Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

I Thought You All Would Enjoy This....


Eriella

Recommended Posts

Eriella Explorer

I am a college student and we are in the long process of getting diagnosed (long before I knew what celiacs was and that it ran in my family I told my doctors that bread was making me sick). I finally asked my campus health center if they could run a blood test for me and they asked me what celiacs was :blink: . When I told her, she said that she had no clue what tests to even run for it. You wonder why it is so under diagnosed?

On the plus side, my GI was able to order the tests over state lines so I can finally get an answer.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Fiddle-Faddle Community Regular

Shocking.

May I suggest that you either print out some of celiac.com or get a copy of Peter Green's book on celiac to give to them? Unfortunately, they're just not gonna learn until we teach them...(sigh)

BTW, I hope you feel better soon. You do know you have to keep eating gluten for the tests to be accurate?

Eriella Explorer
Shocking.

May I suggest that you either print out some of celiac.com or get a copy of Peter Green's book on celiac to give to them? Unfortunately, they're just not gonna learn until we teach them...(sigh)

BTW, I hope you feel better soon. You do know you have to keep eating gluten for the tests to be accurate?

Yep, which is why I am currently 3 feet away from the bathroom. Tomorrow after my test I am going to go gluten-free until my follow-up appointment with my GI at the end of June. If I respond positively to the absence of gluten, regardless of the test results, I am staying off of it. We just need a diagnosis so that I can have gluten free food at school.

I will definitely pass along the information to the office. Thanks for the idea!

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      130,447
    • Most Online (within 30 mins)
      7,748

    Yogasun
    Newest Member
    Yogasun
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.3k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):




  • Who's Online (See full list)


  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • maryannlove
      Thought was finished with this but a friend just sent email saying she takes Tirosin liquid levothyroxine which has no fillers (mentioned by Pgetha above).  Friend's doc sends script to one of Tirosin's direct-mail pharmacies.  Looking that up, government insurance (Medicare/Medicaid) doesn't cover (as Pgetha wrote above).  But if use one of their direct-mail places three month supply is $57/month.  Researching that, happened to learn Yaral also makes a generic gluten-free levothyroxine.  
    • knitty kitty
      Lysine is helpful for "cold sores" (oral herpes).
    • knitty kitty
      @Wheatwacked, Are you aware of the interaction of potassium iodide and losartan ?   https://www.drugs.com/drug-interactions/iodine-potassium-iodide-with-losartan-1368-0-1489-0.html#:~:text=Talk to your doctor before,to safely use both medications.
    • dmallbee
      As a life.long celiac, I understand this.  I simply ask that the medical profession stop disregarding the fact that it should remain a concern for some. It cost me a lot of medical discomforts.
    • trents
      @dmallbee, about 8% of celiacs react to the oat protein avenin like they do to the wheat protein gluten. In addition, there are some cultivars of oats that apparently do actually contain gluten.
×
×
  • Create New...