Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Hello( Im New To This)


dannynyc22

Recommended Posts

dannynyc22 Newbie

whats up everyone,

My name is Danny from Fort Lauderdale, Fl. just got DX with celiac approx. 2 months ago. After my DX, i started shopping at a place called Whole Foods, which is nothing but organic foods and some gluten free items. As far as i know, i've been strict with my diet but it seems like i still have minor symptoms. i know i should be asking my doctor but sometimes is better asking someone with the same issue. Any advice would be greatly appreciated.

By the way, is there anyone that knows of any celiac groups/ meetings in south florida that i could attend to???

Sincerely,

Danny


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



angel42 Enthusiast

Hi!

Welcome to the forum! I love whole foods. I am there almost every day. I would be careful about some of their prepared food. I have gotten sick on more than one occasion from the prepared foods. One time they swore up and down that their eggplant did not have bread crumbs and after three people went to find out and they had already packaged my food they came back and told me that they had mixed up the signs and the eggplant did have breadcrumbs. They gave me a different eggplant dish which they swore up and down was fine and I still got sick. Most of their stuff is fine but don't count on the staff for help.

Lisa Mentor

Danny, welcome.

You need to remember that it took some time to do some damage to your intestines and like-wise, it will take some time to heal. You may continue to have symptoms because the gluten free diet is not an immediate fix.

Make sure that you check you toiletries, shampoos, lotions, lip balm or ANYTHING that can get into your mouth. Gluten can hide everywhere.

I would recommend that you be diary light, if not off all dairy in the beginning. If you have villi damage dairy can cause the same symptoms as gluten, without the intestinal damage.

I have found that the best source of gluten free and related issues answers are here on this site. This is where the experts are. Always feel free to ask away.

dannynyc22 Newbie

Ok cool. It is nice to know all this. My doctor only told me stay off bread and pasta, but i come to find out theres alot more to that.

I appreciate all the information given to me and will make sure to keep that in mind.

Thanks a million

Danny

PS: If feels very nice to know that im not alone, and that theres people willing to give out a hand.

Guest lorlyn

Hey Danny just wanted to hi and welcome :rolleyes: our doc told us to read on this site because he could not tell us how to live a gluten free diet. If you have any questions this is the place for answers. I have learned so much here. Whole Foods is a good place to get special gluten-free food that you cant find at other stores. Just make sure to read labels always because companies can change at any time. Good luck and let us know if you need any help.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Roses8721 replied to Roses8721's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      9

      GI DX celiac despite neg serology and no biopsy

    2. - Ginger38 replied to Ginger38's topic in Related Issues & Disorders
      6

      Shingles - Could It Be Related to Gluten/ Celiac

    3. - Scott Adams replied to Silk tha Shocker's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Help

    4. - Silk tha Shocker posted a topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Help

    5. - trents replied to Roses8721's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      9

      GI DX celiac despite neg serology and no biopsy


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,478
    • Most Online (within 30 mins)
      7,748

    Susan Gutenberger
    Newest Member
    Susan Gutenberger
    Joined

  • Celiac.com Sponsor (A20):



  • Celiac.com Sponsor (A22):




  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Roses8721
      Yes, i pulled raw ancetry data and saw i have 2/3 markers for DQ2.2 but have heard from friends in genetics that this raw data can be wildly innacurate
    • Ginger38
      Thanks, I’m still dealing with the pain and tingling and itching and feeling like bugs or something crawling around on my face and scalp. It’s been a miserable experience. I saw my eye doc last week, the eye itself was okay, so they didn’t do anything. I did take a 7 day course of an antiviral. I’m hoping for a turnaround soon! My life is full of stress but I have been on / off the gluten free diet for the last year , after being talked into going back on gluten to have a biopsy, that looked okay. But I do have positive antibody levels that have been responsive  to a gluten free diet. I can’t help but wonder if the last year has caused all this. 
    • Scott Adams
      I don't think any apps are up to date, which is exactly why this happened to you. Most of the data in such apps is years old, and it doesn't get updated in real time. Ultimately there is no substitution for learning to read labels. The following two lists are very helpful for anyone who is gluten sensitive and needs to avoid gluten when shopping. It's very important to learn to read labels and understand sources of hidden gluten, and to know some general information about product labelling--for example in the USA if wheat is a possible allergen it must be declared on a product's ingredient label like this: Allergens: Wheat.      
    • Silk tha Shocker
      What is the best gluten free scanner app? I have the "gluten-free Scanner" app. I scanned an almond joy and it says it contains gluten when the package is labeled gluten free
    • trents
      Certainly, it would b wise to have a gene test done if your physician is open to it as it would provide some more data to understand what's going on. But keep in mind that the genetic test for celiac disease cannot be used as to diagnose celiac disease, only to establish the potential to develop active celiac disease. About 40% of the general population possess one or both of the primary genes known to be associated with the development of active celiac disease but only about 1% of the population actually develop active celiac disease. So, the gene test is an effective "rule out" tool but not an effective diagnostic tool.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.