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Fiddle-Faddle

Prayer Request

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:( Hi, everybody.

Mamaw (Sande) emailed me that she was hospitalized with sudden major thyroid problems. Apparently, her thyroid suddenly became super-hyper, pumping out massive amounts of hormone that sent her heart into afib. I got the feeling from her that the doctors didn't seem to know what's causing this or what to do.

So please join me in some prayers on her behalf. Or post here if you have any clues on why a gluten-free celiac would suddenly develop this.

Thanks so much.

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Oh my goodness, I will certainly keep Sande in my prayers. I'm off to email her now.

I hope others will have some relevent information on the thyroid problem.

Thanks for letting us know :)


Patti

"Life is what happens while you're busy making other plans"

"When people show you who they are, believe them"--Maya Angelou

"Bloom where you are planted"--Bev

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Sounds perhaps like a thyroid storm. If this is the case, she is exactly where she needs to be - in the hospital.

http://www.medicinenet.com/script/main/art...rticlekey=77774

I will be sending positive vibes and prayers her way!

Hugs.

Karen


Karen

positive bloodwork, positive biopsy

Celiac, collagenous colitis, hypothyroidism

endometriosis (at age 20)

spinal stenosis (early 20's)

Biopsy August 2006 confirmed complete villous atrophy despite being gluten-free for years and bloodwork within range showing compliance with diet. Doctor has confirmed diagnosis of Refractory Celiac Sprue.

Endoscopy also showed numerous stomach ulcers, have started taking Losec.

Mother to Eileen 13 yrs

Rhiannon 8 yrs

Daniel & Connor 6 yr twin boys......

"Joyfulness keeps the heart and face young. A good laugh makes us better friends with ourselves and everybody around us."

Orison Swett Marden

Laughter is the shortest distance between two people.

-- Victor Borge

"An optimist laughs to forget. A pessimist forgets to laugh."

Tom Nansbury

"Doctor to patient: I have good news and bad news. The good news is that you are not a hypochondriac."

Unknown

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She will be in our thoughts and prayers. Please let her know that we are all thinking of her and sending her well wishes.


~Angie~

Gluten free since May 2004

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ADDING MY PRAYERS FOR SANDE ALSO.

I HAVEN'T READ KAREN'S LINK YET..BUT THAT WAS MY FIRST THOUGHT.

DID RESEARCH FOR MY ENDOCRINOLOGIST ON IT...

YES, SHE'S WHERE SHE SHOULD BE.

WHY...IT HAPPENED OR GLUTEN RELATED? DON'T HAVE A CLUE...

BUT...PRAYERS ARE BEING SENT.

JUDY


Judy in Southern CA

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I will pray for her....hope she recovers soon.

If the thyroid suddenly produces large amounts of hormone its called "thyroid storm"....it can be life threatening so its good that shes in the hospital.

Does she have Graves Disease or was she on thyroid hormones? It can happen to people with Graves or people who take more hormone than their body requires.

After I had radioactive iodine treatment for Graves...."thyroid storm" was something I had to watch out for. My thyroid hormones did soar to dangerous levels...I was given some meds which controlled it...I never had a thyroid storm.

Heres some things that can cause it...

CAUSES OF THYROID STORM

Besides surgery, thyroid storm is triggered by radioactive iodine therapy, uncontrolled diabetes, emotional stress, abrupt withdrawal of antithyroid (ATD) medication, excessive palpation of the thyroid gland in hyperthyroid patients, thyroid hormone overdose, pulmonary thromboembolism, toxemia of pregnancy, labor, trauma, acute infection, severe drug reaction or myocardial infection

http://www.suite101.com/article.cfm/graves_disease/54728


Rachel

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aww poor mamaw!! I'll be thinking of her too!!!! please keep us updated!

~ lisa ~


...Flames vs. Panthers, and Lifehouse, were best experiences OF MY LIFE!!...

...26 years old...

...Look in my forum profile for ways to read my public sports articles...

R.I.P. Uncle Gus (Sept. 21, 1971 - Oct. 2, 2004) ... R.I.P. Baba (Oct. 12, 1911 - Feb. 28, 2006) ... R.I.P. Uncle Lawrence (Aug. 7, 1943 - Jan. 4, 2009)

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Thanks to all of you have prayed for me... PLEASE continue.....

Yes, I did go into a thyroid storm & ended up in ICU.... I have really bad reactions to drugs which continue to play out in my saga....

It appears they do not know what is exactly happening with my thyroid. Three - four years ago I was HYPO, now I'm off the charts HYPER.... I know it is not from Lymes or anything like that. It took days for the docs to find something that would help me settle down the A Fib from the thyroid.

Now , I'm on a beta-blocker ( LOpressor) , they tried betapace but I got a cover your body hive & itch reaction to that... & when I call to tell the doctor what was going on -- he stated that no one is that allergic to drugs!!!! I even had hives on the soles of my feet....

