Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Here Come The Tests...

christtheking

Recommended Posts

christtheking Contributor
christtheking
Posted

Hey folks, OK I met with my GI today (the clinic that actually links to this website from theirs). Actually I was a little disappointed, the Doc was 1 1/2 hours late and spent about 10 mins with me. Here's what we are going to do:

1. Edoscopy

2. Stool O+P, WBC

3. Blood CBC, CMP, UA, Antigliadin, antiendomesial, antibody, Iggi, IgA

4. Small bowel X-ray and Gall bladder Sono

Some of these codes I am unsure of, particularly the stool one. I hope this is comparable to what Enterolab lab offers although I have a suspicion that I'll be using them later. The Nurse was actually really rude when I asked her about YorkLab testing...she proceeded to tell me about her son whom she had test for allergies 23 years ago!!! I tried to mention that surely things had changed since then but I was talking to a brick wall. At any rate the Doc wants to see these results first and then proceed from there. Personally I'm still very keen to have these YorkLab tests done.

Well I'm back on Gluten for the time until I get through the tests. Comments, concerns, questions all welcome.

THANKS!

"Rejoice in the Lord always. Again I will say, rejoice!" PHILIPPIANS 4:4

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


plantime Contributor
plantime
Posted

From your list of tests, I'd say your doc is looking for more than celiac disease. Test #4 indicates to me that he is also looking for gall stones. I don't know what the stool test will show him, unless he is checking for blood. If you can get through to your doc, ask him if he is running Enterolabs stool test. It would be interesting to find out if he is.

judy04 Rookie
judy04
Posted

The stool test for oand p is for ova and parasites, it is common to do these

especially if you are having diarrhea.

christtheking Contributor
christtheking
Posted
  • Author

No I don't believe he is using Enterolab, and I don't have diarrhea so I'm a bit buggered on this one, though I suppose it can

tarnalberry Community Regular
tarnalberry
Posted

Good luck with the tests. Definitely need to continue eating wheat for those, though the side effects suck.

I haven't experienced that particular side effect, but I thought I've read of others saying they have...

kabowman Explorer
kabowman
Posted

My PCP just called after chatting with my GI and I am now scheduled for an EGD to look for, guess what, celiac disease and also Whipple Disease. My question then is this:

I will have been gluten-free for more than 3 months by then, will there still be damage to see? They will also be taking biopsies for further testing. They are not doing blood tests because I told my PCP that I was not going to eat gluten again and make myself sick. I can't even IMAGINE - I had some bread crumbs contaminate my lunch yesterday and I was SOOOO sick and it couldn't have been more than a few crumbs that got stuck to the plastic wrap - that is what I get for being in a hurry, never again!

Thanks...

-Kate

lovegrov Collaborator
lovegrov
Posted

Hard to say whether they will see damage. Depends on how much damage there is to start, how fast you heal, and possibly how many samples they take and how expert the person looking at the slides is. But if you get that sick from a few crumbs I would also forget about eating gluten. If they are going for reasons other than to look for celiac disease, I'd go ahead with it.

richard

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


  • 11 months later...
joycejj Newbie
joycejj
Posted
My PCP just called after chatting with my GI and I am now scheduled for an EGD to look for, guess what, celiac disease and also Whipple Disease. My question then is this:

I will have been gluten-free for more than 3 months by then, will there still be damage to see? They will also be taking biopsies for further testing. They are not doing blood tests because I told my PCP that I was not going to eat gluten again and make myself sick. I can't even IMAGINE - I had some bread crumbs contaminate my lunch yesterday and I was SOOOO sick and it couldn't have been more than a few crumbs that got stuck to the plastic wrap - that is what I get for being in a hurry, never again!

Thanks...

-Kate

<{POST_SNAPBACK}>

joycejj Newbie
joycejj
Posted

I am new to this, just read your post. My father has Celiac or something. Has been gluten free for 3 months (very strict, no cross-contamination) still has bad anemia (7.9 Hemaglobin and it has continued to progrees downward rather than in an upward direction ie. 9.4 to 8.4 to 7.9 over the last several months rather than upward.) Never did the small intestinal biopsy for proof and GI's blood test (gliadin IgA AB was barely elevated) while still on regular diet. Huge gastric improvement with gluten-free diet. Most all gastric (IBS-like symptoms) have gone away.

I am very interested that your doctor tested you for Whipple Disease. I think that is very forward thinking since it is such a rare disease. I am especially interested because I think my Dad may have that. He is 84 and it seems difficult to get tests for him since doc's seem to think that it is just his age. Maybe for his doctors his age makes him not so hopeful to cure perhaps. But we are in the process of being referred to a GI doctor that is very familiar with Whipple Disease.

It sounds like you may have a very good doctor to go to the extent to 1.) consider you could have Whipple Disease and 2.) actually test you for it.

How did your tests go? Any sign of Whipple Disease? I hope that your condition has improved since your post.

Any information would be greatly appreciated.

