolepsy but still, you'd better explore this further.

There was a post on here stating how Provigil can help with the fatigue/sleepiness. Provigil has gluten in it. My husband has recently been diagnosed with celiac and when I spoke to our pharmacy this morning about refilling his prescriptions she had called in to the company to verify and was told yes, it does contain gluten. Hopefully this information will help someone out there.

I also had a question, all of you who have experienced this extreme fatigue and sleep for hours, have you been able to hold down a job. My husband has been dealing with all of these symptoms for 5 years, and not being able to work as he can't get up or stay awake long enough, and after going to doctor and doctor, being treated for depression, tested for sleep apnia, narcolepsy (both negative after how much money to doctors and hospitals), etc., we finally have an answer and now he has to get his mind set about the gluten free which he is having a hard time dealing with.

Jewels

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    • marion wheaton
      Are Lindt chocolate balls gluten free?

      By marion wheaton · Posted

      Thanks for responding. I researched further and Lindt Lindor chocolate balls do contain barely malt powder which contains gluten. I was surprised at all of the conflicting information I found when I checked online.
    • trents
      Are Lindt chocolate balls gluten free?

      By trents · Posted

      @BlessedinBoston, it is possible that in Canada the product in question is formulated differently than in the USA or at least processed in in a facility that precludes cross contamination. I assume from your user name that you are in the USA. And it is also possible that the product meets the FDA requirement of not more than 20ppm of gluten but you are a super sensitive celiac for whom that standard is insufficient. 
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      Are Lindt chocolate balls gluten free?

      By BlessedinBoston · Posted

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    • knitty kitty
      My only proof

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    • Jmartes71
      My only proof

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      I have been diagnosed with celiac in 1994, in remission not eating wheat and other foods not to consume  my household eats wheat.I have diagnosed sibo, hernia ibs, high blood pressure, menopause, chronic fatigue just to name a few oh yes and Barrett's esophagus which i forgot, I currently have bumps in back of my throat, one Dr stated we all have bumps in the back of our throat.Im in pain.Standford specialist really dismissed me and now im really in limbo and trying to get properly cared for.I found a new gi and new pcp but its still a mess and medical is making it look like im a disability chaser when Im actively not well I look and feel horrible and its adding anxiety and depression more so.Im angery my condition is affecting me and its being down played 
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