Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Feel Half-dead


sillyakchick

Recommended Posts

sillyakchick Newbie

So I hardly ever go out to eat, but I went to lunch last Friday at a local place where I know I can eat this one kind of soup and a salad. Ever since Friday afternoon, I feel like a zombie. I have gone through periods of crying, feeling angry for nothing, being short-tempered, and I am SO. Damn. Tired. I would just curl up here under my desk for the rest of the afternoon if I thought it would do any good. I also have no appetite whatsoever. So is this being glutened or not? I have been dealing with this for 5 years as a well-controlled diagnosed celiac, but for some reason, I still have this question when I feel like this. Am I just PMS-ing? Am I getting a cold? I feel sore all over and I have no energy in my body from my hips to my neck. I know this sounds bizarre, but a little help would be appreciated. How do I get over this if it IS glutenation? Please, send me the antidote! :blink:

I am a complete space case.

Heather

Baby 2001

Celiac 2002

Cholycystectomy 2004

Baby 2006

Spasm of Sphincter of Oddi 2007


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Guhlia Rising Star

It sounds like you've probably been glutened. What restaurant did you eat at? Was it a chain? If they commonly make sandwiches or fresh made donuts, breads, or bagels, there's a very high risk of cross contamination. Even one crumb in your soup could gluten you.

As for an antidote, well, the only thing that helps me is Red Bull energy drinks. They give you a good solid shot of B vitamins (as well as other vitamins) and in liquid form for ease of digestion. They generally take the edge off for me, especially with the emotional symptoms.

I hope you feel better soon.

sillyakchick Newbie

I did not eat at a chain restaurant. I had the same thing i always get. She did serve it with an unopened package of crackers, even though I requested no what-bread-roll-of-any-kind. I don't really think that had any effect, but maybe they spilled a bag of flour into it or something.

CarlaB Enthusiast
I did not eat at a chain restaurant. I had the same thing i always get. She did serve it with an unopened package of crackers, even though I requested no what-bread-roll-of-any-kind. I don't really think that had any effect, but maybe they spilled a bag of flour into it or something.

Did you request that they toss your salad in a clean bowl? Perhaps they tossed it in a bowl that had previously been used for a salad with croutons. We can get glutened at any time by the normal things we eat in any kitchen, so even though you've eaten there before, this time they must have contaminated your food in some way.

sillyakchick Newbie

I forgot to ask about the seperate bowl thing. Thanks for reminding me about that. I really REALLY want my brains back. I was such a mess last night that I actually almost started crying while I was making dinner. I feel SO tired, and My brain is just not working.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,210
    • Most Online (within 30 mins)
      7,748

    BJ OConnor
    Newest Member
    BJ OConnor
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • trents
      NCGS does not cause damage to the small bowel villi so, if indeed you were not skimping on gluten when you had the antibody blood testing done, it is likely you have celiac disease.
    • Scott Adams
      I will assume you did the gluten challenge properly and were eating a lot of gluten daily for 6-8 weeks before your test, but if not, that could be the issue. You can still have celiac disease with negative blood test results, although it's not as common:  Clinical and genetic profile of patients with seronegative coeliac disease: the natural history and response to gluten-free diet: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5606118/  Seronegative Celiac Disease - A Challenging Case: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9441776/  Enteropathies with villous atrophy but negative coeliac serology in adults: current issues: https://pubmed.ncbi.nlm.nih.gov/34764141/  Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If your symptoms go away on a gluten-free diet it would likely signal NCGS.
    • Xravith
      I'm very confused... My blood test came out negative, I checked all antibodies. I suppose my Total IgA levels are normal (132 mg/dl), so the test should be reliable. Still, I'm not relieved as I can't tolerate even a single biscuit. I need to talk to my doctor about whether a duodenal biopsy is necessary. But it is really possible to have intestinal damage despite having a seronegative results? I have really strong symptoms, and I don't want to keep skipping university lectures or being bedridden at home.
    • Scott Adams
      They may want to also eliminate other possible causes for your symptoms/issues and are doing additional tests.  Here is info about blood tests for celiac disease--if positive an endoscopy where biopsies of your intestinal villi are taken to confirm is the typical follow up.    
    • Scott Adams
      In the Europe the new protocol for making a celiac disease diagnosis in children is if their tTg-IgA (tissue transglutaminase IgA) levels are 10 times or above the positive level for celiac disease--and you are above that level. According to the latest research, if the blood test results are at certain high levels that range between 5-10 times the reference range for a positive celiac disease diagnosis, it may not be necessary to confirm the results using an endoscopy/biopsy: Blood Test Alone Can Diagnose Celiac Disease in Most Children and Adults TGA-IgA at or Above Five Times Normal Limit in Kids Indicates Celiac Disease in Nearly All Cases No More Biopsies to Diagnose Celiac Disease in Children! May I ask why you've had so many past tTg-IgA tests done, and many of them seem to have been done 3 times during short time intervals?    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.