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Test Results

alexp

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alexp Rookie
alexp
Posted

Hi, I had a celiac panel done and was told it was negative. My results were as follows:

Immunoglubulin A, serum:

IGA 71 (68-378)

Tissue Transglutaminase Ab, IgA

TTG IGA 0.2 (<7.0)

If anyone can let me know I would greatly appreciate it.

Thanks so much.

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chrissy Collaborator
chrissy
Posted

yep---those blood tests look negative for celiac.

alexp Rookie
alexp
Posted
  • Author

Hey Chrissy, thanks alot, I appreciate it.

ravenwoodglass Mentor
ravenwoodglass
Posted

They do appear negative but be aware that false negatives do happen. I am a prime example. Some of the permanent damage to my body might not have occurred if they had told me to try the diet instead of trusting the blood tests (and they did them over and over for years).

aikiducky Apprentice
aikiducky
Posted

Is that first test result for total IGA? If so, it looks like it's pretty low. If you have a low total IGA, the IGA TTG will also come out low regardless of if you have celiac or not, because it means that your body just doesn't produce much of that particular antibody. I would clarify that with your doctor.

I also agree that it's a good idea to try the diet for a while if you have symptoms that point to celiac. Eating gluten free isn't dangerous in any way, and it's always possible that it might help.

Pauliina

alexp Rookie
alexp
Posted
  • Author

Thanks everyone, I am going to the GI today and I will bring my results and ask him about that. Thanks Pauliina for giving me the heads up on that, I appreciate it.

chrissy Collaborator
chrissy
Posted

your total IgA is not low. it is within the normal range for the lab that your doctor used. if a person is IgA deficient, it will be obvious. my son is IgA deficient. the normal range for the lab that our doc used was 44-441. my son's total IgA was less than 6.

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confused Community Regular
confused
Posted
Thanks everyone, I am going to the GI today and I will bring my results and ask him about that. Thanks Pauliina for giving me the heads up on that, I appreciate it.

Did you ever find out anything at your appt.

paula

alexp Rookie
alexp
Posted
  • Author

He told me that they were fine and that I didn't have celiac, because I wasn't anemic and didn't have diarrhea. He was a nice guy but definitely an old school doctor. But I was having an endoscopy done anyways so he did a biopsy for me which I thought was nice. I just hope the insurance covers it. He said it would but who knows.

chrissy Collaborator
chrissy
Posted

definitely old school if he still thinks that you have to be anemic and have diarrhea in order to "really" have celiac disease. my 3 girls were not anemic and only one of them got diarrhea---(and not all the time).

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  • Posts

    • kpf
      ttg iga high (646 mg/dl) other results are normal

      By kpf · Posted

      I think you may be correct. The way the results are printed makes it appear as though it’s the ttg iga but I think you’re right—the 646 is total iga. So this would be indicative of another issue (another autoimmune condition, infection, cancer, etc.) and my doctor would need to do further testing. Thank you for saying this! 
    • RMJ
      ttg iga high (646 mg/dl) other results are normal

      By RMJ · Posted

      Are you sure that is the TTG IgA? Based on the units (mg/dL) and having an upper limit to the normal range, it looks like a total IgA result. 
    • kpf
      Vegetarians and vegans with celiac disease

      By kpf · Posted

      I am wondering if there are any vegetarians or vegans on this forum. I’ve been vegan for 15+ years and am just finding out I likely have celiac disease (blood panel done, need biopsy). My favorite foods—outside of vegetables, fruits, nuts, seeds—I will likely have to give up. Anyone else? 
    • trents
      Fiber Supplement

      By trents · Posted

      Welcome to the forum, @Trish G! "Gluten free" does not necessarily equate to "no gluten". According to FDA standards it actually means that a food product contains no more than 20ppm of gluten. This is safe for most celiacs but would not be for those who are on the more sensitive end of the spectrum. So, it would depend on the individual celiac and their level of sensitivity to minor amounts of gluten. That's the long and nuanced answer. The short answer is that it is a product derived from wheat and so you can be certain it will contain some residual amounts of gluten. No gluten removal process is 100% effective. So, to be absolutely certain, stay away from it. Have you tried chia seeds? Very high in fiber and quickly turns into a gel when added to water. Make sure you get seeds that are gluten free if you decide to try it.
    • Trish G
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      I was taking Benefiber for my IBS-C before my celiac diagnosis. It does say Gluten Free but lists Wheat Dextrin on the label. I really dont like psyllium fiber, so is there anything else I can take or is the Benefiber really ok for someone with Celiac disease?  Thanks!!!
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