Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Not Sure What To Do


Swthrtpookie

Recommended Posts

tarnalberry Community Regular

Many of those symptoms do go hand in hand with celiac, and IBS is the most common misdiagnosis. (Being overweight does *not* "disqualify" someone from having the condition - he should read the NIH's own publications on the issue.)

Remember that he is being hired by you to provide a service. You *can* insist upon the testing, and if he still refuses, you can do the dietary challenge yourself - no doctor's note needed.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



ravenwoodglass Mentor
I just wanted to update everyone on what was going on. I went to my old doctor yesterday and he is so much better at listening. He thinks I have Crohn's but he also tested me for Celiac. So after the bloodwork comes back on that he wants me to get a colonoscopy. Which I'm really not looking forward to doing. I'm finishing up my last semester in college so not sure where that will fit in my schedule to take the time to deal with a colonoscopy. I feel a lot better now that I have a doctor who will listen to me. I'm really hoping it is celiac and not crohn's though. At least I know a change in my diet will help celiac. Thanks for all of your great advice. This really is an awesome board and I'm glad I found it!!

If they are going to make you go through a colonoscopy please insist that they do a endo at the same time and take lots of biopsies. If you have celiac the colonoscopy will not show it and celiac can cause crohn's symptoms. Also be aware that anything in the positive range on the blood tests is positive, even one point so make sure you get your hands on your actual results as some doctors will call a low positive a negative. In addition some of us never have positive bloodwork but still have celiac so I am hoping you are going to do the diet no matter what the tests say. Your body may prove the tests wrong.

Kyalesyin Apprentice

My wife was diagnosed with IBS, an underactive thyroid, clinical depression and had a totally uneccesary laparoscopy to examine the cause of her cramps, which 'could not possibly be a gut problem.'

If you go gluten-free and feel better, don't look back.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,660
    • Most Online (within 30 mins)
      7,748

    JerzeeGin
    Newest Member
    JerzeeGin
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Julie 911
      I finally got rhe answer and Tylenol is ok. Thanks everyone 
    • dublin555
      Hey Julie! I was in a similar situation before my biopsy and my gastro said Tylenol was fine. Just avoid ibuprofen or anything anti-inflammatory until you're cleared. Hope your surgery goes smoothly!
    • trents
      I don't see how cornstarch could alter the test results. Where did you read that?
    • knitty kitty
      For pain relief I take a combination of Thiamine (Benfotiamine), Pyridoxine B 6, and Cobalamine B12.  The combination of these three vitamins has analgesic effects.  I have back pain and this really works.  The B vitamins are water soluble and easily excreted.   Hope this helps!  Keep us posted on your results!
    • knitty kitty
      Welcome to the forum, @Xravith. I experienced similar symptoms before my diagnosis.  Mine were due to the loss of vitamins and minerals, essential nutrients we must get from our food.  With Celiac Disease, the intestinal lining, made up of thousands of villi, gets damaged and cannot absorb essential vitamins and minerals, especially the eight B vitamins.  The loss of Thiamine B 1 can cause muscle loss, inability to gain weight, edema (swelling), fatigue, migraines and palpitations.  Low thiamine can cause Gastrointestinal Beriberi with symptoms of nausea, abdominal pain and bloating.   Thiamine is only stored for a couple of weeks, so if you don't absorb enough from food daily, as the thiamine deficiency worsens physical symptoms gradually worsen.  If you're eating lots of carbs (like gluten containing foods usually do), you need more thiamine to process them (called high calorie malnutrition).  Thiamine works with all the other B vitamins, so if you're low in one, you're probably getting low in the others, too, and minerals like iron, magnesium, zinc, and calcium, as well as Vitamin D..  Talk to your doctor about checking for nutritional deficiencies.  Most doctors rarely recognize vitamin deficiency symptoms, especially in thiamine. Get a DNA test to see if you carry any Celiac genes.  If you do not have genetic markers for Celiac, it's probably IBS.  If you do have genetic markers for Celiac, it's probably Celiac.  I was misdiagnosed with IBS for years before my Celiac diagnosis.   Keep us posted on your progress. P. S. Deficiency in thiamine can cause false negatives on antibody tests, as can diabetes and anemia.  
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.