Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Results In....

Disney323

Recommended Posts

Disney323 Apprentice
Disney323
Posted

...dr. says our 17 month old son doesn't have celiac. He had a biopsy 10 days ago. He feels this could be a milk allergy. Our son was on hypoallergenic formula from 4weeks until 1 yr. becuase he had reactions to the milk. He ran more blood tests today for other foods because he feels this is a food allregy. Our son has damage in his small bowel and his esophogus. We have to have him dairy free for 2 weeks, if no improvement then on prilosec. Any thoughts about this? Could it still be celiac? (he tested high on one of the blood tests, but not the serum or ttga)

Andrea

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


confused Community Regular
confused
Posted
...dr. says our 17 month old son doesn't have celiac. He had a biopsy 10 days ago. He feels this could be a milk allergy. Our son was on hypoallergenic formula from 4weeks until 1 yr. becuase he had reactions to the milk. He ran more blood tests today for other foods because he feels this is a food allregy. Our son has damage in his small bowel and his esophogus. We have to have him dairy free for 2 weeks, if no improvement then on prilosec. Any thoughts about this? Could it still be celiac? (he tested high on one of the blood tests, but not the serum or ttga)

Andrea

Which blood test was high, was it the IgG?

And what new blood test did he run for food allergies?

paula

Disney323 Apprentice
Disney323
Posted
  • Author

Hi Paula,

I believe it was the Igg or the IGA. Honestly, I've had so many things thrown at me I don't know which end is up. He is running tests for milk, whey, wheat, fruits. and a lot more that I just don't know of. IGE too which I believe is for milk. Thanks for writing.

shayesmom Rookie
shayesmom
Posted
...dr. says our 17 month old son doesn't have celiac. He had a biopsy 10 days ago. He feels this could be a milk allergy. Our son was on hypoallergenic formula from 4weeks until 1 yr. becuase he had reactions to the milk. He ran more blood tests today for other foods because he feels this is a food allregy. Our son has damage in his small bowel and his esophogus. We have to have him dairy free for 2 weeks, if no improvement then on prilosec. Any thoughts about this? Could it still be celiac? (he tested high on one of the blood tests, but not the serum or ttga)

Andrea

The biopsy can only rule Celiac IN, it can never rule it OUT.

No matter what the results are, I would also follow up with an elimination diet in conjunction with keeping a food journal. It truly is the most accurate way of figuring out food issues.

Also, there are plenty of people out there who are gluten-sensitive and yet will never test positive for Celiac Disease....they just don't have the genes predisposing them to celiac disease. And yet, if you remove gluten from diet, they improve dramatically. This is one of those grey areas where you may have to follow through with your own methods of "testing" and rely on what you are actually observing. It's not an ideal situation (as compared with official doctor diagnosis), but it will give you accurate results.

Of course, this is all up to you to decide on how to proceed. Personally, I'd be worried about a prescription for Prilosec considering it can block calcium absorption and has been linked to osteoporosis in older people. There isn't any information on how it affects bones in young children. If it were me, I'd follow up with further allergy tests and dietary trial before committing to medication. Perhaps you can talk to your doc about following through with an elimination diet and having him also observe any changes.

With small bowel damage, the culprits are usually gluten, dairy, soy and/or corn. That's not to say that other food allergies couldn't be present....just that these foods are most commonly linked to small bowel damage.

2boysmama Apprentice
2boysmama
Posted
Also, there are plenty of people out there who are gluten-sensitive and yet will never test positive for Celiac Disease....they just don't have the genes predisposing them to celiac disease. And yet, if you remove gluten from diet, they improve dramatically.

This is us to a "T" (in fact Vicky was the one who helped me finally figure that out! LOL). Removing gluten from our diets has improved our health in SO many ways - and yet we don't carry the genes for celiac disease - "only" for gluten sensitivity.

pwalasik Newbie
pwalasik
Posted
This is us to a "T" (in fact Vicky was the one who helped me finally figure that out! LOL). Removing gluten from our diets has improved our health in SO many ways - and yet we don't carry the genes for celiac disease - "only" for gluten sensitivity.

What are the genes that indicate gluten sensitivity versus the genes that indicate possible predisposition for Celiac Disease? Thank you for any information regarding genes/ HLA typing.

shayesmom Rookie
shayesmom
Posted
What are the genes that indicate gluten sensitivity versus the genes that indicate possible predisposition for Celiac Disease? Thank you for any information regarding genes/ HLA typing.

Celiac Disease genes (as recognized in U.S.)

HLA-DQ2

HLA-DQ8

(Celiac genes recognized in other countries but not in U.S.)