Next drug is Diovan (for bp). : for the thyroid is at first Tapazole.....then I suddenly just sneezing my head off, then I can't close or open my mouth ( swelling in ear , jaw & mouth... I again call the doctors.... nope can't be the drugs.....

I finallly convince the endo doc to take me off the tapazole.... Little but some relief.....The cardio doc puts me on coudamin ( Blood thinner) & endo doc tries PTU for the thyroid....

Three days or so of these drugs my hands,wrists to upper arms goes fire engine red, swollen & the very worst pain I have ever endured... I could not use my upper limbs for several days... so that meant someone had to feed me ( through a straw at first because I couldn't chew with my jaw being so sore) to wiping my pink little butt.. I was so embarrassed...

So after this they put me on predisone ( steroid) which I refused because I already knew I reacted to that..Well I feel like I sold my soul to the devil.. I took the steroid. It did get the swelling to go down but the pain lingers on... so another steroid round whick I'm finishing tonite....

Now I just had bloodwork to try to find out what is causing all this pain... My liver function is now very elevated.... so It could be the combo of meds, the thyroid itself, an infection or anyone's guess at this point...

This has been the most amount of time typing this ,that I have been able to use my hands at all...

all of this & we have booked Disney for a family vacation April 21st. It was supposed to be a family trip with the grandchildren & children from us.Now I'm not sure I will make-it.We have pre-paid everything there even the food & reservations for dining. Our fifth wheel is packed & ready to roll---wished I was....

I truly want to thank Fiddle -Faddle ( Alison) for posting a prayer request on my behalf. I again ask that those of you who believe in faith continue to pray for me at this time..

My faith has lead me thus far & I believe in the power of the almighty.

I will try to post as this continues on.....

blessings to all

mamaw

Jersey Angel--- thanks so much for the private message. I will get back to you as soon as my hands start functioning again. right now this is all I got ---they are killing me....

.

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You are going through so much, it must be so hard on you and your family. I hope things get better soon. You remain in my prayers.

Krista


Courage does not always roar, sometimes courage is the quiet voice at the end of the day saying

"I will try again tommorrow" (Mary Anne Radmacher)

Diagnosed by Allergist with elimination diet and diagnosis confirmed by GI in 2002

Misdiagnoses for 15 years were IBS-D, ataxia, migraines, anxiety, depression, fibromyalgia, parathesias, arthritis, livedo reticularis, hairloss, premature menopause, osteoporosis, kidney damage, diverticulosis, prediabetes and ulcers, dermatitis herpeformis

All bold resoved or went into remission in time with proper diagnosis of Celiac November 2002

 Gene Test Aug 2007

HLA-DQB1 Molecular analysis, Allele 1 0303

HLA-DQB1 Molecular analysis, Allele 2 0303

Serologic equivalent: HLA-DQ 3,3 (Subtype 9,9)

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Thanks for the effort to update us mamaw.

We'll keep you and doctors in our prayers as well.

Hopefully you'll still be able to go on your vacation.


Andrea

Enterolab positive results only June 06:
Me HLA-DQB1 Molecular analysis, Allele 1 0201; HLA-DQB1 Molecular analysis, Allele 2 0301; Serologic equivalent: HLA-DQ 2,3 (subtype 2, 7)
Husband HLA-DQB1 Molecular analysis, Allele 1 0201; HLA-DQB1 Molecular analysis, Allele 2 0302; Serologic equivalent: HLA-DQ 2,3 (subtype 2,8)



The whole family has been soy free since February, gluten free since June 2006.

The whole family went back to a gluten diet October 2011.  We never had official testing done and I decided to give gluten a go again.  At this point I've decided to work on making some gluten free things again, though healthwise everyone seems to be fine.  The decision to add gluten back in was also made based on other things I'd read about the 2nd sequence of genes.  It is my belief that we had a gluten intolerance, but thanks to things I've learned here, I know more what to keep an eye on.  If you have a confirmed case of celiac, please don't go back to gluten, it's a lifelong lifestyle change.

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DITO..THE THANKS FOR THE EFFORT TO POST.

OMG..YOU POOR DEAR...WOULD BE NICE IF THE DOC'S COULD LISTEN..

PRAYERS CONTINUE

JUDY


Judy in Southern CA

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DITO..THE THANKS FOR THE EFFORT TO POST.

OMG..YOU POOR DEAR...WOULD BE NICE IF THE DOC'S COULD LISTEN..

PRAYERS CONTINUE

JUDY


Judy in Southern CA

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I just saw this - said a prayer for Sande right away. Hope you get better quickly and they figure out how to help you. I hope you get to make it to Disney.


Liz

Started Specific Carbohydrate Diet on 8-16-09 because son was diagnosed with Ulcerative Colitis and want to give him moral support.

