Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Here Come The Tests...

christtheking

Recommended Posts

christtheking Contributor
christtheking
Posted

Hey folks, OK I met with my GI today (the clinic that actually links to this website from theirs). Actually I was a little disappointed, the Doc was 1 1/2 hours late and spent about 10 mins with me. Here's what we are going to do:

1. Edoscopy

2. Stool O+P, WBC

3. Blood CBC, CMP, UA, Antigliadin, antiendomesial, antibody, Iggi, IgA

4. Small bowel X-ray and Gall bladder Sono

Some of these codes I am unsure of, particularly the stool one. I hope this is comparable to what Enterolab lab offers although I have a suspicion that I'll be using them later. The Nurse was actually really rude when I asked her about YorkLab testing...she proceeded to tell me about her son whom she had test for allergies 23 years ago!!! I tried to mention that surely things had changed since then but I was talking to a brick wall. At any rate the Doc wants to see these results first and then proceed from there. Personally I'm still very keen to have these YorkLab tests done.

Well I'm back on Gluten for the time until I get through the tests. Comments, concerns, questions all welcome.

THANKS!

"Rejoice in the Lord always. Again I will say, rejoice!" PHILIPPIANS 4:4

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


plantime Contributor
plantime
Posted

From your list of tests, I'd say your doc is looking for more than celiac disease. Test #4 indicates to me that he is also looking for gall stones. I don't know what the stool test will show him, unless he is checking for blood. If you can get through to your doc, ask him if he is running Enterolabs stool test. It would be interesting to find out if he is.

judy04 Rookie
judy04
Posted

The stool test for oand p is for ova and parasites, it is common to do these

especially if you are having diarrhea.

christtheking Contributor
christtheking
Posted
  • Author

No I don't believe he is using Enterolab, and I don't have diarrhea so I'm a bit buggered on this one, though I suppose it can

tarnalberry Community Regular
tarnalberry
Posted

Good luck with the tests. Definitely need to continue eating wheat for those, though the side effects suck.

I haven't experienced that particular side effect, but I thought I've read of others saying they have...

kabowman Explorer
kabowman
Posted

My PCP just called after chatting with my GI and I am now scheduled for an EGD to look for, guess what, celiac disease and also Whipple Disease. My question then is this:

I will have been gluten-free for more than 3 months by then, will there still be damage to see? They will also be taking biopsies for further testing. They are not doing blood tests because I told my PCP that I was not going to eat gluten again and make myself sick. I can't even IMAGINE - I had some bread crumbs contaminate my lunch yesterday and I was SOOOO sick and it couldn't have been more than a few crumbs that got stuck to the plastic wrap - that is what I get for being in a hurry, never again!

Thanks...

-Kate

lovegrov Collaborator
lovegrov
Posted

Hard to say whether they will see damage. Depends on how much damage there is to start, how fast you heal, and possibly how many samples they take and how expert the person looking at the slides is. But if you get that sick from a few crumbs I would also forget about eating gluten. If they are going for reasons other than to look for celiac disease, I'd go ahead with it.

richard

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


  • 11 months later...
joycejj Newbie
joycejj
Posted
My PCP just called after chatting with my GI and I am now scheduled for an EGD to look for, guess what, celiac disease and also Whipple Disease. My question then is this:

I will have been gluten-free for more than 3 months by then, will there still be damage to see? They will also be taking biopsies for further testing. They are not doing blood tests because I told my PCP that I was not going to eat gluten again and make myself sick. I can't even IMAGINE - I had some bread crumbs contaminate my lunch yesterday and I was SOOOO sick and it couldn't have been more than a few crumbs that got stuck to the plastic wrap - that is what I get for being in a hurry, never again!

Thanks...

-Kate

<{POST_SNAPBACK}>

joycejj Newbie
joycejj
Posted

I am new to this, just read your post. My father has Celiac or something. Has been gluten free for 3 months (very strict, no cross-contamination) still has bad anemia (7.9 Hemaglobin and it has continued to progrees downward rather than in an upward direction ie. 9.4 to 8.4 to 7.9 over the last several months rather than upward.) Never did the small intestinal biopsy for proof and GI's blood test (gliadin IgA AB was barely elevated) while still on regular diet. Huge gastric improvement with gluten-free diet. Most all gastric (IBS-like symptoms) have gone away.

