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Food Intolerant Celiacs - How Do They Know?


kookaburra

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kookaburra Rookie

I'm hearing about celiacs being intolerant to food other than gluten. I think I understand the milk intolerance (the damage causes lactose intolerance, but can reverse after a gluten free diet and after the stomach has healed for say 6 mos or so?) but what about the other common ones?

Can these be identified by IgE (immediate allergy) or IgG (delayed reaction) blood tests?

Part of the reason I ask is that my four year old has classic celiac sypmtoms but since we've already taken him off gluten, we may never get a paper diagnosis. His IgG & IgE allergy tests show reaction to egg, soy, dairy (& a few others). Is this the reaction celiacs typically have? Might these other food allergies go away over time? How does this work? Or is he reacting to the proteins like Celiac Disease?

Thank you for your replies, as I'm confused about the allergy connection.


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hathor Contributor

I think with an IgE reaction, it isn't going to go away at any point.

I haven't heard anyone with a casein intolerance (different than a lactose one) getting over it.

I've heard people say they could deal with substances they had problems with after eliminating gluten for awhile. But I don't know if they tested positive.

One other intolerance I've heard is common in celiacs is yeast. I did run across a study showing that the yeast antibodies went away for some after a strict gluten-free diet. This happened more with the younger patients. Open Original Shared Link Notice that these weren't IgE, though. I haven't seen anything similar for other intolerances.

I don't know that the IgG tests are the ultimate word. People seem to react to things that they don't have antibodies to or don't react to things where they do have the antibodies.

You can always try IgA testing through Enterolab. Their tests are said to work for up to a year after going off gluten. They also test for yeast.

When I asked, Enterolab told me that all my IgA reactions were permanent.

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  • Posts

    • trents
      Unfortunately, the development of celiac disease usually is not an end in and of itself. It usually brings along friends, given time. It is at heart an immune system dysfunction which often embraces other immune system dysfunctions as time goes on.
    • Celiacpartner
      Thanks so much for the responses. I will urge him to go for further investigation. To be 48yrs old and develop a new allergy.. ugh, As if celiac disease isn’t enough! 
    • trents
      This does not seem to be an anaphylactic response but I agree it would be wise to seek allergy-food sensitivity testing. You might look into ALCAT food sensitivity testing.
    • Rogol72
      @Celiacpartner, I agree with Scott. We have a food festival yearly in the town I live in, with artisan food stalls everywhere. I spoke to the owner of one of the artisan burger stalls, enquiring if the burgers were gluten-free when I said I was Coeliac ... he said he had a serious anaphylactic allergy to fish himself. He possibly carries an epi-pen or two everywhere he goes. I would go see an allergist as soon as possible as suggested.
    • Scott Adams
      After years of stable management, developing new symptoms to historically safe foods like nuts and fish strongly suggests a secondary issue has developed. It is highly unlikely to be a new gluten issue if the foods themselves are certified gluten-free. The most probable explanations are a new, separate food intolerance (perhaps to a specific protein in certain nuts or fish) or a true IgE-mediated food allergy, which can develop at any age. The symptoms you describe—cramps and the urge to vomit—can be consistent with either. It is crucial he sees an allergist for proper testing (like a skin prick or blood test) to identify the specific culprit and rule out a serious allergy, as reactions can sometimes worsen with repeated exposure.
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