Kind Of Scared To See My Dr. Tomorrow

[DElizabethE]

Hi,

As my Dr's app't gets closer I am kind of scared to see him. I'm not really sure why though...maybe because I've lost my faith in Dr's. My pain started over 14 months ago and I am still in pain. So 5 months gluten free and I know there's more to my problem (I am super careful especially with cc). I also see a ob/gyn specialist in a couple of weeks. Really tired of the pain and the ER. They know me very well up there but no one will help me.

Last May I weighed 128. By the time I was diagnosed I was 107...the other day I weighed in at 98, and I'm only 5'5". My last bloodwork had my levels going down and I hope things are back to normal. I also have no dairy, corn, soy or eggs. When the pain is really bad I feel as though I'm dying. I guess I'm scared he won't be any help or care or there's something seriously wrong. Just had to vent for a few minutes. Thanks for listening.

Diane

[Mtndog]

Hi,

As my Dr's app't gets closer I am kind of scared to see him. I'm not really sure why though...maybe because I've lost my faith in Dr's. My pain started over 14 months ago and I am still in pain. So 5 months gluten free and I know there's more to my problem (I am super careful especially with cc). I also see a ob/gyn specialist in a couple of weeks. Really tired of the pain and the ER. They know me very well up there but no one will help me.

Last May I weighed 128. By the time I was diagnosed I was 107...the other day I weighed in at 98, and I'm only 5'5". My last bloodwork had my levels going down and I hope things are back to normal. I also have no dairy, corn, soy or eggs. When the pain is really bad I feel as though I'm dying. I guess I'm scared he won't be any help or care or there's something seriously wrong. Just had to vent for a few minutes. Thanks for listening.

Diane

Hi Diane- Hang in there. The fact that you are losing so much weight (i'm the same height and the lowest I ever got down to was 119 and I looked like a skeleton) still should be big red flag. When I lost the weight I did they ran every test known to mankind on me just to rile other things out (I was tested for AIDS and lymphoma; tuberculosis and hepatitis). At least I know now that i don't have ANY of those.

Plus, most people seem to be in agreement that it really does take a long time to heal. I know that's not good news but if your bloodwork is going down that's a GOOD sign. I can honestly say that at first I noticed a HUGE difference but that lasted about a month and then I still didn't feel too hot for the rest of the first year.

The second year was much much better! I've got something going on now but as far as Celiac goes, my gut is much better. Make sure they test your thyroid and DEFINITELY ask why you are still losing weight.

It is scary, but this is a good place to VENT. Hugs, B

[DElizabethE]

Hi Diane- Hang in there. The fact that you are losing so much weight (i'm the same height and the lowest I ever got down to was 119 and I looked like a skeleton) still should be big red flag. When I lost the weight I did they ran every test known to mankind on me just to rile other things out (I was tested for AIDS and lymphoma; tuberculosis and hepatitis). At least I know now that i don't have ANY of those.

Plus, most people seem to be in agreement that it really does take a long time to heal. I know that's not good news but if your bloodwork is going down that's a GOOD sign. I can honestly say that at first I noticed a HUGE difference but that lasted about a month and then I still didn't feel too hot for the rest of the first year.

The second year was much much better! I've got something going on now but as far as Celiac goes, my gut is much better. Make sure they test your thyroid and DEFINITELY ask why you are still losing weight.

It is scary, but this is a good place to VENT. Hugs, B

Thanks B,

I am thankful that my Dr. finally diagnosed the celiac. Quicker than some people have it. And I really don't mind the gluten free diet. Just trying to make the most of it and how to cook healthier for me and my kids. Now the next part they need to figure out. I'm seeing an ob/gyn specialist in a couple of weeks to see if there's something there. I'm very tired of the ER and they know just give me an IV of demerol and send me home.

It's been affecting my job to the point it was in jeopardy. I have the perfect job at my 2 daughter's school working in the Special Ed dept. Most days I have to go in no matter how I feel.

I'm hoping my bloodwork is still improving or normal. Let's see if I can get this right...my IgG was 37 in Oct., down to 22 in Jan. My IgA 165 down to 48 and the tissue was 162 down to 84. Wish me luck tomorrow and thanks again.