I am very interested that your doctor tested you for Whipple Disease. I think that is very forward thinking since it is such a rare disease. I am especially interested because I think my Dad may have that. He is 84 and it seems difficult to get tests for him since doc's seem to think that it is just his age. Maybe for his doctors his age makes him not so hopeful to cure perhaps. But we are in the process of being referred to a GI doctor that is very familiar with Whipple Disease.

It sounds like you may have a very good doctor to go to the extent to 1.) consider you could have Whipple Disease and 2.) actually test you for it.

How did your tests go? Any sign of Whipple Disease? I hope that your condition has improved since your post.

Any information would be greatly appreciated.

Thank you,

Joyce

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,590
    • Most Online (within 30 mins)
      7,748
    uhlissuh
    Newest Member
    uhlissuh
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • trents
      Potential celiac need advice

      By trents · Posted

      Welcome to the forum, @Ben98! If you have been consciously or unconsciously avoiding gluten because of the discomfort it produces then it is likely that your blood antibody testing for celiac disease has been rendered invalid. Valid testing requires regular consumption of generous amounts of gluten. The other strong possibility is that you have NCGS (Non Celiac Gluten Sensitivity) which shares many of the same symptoms with celiac disease but does not have the autoimmune component and thus does not damage the small bowel lining. It is 10x mor common than celiac disease. There is currently no test for NCGS. Celiac disease must first be ruled out. Some experts in the field believe it can be a precursor to the development of celiac disease. Having one or both of the primary genes for developing celiac disease does not imply that you will develop active celiac disease. It simply establishes the potential for it. About 40% of the population has the genetic potential but only about 1% develop active celiac disease. 
    • Ben98
      Potential celiac need advice

      By Ben98 · Posted

      TTG blood test and total IGA tested on many occasions which have always remained normal, upper GI pain under my ribs since 2022. I had an endoscopy in 2023 which showed moderate gastritis. no biopsy’s were taken unfortunately. genetic test was positive for HLADQ2. extreme bloating after eating gluten, it’ll feel like I’ve got bricks in my stomach so uncomfortably full. the pain is like a dull ache under the upper left almost like a stitch feeling after a long walk. I am just wanting some advice has anyone here experienced gastritis with a gluten issue before? thank you  
    • Wheatwacked
      Unusual bright yellow but odourless discharge

      By Wheatwacked · Posted

      "Conclusions: The urinary iodine level was significantly lower in women with postmenopausal osteoporosis, and iodine replacement may be important in preventing osteoporosis"  Body iodine status in women with postmenopausal osteoporosis Low iodine can cause thyroid problems, but Iodine deficiency will not show up in thyroid tests.  Iodine is important for healing, its job is to kill off defective and aging cells (Apoptosis). Skin, brain fog, nails, muscle tone all inproved when I started taking 600 mcg (RDA 150 - 1000 mcg) of Liquid Iodine drops. Some with dermatitis herpetiformis, Iodine exacerbates the rash.  I started at 1 drop (50 mcg) and worked up to 12 drops, but I don't have dermatitis herpetiformis.
    • cristiana
      How long does it take to gain weight?

      By cristiana · Posted

      That's great news, you can do this.  Let us know how things go and don't hesitate to ask if you have any more questions. Cristiana 😊
    • petitojou
      How long does it take to gain weight?

      By petitojou · Posted

      Thank you so much for sharing your experience and I found myself giggling with happiness as I read how your body reached such spring! And I hope that your current journey is also successful!! Definitely starting the food diary! So many amazing advices. And it’s very scary. It really hits all our soft spots as well as our confidence system. Most doctors I went thought I was underage despite being in my late 20s. Right now I look like am I twelve, but is also this body that’s taking so much, so I might as well love it too! Going to make the necessary changes and stay in this path. Thank you again! 🫶
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.