Taylor's Endoscopy Is Tomorrow

[TaylorsMom]

In my previous post I mentioned that Taylor's blood work came back negative for Celiac. We saw her GI last week and he still says that there is a fair chance that she does have celiac, but the blood tests were negative because she may still be evolving into the disease. So, I got a call yesterday and they want to do the endoscopy tomorrow! I had no idea that they would get us in so quickly! Now I'm a nervous wreck ! The procedure is at 11:00am tomorrow and then we will get the results on Thursday the 7th.

Please tell me that she won't be traumatized by this I know it needs to be done but I feel so sorry that she has to go through everything tomorrow. I have to give her an enema in the morning and that alone is going to bring me to tears to see her so uncomfortable

I'll update with any news....

Megan

[Boojca]

First off, how old is Taylor? I ask bc he/she cannot eat or drink before this procedure, and if Taylor is a young child that will be hell. Our hospital schedules these things youngest to oldest, so my son at 2 1/2 got to go at 8:30 am.

Also, an enema? Why? That wasn't part of our endoscopy. Hmmm...

But don't be terrified of the endoscopy itself. As I've said before, it was probably the easiest part of this whole ordeal! They "knock 'em out" for this procedure using a very low does of anesthesia. It does burn when it goes in (they do it through an IV) but it's like 10 seconds and then they fall asleep. The procedure is quick (20-30 minutes) and then it takes them like 30 minutes to "come out of it" and when my son did, the first thing he asked for was McDonald's. So, we had McDonalds and went home and I was hoping he'd want to lay low all day...no luck. He ran me ragged.

So, the whole endoscopy is a non-event for the kid and more stressful for us parents (just like everything, right!!??)

Good luck! Bridget

[TaylorsMom]

Bridget,

Taylor is 2 years old, just had her birthday last month. I wish the procedure was earlier in the morning but to be honest, I don't think Taylor will be too affected by it. She really doesn't enjoy eating anymore, so as long as she can have clear liquids she'll be fine. As far as the enema, I'm not exactly sure why I have to give her one, guess I should have asked the nurse. The only thing that I can think of is that in addition to the endoscopy they will also be doing a colonoscopy, so maybe that's why. The nurse even told me to buy her an adult size Fleet enema, and give her the whole 4 oz. But I don't have the heart to do that, so I bought the child size and will only give her the 2.5 that's in it.

I'm glad to hear that it isn't so bad on the kids, I hope Taylor's response is as good as your son's was.

Thanks,

Megan

[Boojca]

Hmmm....if you can, I'd call the on-call doc from the practice tonight. My son could not have anything to eat OR drink before his endoscopy. They don't want anything in there that could "come up" if they vomit.

Bridget

[Boojca]

SOOOO????? How did it go????

[TaylorsMom]

The endoscopy went well. The worst part for Taylor was having the IV put in. The worst part for me was watching her "go under" from the anesthesia. The GI said he didn't see anything to the naked eye but said that what we are looking for is microscopic so we have to wait for the results. We get the results on Thursday of this week in the evening at our follow-up appt. The only thing out of the ordinary, that I don't think is related to Celiac, is that she had something in her esophogus, he even gave me pictures of the something. He says it's either an infection like a yeast or thrush, or it's food particles. But since she had nothing to eat since the night before at dinner, he couldn't understand why it would be food particles. So, well have to wait and see on that too.

So yet again, we wait.....

Megan

[Boojca]

I'm just checking this now...so the results were? (for both the celiac disease and the thrush/yeast?)

Oh, and just so you know, it generally "always" looks normal in children. They haven't had years of damage yet. My doc said the same thing to me, freaked me out (bc then I was wondering if it's not celiac disease what could it be?!) and when I told the nurse what he said she rolled her eyes and explained the above to me. Made me feel much better. And of course it came back positive.

Bridget

[plantime]

I'm interested in hearing the results, too. I am really curious about the particles in her esophagus. I have never heard of anything like that before, and would like to know what the doc said about it.

[hjkmatthews]

Hi Megan!

I just got a chance to look at this board, it's been a long time! I also wanted to check on you and Taylor, and see what the results were from everything. I hope you are both doing well, let me know how everything is going.