Thank you,

Joyce

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. marlene333
      - marlene333 replied to Grace Good's topic in Gluten-Free Foods, Products, Shopping & Medications
      3

      Bee balm lipbalm not gluten free

      To play it safe, use Vasoline Lip Therapy. No questions as to it containing gluten.
    2. Mari
      - Mari replied to Jmartes71's topic in Coping with Celiac Disease
      4

      Related issues

      jmartes, Thank you for sharing more information with us. Most of us Celiacs whose problems do not clear up with in a few years have to decide what to do next. We can keep seeing DR.s and hope that we will get some medication or advice that will improve our health. Or we can go looking for other ways to improve our health. Usually Celiac Disease is...
    3. Scott Adams
      - Scott Adams replied to catsrlife's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      4

      Patiently Waiting to See Results

      It's unfortunate that they won't work with you on this, but in the end sometimes we have to take charge of our own health--which is exactly what happened to me. I did finally get the tests done, but only after years of going down various rabbit holes and suffering. Just quitting gluten may be the best path for you at this point.
    4. catsrlife
      - catsrlife replied to catsrlife's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      4

      Patiently Waiting to See Results

      My doctor didn't take the time to listen to anything. I don't even think she knows what it means. She is more concerned about my blood pressure that is caused by her presence than anything else and just wants to push pills at me. The so-called dermatologist wouldn't do a skin test. she prescribed all of these silly antihistamine skin meds. This lady...
    5. Jmartes71
      - Jmartes71 replied to Jmartes71's topic in Coping with Celiac Disease
      4

      Related issues

      I had the test done by one of the specialist through second pcp I had only a few months because he was saying I wasn't.Even though Im positive HLA-DQ2 .My celiac is down played.I am with new pcp, seeing another girl doctor who wants to do another breathe test next month though Im positive sibo this year.I have high blood pressure not sure if its pain from...
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      132,263
    • Most Online (within 30 mins)
      7,748
    Elyn Joy
    Newest Member
    Elyn Joy
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Who's Online (See full list)

    • There are no registered users currently online

  • Upcoming Events

  • Posts

    • marlene333
      Bee balm lipbalm not gluten free

      By marlene333 · Posted

      To play it safe, use Vasoline Lip Therapy. No questions as to it containing gluten.
    • Mari
      Related issues

      By Mari · Posted

      jmartes, Thank you for sharing  more information with us. Most of us Celiacs whose problems do not clear up with in a few years have to decide what to do next. We can keep seeing DR.s and hope that we will get some  medication or advice that will improve our health. Or we can go looking for other ways to improve our health. Usually Celiac Disease is not a killer disease, it is a disabling disease as  you have found out. You have time to find some ways to help you recover. Stay on your gluten-free diet and be more careful in avoiding cross contamination . KnittyKitty  and others here can give you advice about avoiding some foods that can give you the gluten auto immune reaction and advice about vitamins and supplement that help celiacs. You may need to take higher doses of Vit. B12  and D3.  About 20 years before a Dr. suggested I might have Celiac disease I had health problems that all other Dr said they could not identify or treat. I was very opposed to alternative providers and treatments. So many people were getting help from a local healer I decided to try that out. It was a little helpful but then, because I had a good education in medical laboraties she gave me a book  to read and what did I think. With great skeptism I started reading and before I was half way through it I began using the methods outlined in the book. Using those herbs and supplements I went from hardly able to work to being able to work almost fulltime. I still use that program. But because I had undiagnosed celiac disease by 10 years later some  of my problems returned and I started to loose weight.    So how does a person find a program that will benefit them? Among the programs you can find online there are many that are snake oil scams and some that will be beneficial. by asking around, as I did. Is there an ND in your area? Do they reccomend that person? If you would like to read about the program I use go to www.drclark.net   
    • Scott Adams
      Patiently Waiting to See Results

      By Scott Adams · Posted

      It's unfortunate that they won't work with you on this, but in the end sometimes we have to take charge of our own health--which is exactly what happened to me. I did finally get the tests done, but only after years of going down various rabbit holes and suffering. Just quitting gluten may be the best path for you at this point.
    • catsrlife
      Patiently Waiting to See Results

      By catsrlife · Posted

      My doctor didn't take the time to listen to anything. I don't even think she knows what it means. She is more concerned about my blood pressure that is caused by her presence than anything else and just wants to push pills at me. The so-called dermatologist wouldn't do a skin test. she prescribed all of these silly antihistamine skin meds. This lady didn't even know what she was talking about and said "they never turn out as celiac, they usually just say it's dermatitis so here's your meds," just like my regular quack. I'm trying to change insurance companies at the moment and that has been a battle because of red tape, wrong turns, and workers having wrong phone numbers. What a joke! The allergy blood days say I have a wheat allergy of .31. Hopefully it's just that and until I find a decent doctor and dermatologist, I'll just lay off the wheat anyway, since it gives me asthma, high blood sugar, and joint pain. So frustrated at this point. The rash on my back of arms/elbows is mostly gone. Both calves and chest have started up. smh. It comes and goes. It fades faster now, though, although my forearms still produce one or two bumps on each side. The itching has calmed down a lot except for the bump area. I have dry skin to begin with so anything affecting it just makes it crazy. i'm never going to eat wheat again. I don't care if they need it to produce results or if it is just an intolerance, allergy, or celiac. It gives me hell.
    • Jmartes71
      Related issues

      By Jmartes71 · Posted

      I had the test done by one of the specialist through second pcp I had only a few months because he was saying I wasn't.Even though Im positive HLA-DQ2 .My celiac is down played.I am with new pcp, seeing another girl doctor who wants to do another breathe test next month though Im positive sibo this year.I have high blood pressure not sure if its pain from sciatica or sibo, ibs or hidden gluten. Im in disability limbo and I should have never been a bus driver because im still suffering and trying to heal with zero income except for my husband. This isnt fare that my health is dictating my living and having ti beg for being revalidation of my disregarded celiac disease. Its an emotional roller coaster I don't want to be on and the medical made it worse.New pcp new gi, exhausted, tired and really fed up. GI doctor NOT girl..
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.