Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Food Intolerant Celiacs - How Do They Know?


kookaburra

Recommended Posts

kookaburra Rookie

I'm hearing about celiacs being intolerant to food other than gluten. I think I understand the milk intolerance (the damage causes lactose intolerance, but can reverse after a gluten free diet and after the stomach has healed for say 6 mos or so?) but what about the other common ones?

Can these be identified by IgE (immediate allergy) or IgG (delayed reaction) blood tests?

Part of the reason I ask is that my four year old has classic celiac sypmtoms but since we've already taken him off gluten, we may never get a paper diagnosis. His IgG & IgE allergy tests show reaction to egg, soy, dairy (& a few others). Is this the reaction celiacs typically have? Might these other food allergies go away over time? How does this work? Or is he reacting to the proteins like Celiac Disease?

Thank you for your replies, as I'm confused about the allergy connection.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



hathor Contributor

I think with an IgE reaction, it isn't going to go away at any point.

I haven't heard anyone with a casein intolerance (different than a lactose one) getting over it.

I've heard people say they could deal with substances they had problems with after eliminating gluten for awhile. But I don't know if they tested positive.

One other intolerance I've heard is common in celiacs is yeast. I did run across a study showing that the yeast antibodies went away for some after a strict gluten-free diet. This happened more with the younger patients. Open Original Shared Link Notice that these weren't IgE, though. I haven't seen anything similar for other intolerances.

I don't know that the IgG tests are the ultimate word. People seem to react to things that they don't have antibodies to or don't react to things where they do have the antibodies.

You can always try IgA testing through Enterolab. Their tests are said to work for up to a year after going off gluten. They also test for yeast.

When I asked, Enterolab told me that all my IgA reactions were permanent.

Archived

This topic is now archived and is closed to further replies.

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,206
    • Most Online (within 30 mins)
      7,748

    juliemt
    Newest Member
    juliemt
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Who's Online (See full list)

    • There are no registered users currently online
  • Upcoming Events

  • Posts

    • Scott Adams
      Celiac disease is the most likely cause, but here are articles about the other possible causes:    
    • xxnonamexx
      Please read: https://www.fda.gov/news-events/press-announcements/fda-takes-steps-improve-gluten-ingredient-disclosure-foods?fbclid=IwY2xjawPeXhJleHRuA2FlbQIxMABicmlkETFzaDc3NWRaYzlJOFJ4R0Fic3J0YwZhcHBfaWQQMjIyMDM5MTc4ODIwMDg5MgABHrwuSsw8Be7VNGOrKKWFVbrjmf59SGht05nIALwnjQ0DoGkDDK1doRBDzeeX_aem_GZcRcbhisMTyFUp3YMUU9Q
    • cristiana
      Hi @Atl222 As @trents points out, there could be many reasons for this biopsy result.  I am interested to know, is your gastroenterologist concerned?  Also, are your blood tests showing steady improvement over the years? I remember when I had my last biopsy, several years after diagnosis, mine came back with with raised lymphocytes but no villous damage, too! In my own case, my consultant wasn't remotely concerned - in fact, he said I might still get this result even if all I ever did was eat nothing but rice and water.   My coeliac blood tests were still steadily improving, albeit slowly, which was reassuring.
    • trents
      Welcome to the celiac.com community, @Atl222! Yes, your increased lymphocytes could be in response to oats or it could possibly be cross contamination from gluten that is getting into your diet from some unexpected source but not enough to damage the villi. And I'm certain that increased lymphocytes can be caused by other things besides celiac disease or gluten/oats exposure. See attachment. But you might try eliminating oats to start with and possibly dairy for a few months and then seek another endoscopy/biopsy to see if there was a reduction in lymphocyte counts. 
    • Scott Adams
      This is a solid, well-reasoned approach. You’re right that “koji” by itself doesn’t indicate gluten status, and the risk really does come down to which grain is used to culture it. The fact that you directly contacted Eden Foods and received a clear statement that their koji is made from rice only, with no wheat or barley, is meaningful due diligence—especially since Eden has a long-standing reputation for transparency. While the lack of gluten labeling can understandably give pause, manufacturer confirmation like this is often what people rely on for traditionally fermented products. As always, trusting your body after trying it is reasonable, but based on the information you gathered, your conclusion makes sense.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.