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My Little Experiment


Jenny1972

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Jenny1972 Rookie

Got fed up of doctors messing me about. Does she or doesn't she have celiacs so I decided to conduct a little experiment. Been gluten free for 3 month . Had a bread role at lunch time and within 2 hours my bowels exploded. Won't go into details but it wasn't nice. So much for blood tests. Will stick to gluten free dispite what doctors say!!!!


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Canadian Karen Community Regular

Can't get much more definitive that that! Even though I am one of those who has the confirmed bloodwork/biopsy diagnosis, I have come to the realization that the conventional testing for celiac is letting a whole society down - half of the world is gluten intolerant and no test yet shows that..... <_<

NoGluGirl Contributor

Dear Jenny1972,

Yep, I know what you are sayin'! I had negative blood work and biopsies done several years ago. It turn out, I am a Celiac! I have a very violent reaction. I can take up to twelve hours to react, but when it hits, it is bad! I have been gluten free for more than six months now. I have been glutened a lot lately though due to my parents' carelessness. They just think I am being a hypochondriac. They are not taking this illness as seriously as they should.

Sincerely,

NoGluGirl

Jenny1972 Rookie
Dear Jenny1972,

Yep, I know what you are sayin'! I had negative blood work and biopsies done several years ago. It turn out, I am a Celiac! I have a very violent reaction. I can take up to twelve hours to react, but when it hits, it is bad! I have been gluten free for more than six months now. I have been glutened a lot lately though due to my parents' carelessness. They just think I am being a hypochondriac. They are not taking this illness as seriously as they should.

Sincerely,

NoGluGirl

Felt really rough all weekend with pains in my legs and ankles and sooo tired today. Any idea how long it takes to get unglutened? Experiment was a good idea at the time but one I won't be repeating in a hurry.

Ursa Major Collaborator

Jenny, I am sorry you are still feeling bad. Unfortunately, it can take up to two weeks to feel better. I hope it will be a lot less for you.

Still, it was a good idea to try gluten, because now you know that you are definitely intolerant to it, forget about ignorant doctors.

NoGluGirl Contributor
Felt really rough all weekend with pains in my legs and ankles and sooo tired today. Any idea how long it takes to get unglutened? Experiment was a good idea at the time but one I won't be repeating in a hurry.

Dear Jenny1972,

Some people it takes longer than others to recover. At least now you know how sensitive you are so you will not be eager to cheat. I take anywhere between two days to a week to feel better. It varies. I have a violent reaction, too. So, even a microscopic amount makes me terribly sick. Luckily, I have promethazine on hand in case I need it. I hope you recover quickly!

Sincerely,

NoGluGirl

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    • trents
      knitty kitty asks a very relevant question. So many people make the mistake of experimenting with the gluten free diet or even a reduced gluten diet soon before getting formally tested.
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      Another great fiber option is dried apricots. Four of them give you 3g of fiber and I find they don't produce all the gas that some other high fiber options do. They taste good too. Costco sells a large bag of them that are labeled gluten-free so you don't have to worry about cross contamination issues like you might in bulk grocery settings.
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      Wow, that's alot of info, Thanks!!!! I had my intake with Nutrionist where we went over basics and then will have follow up where we will talk about all the questions I've come up with (including the fiber question and so many more). I'll talk to her about the info you provided as well.  Thanks again (newbie here 😀)
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    • knitty kitty
      @Trish G,  I like dates, they have lots if fiber as well.  But what I found helped most was taking Thiamine (in the form Benfotiamine which helps promote intestinal healing), Pyridoxine B 6, Riboflavin B 2, and magnesium, and Omega Three fats. The absorption of nutrients is affected by Celiac disease which damages the intestinal lining of the small intestines where our nutrients are absorbed.  If you have constipation, where your body is rather pushing your food away and not interacting with it, the nutrients in the food are not being released and absorbed.  You can develop deficiencies in all the vitamins and minerals necessary for the body to function properly.   The B vitamins cannot be stored for long, so they must be replenished daily.  Thiamine B 1 stores can run out in as little as three days.  Constipation (or diarrhea or alternating) is one of the first symptoms of thiamine deficiency.  Thiamine needs magnesium, Pyridoxine B 6, and Riboflavin B 2 to make the intestinal tract function.  Thiamine and Niacin make digestive enzymes.  Thiamine provides the energy for nerve impulses to carry messages to the brain and back about digestion.  Thiamine provides the energy for the muscle contractions which move your food through the digestive tract. High calorie meals containing lots of starches and sugars can deplete thiamine stores quickly because more thiamine is required to turn them into energy.   Are you taking any vitamin and mineral supplements?  Correction of malnutrition is very important in Celiac disease.  Thiamine, the other B vitamins and magnesium will help with constipation better than adding more fiber.  What did your nutritionist recommend you take, besides just the fiber? The association between dietary vitamin B1 intake and constipation: a population-based study https://pmc.ncbi.nlm.nih.gov/articles/PMC11100033/ Thiamine, gastrointestinal beriberi and acetylcholine signaling https://pmc.ncbi.nlm.nih.gov/articles/PMC12014454/ Association between dietary vitamin B6 intake and constipation: a population-based study https://pmc.ncbi.nlm.nih.gov/articles/PMC11584952/
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