Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Dr. Fine From Enterolab


lonewolf

Recommended Posts

lonewolf Collaborator

I only got to go to half of it, but was really happy to get to see Dr. Fine in person. After hearing him speak and seeing his presentation, which included research done by many others, I believe he is on the "up and up". I was a bit skeptical after reading everything here. A friend went with me and was very interested. She is a dental hygienist and actually went through most of nursing school, so she has a medical background and she thought it was all fascinating. She's going to experiment with a gluten-free diet for her family after the presentation. (Her daughter has an auto-immune thyroid condition and her husband has some issues too.)

He actually agrees that the gene test isn't necessary because almost everyone has two gluten sensitivity genes - common opinion here on this board. He is using the gene information in his research apparently - that's the last piece he's trying to finish up before it's published.

Just thought I'd share my observation. I know a lot of people here are leery of Dr. Fine and Enterolab, but after my morning I have a lot of respect for him.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



AndreaB Contributor

Thank you for posting this Liz.

We found out we all have at least one celiac gene from his testing. I'm still waiting for his publishing as well. I wonder if we'll have access to it, or if they'll annouce it when it is published.

Judyin Philly Enthusiast

thanks for posting liz

looking forward to him publishing.

judy

burdee Enthusiast

Thanks, Liz. I plan to attend Dr. Fine's presentation at the Bellingham GIG meeting on Monday night (6:30-8:30 pm). I want to personally thank his for founding his lab. When I suspected I had celiac disease I had suffered too much excruciating pain for too long to consider eating gluten for another day, much less 'gluten loading' for a blood test to tell me what I already knew. However after I abstained from gluten for a couple of months I STILL had problems. So I decided to do the Enterolab full panel of tests (gluten antibodies, casein antibodies, malabsorption, Ttg and celiac gene test. Even after 2 months of what I thought was strict gluten abstinence, I tested positive for everything except malabsorption (probably because I had taken digestive enzymes before taking the Elab tests). I previously thought I had 'lactose intolerance' and used lactaid tablets. So I was glad to discover I actually had dairy (milk) or casein intolerance. Without Elab tests I probably would have just kept trying to get well by avoiding gluten, but never considered casein.

I would like to hear Dr. Fine's speech, but I'm already convinced that Enterolabs helped me recover after years of misdiagnoses from my own HMO docs and guilt that I thought I caused my symptoms by bad eating habits. Well I guess that was partly true. Eating gluten, dairy, soy, eggs and cane sugar were pretty bad for me. LOL

BURDEE

Gentleheart Enthusiast

Anybody know Dr. Fine's speaking itinerary? Sure would like to hear him, but I'm not close to any large metropolitan areas.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,165
    • Most Online (within 30 mins)
      7,748

    melindakathleen
    Newest Member
    melindakathleen
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • DAR girl
      Looking for help sourcing gluten-free products that do not contain potato or corn derived ingredients. I have other autoimmune conditions (Psoriatic Arthritis and Sjogrens) so I’m looking for prepared foods as I have fatigue and cannot devote a lot of time to baking my own treats. 
    • Scott Adams
      I am so sorry you're going through this. It's completely understandable to feel frustrated, stressed, and disregarded after such a long and difficult health journey. It's exhausting to constantly advocate for yourself, especially when you're dealing with so many symptoms and positive diagnoses like SIBO, while still feeling unwell. The fact that you have been diligently following the diet without relief is a clear sign that something else is going on, and your doctors should be investigating other causes or complications, not dismissing your very real suffering. 
    • Oldturdle
      It is just so sad that health care in the United States has come to this.  Health insurance should be available to everyone, not just the healthy or the rich.  My heart goes out to you.  I would not hesitate to have the test and pay for it myself.  My big concern would be how you could keep the results truly private.  I am sure that ultimately, you could not.  A.I. is getting more and more pervasive, and all data is available somewhere.  I don't know if you could give a fake name, or pay for your test with cash.  I certainly would not disclose any positive results on a private insurance application.  As I understand it, for an official diagnosis, an MD needs to review your labs and make the call.  If you end up in the ER, or some other situation, just request a gluten free diet, and say it is because you feel better when you don't eat gluten.      Hang in there, though.  Medicare is not that far away for you, and it will remove a lot of stress from your health care concerns.  You will even be able to "come out of the closet" about being Celiac!
    • plumbago
      Yes, I've posted a few times about two companies: Request a Test and Ulta Labs. Also, pretty much we can all request any test we want (with the possible exception of the N protein Covid test and I'm sure a couple of others) with Lab Corp (or Pixel by Lab Corp) and Quest. I much prefer Lab Corp for their professionalism, ease of service and having it together administratively, at least in DC. And just so you know, Request a Test uses Lab Corp and Quest anyway, while Ulta Labs uses only Quest. Ulta Labs is cheaper than Request a Test, but I am tired of dealing with Quest, so I don't use them so much.
    • Scott Adams
      PS - I think you meant this site, but I don't believe it has been updated in years: http://glutenfreedrugs.com/ so it is best to use: You can search this site for prescriptions medications, but will need to know the manufacturer/maker if there is more than one, especially if you use a generic version of the medication: To see the ingredients you will need to click on the correct version of the medication and maker in the results, then scroll down to "Ingredients and Appearance" and click it, and then look at "Inactive Ingredients," as any gluten ingredients would likely appear there, rather than in the Active Ingredients area. https://dailymed.nlm.nih.gov/dailymed/   
×
×
  • Create New...