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Blunted Villi No Big Deal

nate78

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nate78 Rookie
nate78
Posted

My biopsy report said blunted villi. My doctor said I do not have Celiac blood test was neg. Is blunted villi no big deal.

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rumbles Newbie
rumbles
Posted

You might want to ask for a more thorough definition, and a second opinion. If it's anything other than a normal state or condition, it has a cause. It could be nothing, or it could be something that needs to be researched, defined and corrected, - you owe it to yourself to find out exactly what the doctor meant, and to verify the finding through a second opinion. If it's nothing, no harm done and you have peace of mind, - if it's something, than you're finding and taking steps to improve your health before the situation possibly gets out of control.

Pat

Gentleheart Enthusiast
Gentleheart
Posted
My biopsy report said blunted villi. My doctor said I do not have Celiac blood test was neg. Is blunted villi no big deal.

I'm confused by what your doctor said. Blunted villi may be common like he says, but it certainly IS a big deal. Like Ursa Major said in another post, blunted villi means you are not assimilating nutrients. That's certainly life altering.

What are all of these other supposed things that can cause blunted villi? Why doesn't he think it's merely celiac, which in your case seems to be the obvious conclusion from your childhood diagnosis? And besides, isn't he ultimately concerned as to WHY your villi are blunted. Is he content to let them stay that way just because you feel OK?

It's interesting to me that your doctor seems to be diagnosing you backwards. Most doctors take a blood test first. Be it negative or be it positive, they frequently then use the biopsy to confirm their diagnosis. This doctor seems to be giving the frequently fallible blood test credence over the biopsy. Weird.

I'd think long and hard before you plunge back into the gluten world. I'd take my tests to another physician knowledgeable about 21st century celiac and get a second opinion. Have you thought about using the enterolab tests? Sometimes they can fill in the missing puzzle pieces.

rumbles Newbie
rumbles
Posted

. . . as for the negative blood test, - that is not definitive. Blood tests are not 100 percent accurate. There are many of us here that tested negative on blood work and positive on biopsy.

Are you gluten free? - If so, has that reduced or alleviated symptoms? If you are having symptoms, and going gluten free gets rid of the symptoms, for many of us, that's really the answer. If you are not gluten free, and the doctor has completed all of the tests that they plan on, - you might want to consider going gluten free for two-to-three weeks and seeing if you notice a difference.

Best of luck, and best of health!

ravenwoodglass Mentor
ravenwoodglass
Posted

So now they are saying even the 'Gold Standard" isn't enough. Boy they sure don't want to lose the money they get from our visits and tests. Many of us do not show up in blood work. Your villi have been damaged and you need to get two things, another doctor and a gluten free and dairy (at first) diet.

ianm Apprentice
ianm
Posted

Your doctor is an idiot, find another one.

CMCM Rising Star
CMCM
Posted

Big SIGH :(:(:(:( Does the ignorance ever go away? Do they ever really figure it out (doctors)???

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