HLA-DQ9

HLA-DR3

HLA-B8

HLA-DQ7

Gluten sensitivity genes

HLA-DQ1

HLA-DQ3

HLA-DQ5

HLA-DQ6

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Christine E Newbie
Christine E
Posted

From what I've read, children under three generally do not have positive blood tests because their immune systems are not fully developed until around age three. My son has gene DQ2, and the diet was successful at 13 months, but he has never had a positive blood test. His endoscopy showed "changes" in the cilia.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Scott Adams
      - Scott Adams replied to Francis M's topic in Gluten-Free Restaurants
      7

      The Happy Tart review

      Is this the same restaurant? https://www.facebook.com/TheHappyTartFallsChurch/ Is it too late to take this up with your credit card company? Normally you have a few months to do a chargeback with them. It seems very odd that they are taking this approach with someone who is likely to be a regular customer--not a good business-minded way of handling...
    2. Scott Adams
      - Scott Adams replied to Colleen H's topic in Related Issues & Disorders
      3

      Stomach burning and neuropathy

      Many people with celiac disease, especially those who are in the 0-2 year range of their recovery, have additional food intolerance issues which could be temporary. To figure this out you may need to keep a food diary and do an elimination diet over a few months. Some common food intolerance issues are dairy/casein, eggs, corn, oats, and soy. The...
    3. Scott Adams
      - Scott Adams replied to Me,Sue's topic in Related Issues & Disorders
      2

      Nausea

      Welcome to the forum. Is the nausea associated with eating certain foods, or anything else in particular? Many people with celiac disease, especially those who are in the 0-2 year range of their recovery, have additional food intolerance issues which could be temporary. To figure this out you may need to keep a food diary and do an elimination diet...
    4. Francis M
      - Francis M replied to Francis M's topic in Gluten-Free Restaurants
      7

      The Happy Tart review

      Absolutely my point with Kerrigan, the owner. She stood to secure many years of faithful patronage by simply inviting us in for a pastry or lunch. Or by simply producing another $50 e-card based on trust. We would have been highly satisfied. We are limited to a few restaurants in the area, and that would have been one. It was very disappointing, esp to my...
    5. trents
      - trents replied to Francis M's topic in Gluten-Free Restaurants
      7

      The Happy Tart review

      You would think any business would see the wisdom of honoring a $50 gift certificate on the basis of customer satisfaction alone, apart from any questions about software glitches.
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,851
    • Most Online (within 30 mins)
      7,748
    Samanthmay
    Newest Member
    Samanthmay
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Francis M
      The Happy Tart review

      By Francis M · Posted

      Thanks. Since the back and forth and promises of review and general stalling went on for more than six months, the credit company will no longer investigate. They have a cutoff of maybe six months.
    • Scott Adams
      The Happy Tart review

      By Scott Adams · Posted

      Is this the same restaurant? https://www.facebook.com/TheHappyTartFallsChurch/ Is it too late to take this up with your credit card company? Normally you have a few months to do a chargeback with them. It seems very odd that they are taking this approach with someone who is likely to be a regular customer--not a good business-minded way of handling things!
    • Scott Adams
      Stomach burning and neuropathy

      By Scott Adams · Posted

      Many people with celiac disease, especially those who are in the 0-2 year range of their recovery, have additional food intolerance issues which could be temporary. To figure this out you may need to keep a food diary and do an elimination diet over a few months. Some common food intolerance issues are dairy/casein, eggs, corn, oats, and soy. The good news is that after your gut heals (for most people who are 100% gluten-free this will take several months to two years) you may be able to slowly add some these items back into your diet after the damaged villi heal. This article may be helpful: The most common nutrient deficiencies associated with celiac disease that may lead to testing for the condition include iron, vitamin D, folate (vitamin B9), vitamin B12, calcium, zinc, and magnesium.  Unfortunately many doctors, including my own doctor at the time, don't do extensive follow up testing for a broad range of nutrient deficiencies, nor recommend that those just diagnosed with celiac disease take a broad spectrum vitamin/mineral supplement, which would greatly benefit most, if not all, newly diagnosed celiacs. Because of this it took me decades to overcome a few long-standing issues I had that were associated with gluten ataxia, for example numbness and tingling in my feet, and muscle knots--especially in my shoulders an neck. Only long term extensive supplementation has helped me to resolve these issues.        
    • Scott Adams
      Nausea

      By Scott Adams · Posted

      Welcome to the forum. Is the nausea associated with eating certain foods, or anything else in particular?  Many people with celiac disease, especially those who are in the 0-2 year range of their recovery, have additional food intolerance issues which could be temporary. To figure this out you may need to keep a food diary and do an elimination diet over a few months. Some common food intolerance issues are dairy/casein, eggs, corn, oats, and soy. The good news is that after your gut heals (for most people who are 100% gluten-free this will take several months to two years) you may be able to slowly add some these items back into your diet after the damaged villi heal. This article may be helpful:    
    • Francis M
      The Happy Tart review

      By Francis M · Posted

      Absolutely my point with Kerrigan, the owner. She stood to secure many years of faithful patronage by simply inviting us in for a pastry or lunch. Or by simply producing another $50 e-card based on trust. We would have been highly satisfied. We are limited to a few restaurants in the area, and that would have been one. It was very disappointing, esp to my wife, to realize we can't patronize the place anymore.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.