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Test Results

alexp

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alexp Rookie
alexp
Posted

Hi, I had a celiac panel done and was told it was negative. My results were as follows:

Immunoglubulin A, serum:

IGA 71 (68-378)

Tissue Transglutaminase Ab, IgA

TTG IGA 0.2 (<7.0)

If anyone can let me know I would greatly appreciate it.

Thanks so much.

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chrissy Collaborator
chrissy
Posted

yep---those blood tests look negative for celiac.

alexp Rookie
alexp
Posted
  • Author

Hey Chrissy, thanks alot, I appreciate it.

ravenwoodglass Mentor
ravenwoodglass
Posted

They do appear negative but be aware that false negatives do happen. I am a prime example. Some of the permanent damage to my body might not have occurred if they had told me to try the diet instead of trusting the blood tests (and they did them over and over for years).

aikiducky Apprentice
aikiducky
Posted

Is that first test result for total IGA? If so, it looks like it's pretty low. If you have a low total IGA, the IGA TTG will also come out low regardless of if you have celiac or not, because it means that your body just doesn't produce much of that particular antibody. I would clarify that with your doctor.

I also agree that it's a good idea to try the diet for a while if you have symptoms that point to celiac. Eating gluten free isn't dangerous in any way, and it's always possible that it might help.

Pauliina

alexp Rookie
alexp
Posted
  • Author

Thanks everyone, I am going to the GI today and I will bring my results and ask him about that. Thanks Pauliina for giving me the heads up on that, I appreciate it.

chrissy Collaborator
chrissy
Posted

your total IgA is not low. it is within the normal range for the lab that your doctor used. if a person is IgA deficient, it will be obvious. my son is IgA deficient. the normal range for the lab that our doc used was 44-441. my son's total IgA was less than 6.

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confused Community Regular
confused
Posted
Thanks everyone, I am going to the GI today and I will bring my results and ask him about that. Thanks Pauliina for giving me the heads up on that, I appreciate it.

Did you ever find out anything at your appt.

paula

alexp Rookie
alexp
Posted
  • Author

He told me that they were fine and that I didn't have celiac, because I wasn't anemic and didn't have diarrhea. He was a nice guy but definitely an old school doctor. But I was having an endoscopy done anyways so he did a biopsy for me which I thought was nice. I just hope the insurance covers it. He said it would but who knows.

chrissy Collaborator
chrissy
Posted

definitely old school if he still thinks that you have to be anemic and have diarrhea in order to "really" have celiac disease. my 3 girls were not anemic and only one of them got diarrhea---(and not all the time).

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    • knitty kitty
      My only proof

      By knitty kitty · Posted

      You're right, doctors usually only test Vitamin D and B12.  Both are really important, but they're not good indicators of deficiencies in the other B vitamins.  Our bodies are able to store Vitamin B12 and Vitamin D in the liver for up to a year or longer.  The other B vitamins can only be stored for much shorter periods of time.  Pyridoxine B 6 can be stored for several months, but the others only a month or two at the longest.  Thiamine stores can be depleted in as little as three days.  There's no correlation between B12 levels and the other B vitamins' levels.  Blood tests can't measure the amount of vitamins stored inside cells where they are used.  There's disagreement as to what optimal vitamin levels are.  The Recommended Daily Allowance is based on the minimum daily amount needed to prevent disease set back in the forties when people ate a totally different diet and gruesome experiments were done on people.  Folate  requirements had to be updated in the nineties after spina bifida increased and synthetic folic acid was mandated to be added to grain products.  Vitamin D requirements have been updated only in the past few years.   Doctors aren't required to take as many hours of nutritional education as in the past.  They're educated in learning institutions funded by pharmaceutical corporations.  Natural substances like vitamins can't be patented, so there's more money to be made prescribing pharmaceuticals than vitamins.   Also, look into the Autoimmune Protocol Diet, developed by Dr. Sarah Ballantyne, a Celiac herself.  Her book The Paleo Approach has been most helpful to me.  You're very welcome.  I'm glad I can help you around some stumbling blocks while on this journey.    Keep me posted on your progress!  Best wishes! P.S.  interesting reading: Thiamine, gastrointestinal beriberi and acetylcholine signaling https://pmc.ncbi.nlm.nih.gov/articles/PMC12014454/
    • NanceK
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    • knitty kitty
      Has anyone had terrible TMJ/ Jaw Pain from undiagnosed Celiac?

      By knitty kitty · Posted

      Segments of the protein Casein are the same as segments of the protein strands of gluten, the 33-mer segment.   The cow's body builds that Casein protein.  It doesn't come from wheat.   Casein can trigger the same reaction as being exposed to gluten in some people.   This is not a dairy allergy (IGE mediated response).  It is not lactose intolerance.  
    • trents
      Has anyone had terrible TMJ/ Jaw Pain from undiagnosed Celiac?

      By trents · Posted

      Wheatwacked, what exactly did you intend when you stated that wheat is incorporated into the milk of cows fed wheat? Obviously, the gluten would be broken down by digestion and is too large a molecule anyway to cross the intestinal membrane and get into the bloodstream of the cow. What is it from the wheat that you are saying becomes incorporated into the milk protein?
    • Scott Adams
      Has anyone had terrible TMJ/ Jaw Pain from undiagnosed Celiac?

      By Scott Adams · Posted

      Wheat in cow feed would not equal gluten in the milk, @Wheatwacked, please back up extraordinary claims like this with some scientific backing, as I've never heard that cow's milk could contain gluten due to what the cow eats.
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