Diagnosed with Minimal Change Nephrotic Syndrome in 2003. Discovered that going completely gluten-free put me in remission.

I would have despaired unless I had believed that I would see the goodness of the Lord in the land of the living. Psalms 27:13

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I will say some prayers and put her name on our local prayer network. :)

BamBam


Montana

Self-diagnosed after many tests and no results to feel better

Gluten Free since 8-6-2005

Lactose free for many years

Casein Free since 02/14/06

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Saw the first post & immediately thought thyroid storm. The nurse in me was ready to give info about it, but as I continued to read, it looks like you already have good info. So I did what I actually do best - PRAY. I will continue to pray for you & for the guidance of your caregivers.

God Bless,


Deb

Misdiagnosed:

1979 w/ IBS (atypical) & idiopathic epilepsy

1980's acid reflux, chronic appendicitis

1991 chronic severe pain (thought to be related to injuries & compensation for injuries)

1995 gallbladder surgery

2003 exzema (not responsive to treatment)

2006 pain put me into electric wheelchair

Recurrent depression & anxiety (1975-2006)

Diagnosed w/ Celiac Disease Feb. 2007

I am currently off of all seizure & pain meds & doing GREAT! I am walking w/o even a cane. Sleeping in regular bed now w/ lots of pillows, but back on reflux meds.

Low Gluten since June 2006 (by accident) gluten-free since Feb. 2007

Other problem foods: Shellfish/iodine, dark green leafy vegtables, ie: spinach, tunip (greens as well as the root) I can cheat a little w/ spinach if it is raw. I love it in salads. Caffeine is also problem(fibroid cystic disease) & Nutrasweet causes me to have seizures.

Mother of 3. One w/ celiac disease & lactose intollerant, one non-sympomatic (allergic to blueberries, red #3 & red #33) & one thanking God he is adopted (though he is diabetic). I also care for toddler who is allergic to gluten, peanuts & soy. She is also lactose intolerant.

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*more hugs* I cant imagine how how that is for you. I'll continue keeping you in my thoughts until your recovery <3

~ lisa ~


...Flames vs. Panthers, and Lifehouse, were best experiences OF MY LIFE!!...

...26 years old...

...Look in my forum profile for ways to read my public sports articles...

R.I.P. Uncle Gus (Sept. 21, 1971 - Oct. 2, 2004) ... R.I.P. Baba (Oct. 12, 1911 - Feb. 28, 2006) ... R.I.P. Uncle Lawrence (Aug. 7, 1943 - Jan. 4, 2009)

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Hi Everyone,

Here it is April 14 th already. I finally got use of my hands late last night. Who ever said Friday the 13th was bad!!!!

I actually feel sooooo much better but I'm very , very tired. Doctors still don't know what exactly happened to me but it appears the rotten steroids helped me..... I have little pain at present just tired. Doctors said again this could be the high meds they have me on. I haven't heard back from my second bwork with the elevated liver function as yet. Hopefully on Tues.

At this point we have decided not to waste our money & we are going to FLORIDA!!!!!!YEAH, I'm ready for some happy times right now! We are going to take our time & not push things.. I know I can not do a full day of disney without resting. My grandkids understand & they too said they will take a rest with me.. I'm so proud of them for being willing to rest a bit so I can enjoy their pleasure of disney. Ages 9 & 6.....

We have booked all our gluten-free dining so I won't have to worry about cooking....

I think when I get back the doctors will decide to do the RAI on my thyroid. They now will not let me have the thyroid surgery. I'm still concerned about the RAI. I can't help but ponder what will happen to me once they do that...... no going back after that....If only I wasn't sooo sensitive to drugs....

If you all wouldn't mind I would love to have your continued prayers....

Oh I think someone asked what I ate in the hospital.... Not much!!! egg, yogurt, tea for breakfast. ( gluten-free toast that was so hard it could have put out a window) (couldn't even bite into it!!! Lunch was tossed salad. Supper: tossed salad, grilled chicken breast, ice cream.... That is my menu for the total stay... Hubby brought in fruit.....our hospital just doesn't have it yet on the gluten-free diet. I hope (when I'm better) to meet with the dietary staff & let them know there are very good breads available besides the cardboard ,year long shelf life ones...

Again THANK YOU< THANK YOU for the support......

Blessings to one & all.

mamaw

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I am glad you are so much better. I hope you'll keep improving and will be able to enjoy your vacation with the kids. I'll be praying.


I am a German citizen, married to a Canadian 29 years, four daughters, one son, seven granddaughters and four grandsons, with one more grandchild on the way in July 2009.

Intolerant to all lectins (including gluten), nightshades (potatoes, tomatoes, peppers, eggplant) and salicylates.

Asperger Syndrome, Tourette Syndrome, Addison's disease (adrenal insufficiency), hypothyroidism, fatigue syndrome, asthma

------------------------------------------------------------------------------------------------------------------

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