Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):
    GliadinX



    Celiac.com Sponsor (A1-M):
    GliadinX


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Apraxia And Celiac


Guhlia

Recommended Posts

Guhlia Rising Star

Is there a link between apraxia and Celiac? Any info would be greatly appreciated.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):
Daura Damm
Holidaily Brewing Co.



Celiac.com Sponsor (A8-M):
Little Northern Bakehouse


ravenwoodglass Mentor

In our family there may have been a link. My DD lost all her speech at about a year and a half. She went from forming short sentences to screaming. It was a gradual process. She did recover speech with the aid of a speech therapist although at 8 she still sounded very 'babyish' by her early teen years her speech was normal.

Before diagnosis I had great difficulty myself with speech. Finding the right words for stuff often took so long that I was not an easy person to talk to. This has eased a lot. If I want a fork I can now say bring me a fork faster than I could get it myself.

flowergirl Rookie

I had the same problem as Ravenwoodglass. I had trouble expressing myself and forget what I wanted to say mid sentense. Social events were a nightmare and making decent conversation hard. People often perceived me as rude, cold or dumb. In my heart I know I am intelligent and I have heaps of inteligible things to say, but getting whats in my head into words and expressing them is difficult for me. I am ill at ease around people especially when they expect me to talk or push me for a response. I become anxious and frustrated at being unable to express myself properly. Since going gluten-free I am more relaxed, in control of my body and able to cope around people but I still prefer to keep quiet and say the minimum. My self image and confidence was greatly affected by this.

Flowergirl

Guhlia Rising Star

Thanks for your responses. There's a little girl that I care about very much who was just diagnosed with apraxia. She is tiny in size (I think she's still wearing 18month clothing at 2-1/2), constipated all the time, eats like a horse with no gain in height or weight, and only has a few words at 2-1/2 years old. I absolutely adore this little girl, but I don't know her parents or anything to suggest Celiac as a possible problem. I've suggested it to the only family of hers that I know, but I don't know if it'll make it's way back to this girl's parents. The father also has stomach issues, I don't know of what nature, but he tested negative for Celiac. I don't know if he's been tested recently with the newer tests. Anyway, I was just trying to put together a stronger link between apraxia and Celiac for them to approach their doctor with. I would be devastated if anything happened to this little girl and we all know how dangerous Celiac can be, especially with little ones.

flowergirl Rookie

I sincerely hope that you can find a way to bring the message accross to the parents and I hope they will investigate this further. Nobody needs to suffer like that. :(

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):
    Food for Life



  • Member Statistics

    • Total Members
      130,580
    • Most Online (within 30 mins)
      7,748

    Kim C.
    Newest Member
    Kim C.
    Joined

  • Celiac.com Sponsor (A20):
    Authentic Foods


  • Forum Statistics

    • Total Topics
      121.3k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):
    GliadinX




  • Celiac.com Sponsor (A21):
    Little Northern Bakehouse



  • Upcoming Events

  • Posts

    • Rejoicephd
      Thank you @knitty kitty I really appreciate that suggestion as a way to reset and heal my gut - i will look into it !! 
    • Ginger38
      I also had high eosinophils which I’ve never had before either - could that be due to gluten consumption? 
    • knitty kitty
      You're welcome! Be sure the patient eats at least ten grams of gluten per day for a minimum of two weeks prior to repeating antibody testing.   Some people unconsciously reduce the amount of gluten in their diet because the feel unwell.  Three grams of gluten per day is sufficient to produce symptoms.  Only at ten grams or more is the immune system provoked to raise the antibody production high enough so that the antibodies leave the digestive tract and enter the blood stream where they can be measured.   Read the comments below the article...  
    • Wamedh Taj-Aldeen
      Thanks for your response and thoughts. Total IgA is normal. HLA DQ2/DQ8 came as heterozygous and the interpretation of the lab that the risk of coeliac disease is mild to moderate. Thyroid function test is normal. I agree that the best way is to repeat tTG antibodies in 6 months time as the result was not massively high.  
    • knitty kitty
      Welcome to the forum, @Wamedh Taj-Aldeen, How is the patient's thyroid?   You could check for thiamine deficiency which can cause the thyroid to either become hyper or hypo.  TTg IgA can be high in both hyperthyroidism and hypothyroidism.  tTg IgA can also be high if patient is taking medications to stimulate the thyroid as in hypothyroidism.   Thanks for visiting!  Keep us posted!
×
×
  • Create New...