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Dizzy,tired

holdthegluten

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holdthegluten Rising Star
holdthegluten
Posted

Is constantly being dizzy and tired normal symptoms associated with celiac disease. I have been gluten free for a couple months and I always have tired eyes in the early afternoon, lightheaded and dizzy. I can hardly even focus while doing computer work. I cant tell if it is being caused by stress from my new job, anxiety from not feeling good for so long, or something actually seriously wrong. I dont have anemia or any malabsorption issues. What's going on..... is my dizziness caused by my tired eyes, or vice versa?

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rach6886 Newbie
rach6886
Posted

I also have felt light-headed and dizzy increasingly lately. I've been gluten-free for 7 months and have not recently changed my diet/lifestyle etc. Don't notice a distinct pattern of it happening only when I'm really hungry (I'm frequently REALLY hungry) and I know I'm eating enough food. It tends to happen when I stand up from my desk at work - but feels different from the starry eyed thing I get sometimes from blood pressure drop with change in position. Hmmm? Could this be an anemia type of thing? I feel like I'm adequately hydrated but maybe not??

Tritty Rookie
Tritty
Posted

I know exactly what you mean! Sometimes I even have it when I close my eyes. I just went gluten-free recently and I notice it more now - maybe because I feel better everywhere else?

ana Rookie
ana
Posted

I'm going to chime it as well. I've gotten so dizzy that i have to close my eyes sometimes to stop the room from spinning. I was thinking that it might be allergies here. but if you all are getting this and being newly gluten-free, maybe it's a symptom of being gluten-free? I was gonig to ask my doc in April when i go to my follow up.

rmmadden Contributor
rmmadden
Posted

I went through a tired and a dizzy period and all I can say is that they eventually passed. For the tiredness I drank Ensure (Watch....Chocolate Malt Flavor has gluten) and tried to get as much sleep as possible. As for the dizzy I just had to fight through it.

Best of Luck

Cleveland Bob B)

VioletBlue Contributor
VioletBlue
Posted
Is constantly being dizzy and tired normal symptoms associated with celiac disease. I have been gluten free for a couple months and I always have tired eyes in the early afternoon, lightheaded and dizzy. I can hardly even focus while doing computer work. I cant tell if it is being caused by stress from my new job, anxiety from not feeling good for so long, or something actually seriously wrong. I dont have anemia or any malabsorption issues. What's going on..... is my dizziness caused by my tired eyes, or vice versa?

I'm curious as to what you mean by "tired eyes"? One of my sisters was having trouble keeping her eye lids open after say three in the afternoon. She wasn't necessarily exhausted or sleepy, but just unable to keep her eye lids open. About two years ago her doctor diagnosed a type of auto immune syndrom that causes that. I thought that was somewhat odd at the time, but now, having been diagnosed with Celiac I don't find it odd at all. :rolleyes:

violet

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    • knitty kitty
      My only proof

      By knitty kitty · Posted

      You're right, doctors usually only test Vitamin D and B12.  Both are really important, but they're not good indicators of deficiencies in the other B vitamins.  Our bodies are able to store Vitamin B12 and Vitamin D in the liver for up to a year or longer.  The other B vitamins can only be stored for much shorter periods of time.  Pyridoxine B 6 can be stored for several months, but the others only a month or two at the longest.  Thiamine stores can be depleted in as little as three days.  There's no correlation between B12 levels and the other B vitamins' levels.  Blood tests can't measure the amount of vitamins stored inside cells where they are used.  There's disagreement as to what optimal vitamin levels are.  The Recommended Daily Allowance is based on the minimum daily amount needed to prevent disease set back in the forties when people ate a totally different diet and gruesome experiments were done on people.  Folate  requirements had to be updated in the nineties after spina bifida increased and synthetic folic acid was mandated to be added to grain products.  Vitamin D requirements have been updated only in the past few years.   Doctors aren't required to take as many hours of nutritional education as in the past.  They're educated in learning institutions funded by pharmaceutical corporations.  Natural substances like vitamins can't be patented, so there's more money to be made prescribing pharmaceuticals than vitamins.   Also, look into the Autoimmune Protocol Diet, developed by Dr. Sarah Ballantyne, a Celiac herself.  Her book The Paleo Approach has been most helpful to me.  You're very welcome.  I'm glad I can help you around some stumbling blocks while on this journey.    Keep me posted on your progress!  Best wishes! P.S.  interesting reading: Thiamine, gastrointestinal beriberi and acetylcholine signaling https://pmc.ncbi.nlm.nih.gov/articles/PMC12014454/
    • NanceK
      My only proof

      By NanceK · Posted

      So interesting that you stated you had sub clinical vitamin deficiencies. When I was first diagnosed with celiac disease (silent), the vitamin levels my doctor did test for were mostly within normal range (lower end) with the exception of vitamin D. I believe he tested D, B12, magnesium, and iron.  I wondered how it was possible that I had celiac disease without being deficient in everything!  I’m wondering now if I have subclinical vitamin deficiencies as well, because even though I remain gluten free, I struggle with insomnia, low energy, body aches, etc.  It’s truly frustrating when you stay true to the gluten-free diet, yet feel fatigued most days. I’ll definitely try the B-complex, and the Benfotiamine again, and will keep you posted. Thanks once again!
    • knitty kitty
      Has anyone had terrible TMJ/ Jaw Pain from undiagnosed Celiac?

      By knitty kitty · Posted

      Segments of the protein Casein are the same as segments of the protein strands of gluten, the 33-mer segment.   The cow's body builds that Casein protein.  It doesn't come from wheat.   Casein can trigger the same reaction as being exposed to gluten in some people.   This is not a dairy allergy (IGE mediated response).  It is not lactose intolerance.  
    • trents
      Has anyone had terrible TMJ/ Jaw Pain from undiagnosed Celiac?

      By trents · Posted

      Wheatwacked, what exactly did you intend when you stated that wheat is incorporated into the milk of cows fed wheat? Obviously, the gluten would be broken down by digestion and is too large a molecule anyway to cross the intestinal membrane and get into the bloodstream of the cow. What is it from the wheat that you are saying becomes incorporated into the milk protein?
    • Scott Adams
      Has anyone had terrible TMJ/ Jaw Pain from undiagnosed Celiac?

      By Scott Adams · Posted

      Wheat in cow feed would not equal gluten in the milk, @Wheatwacked, please back up extraordinary claims like this with some scientific backing, as I've never heard that cow's milk could contain gluten due to what the cow eats.
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