Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Are We Thinking About This The Right Way?


SpikeMoore

Recommended Posts

SpikeMoore Apprentice

Hi Everyone

I am wondering if our thought processes may be backward. I am thinking about all of the related conditions and wondering if celiac causes related condidtions instead of being just associated with them. There would have to be a wide spectrum of individual response to account for the wide variety of assoicated condidtions. But what if the gluten response triggered these different condidtions in different individuals, eg thyroid, liver, epilepsy, diabetes problems or if these other problems have a common link to make people celiac.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



UNCHeel Rookie

I imagine that the next 10 years will bring much enlightenment.

ravenwoodglass Mentor
Hi Everyone

I am wondering if our thought processes may be backward. I am thinking about all of the related conditions and wondering if celiac causes related condidtions instead of being just associated with them. There would have to be a wide spectrum of individual response to account for the wide variety of assoicated condidtions. But what if the gluten response triggered these different condidtions in different individuals, eg thyroid, liver, epilepsy, diabetes problems or if these other problems have a common link to make people celiac.

I agree. We really need to get the medical world to open their eyes.

The antibody reaction is an extrememly destructive one and really can seriously impact people before the doctors even think to look for a cause. Symptom relief is what it is all about and the drugs that supply that relief.

One of the biggest issues IMHO is the celiac related depression and anxiety that many of us suffer. I get so angry when I see the TV ads for antidepressants. So many folks go and ask for this drug and that one and doctors are so ignorant about finding the true cause they just hand out the pills.

My family was not only not helped by antidepressants they caused irrational thought processes, violent ideology, self destuctive behaviors and suicidal thoughts and preperations. The 'cure' was far worse than the 'disease' in this instance. And I don't think my families experience was unusual. Just look at what they have to say about many of the young people who commit horrendous acts. I wonder how many of these people, who they say have been seen for depression, were reacting to the drugs they were taking for it?

I also wonder how many are diabetic because of undiagnosed celiac? They are at least starting to open their eyes on this issue. My doctor has stated that there is not a doubt in his mind that if I had been diagnosed in childhood when I should have been that I would not have develped diabetes.

Oh and lets not forget arthritis, mine was so bad that even typing was impossible, I was given script after script to help control the pain (some later pulled from the market). Within a few months gluten-free my arthritis was completely 'in remission' and I can move as well as I could in my 20's. The joint damage remains but there is no pain anymore. Not even with an accidental glutening.

Oh and let's not forget inferility of unknown origin. They have confirmed that it is not the malabsorption that prevents many of us from concieving or early miscarriage but they don't know what causes it. But how many folks who are having trouble concieving are tested for celiac or told to try the diet?

I suppose I could go on for a long time. This issue makes me probally more angry than any other issue with celiac disease. We are going about this backwards. Completely. And our hospitals stay full, our drug companies make millions, we have the highest percentage of our population in the penal system than any other country in the world, and we have difficulty giving health care to all of our citizens because of the myriad of problems that result from unrecognized celiacs eating this toxin every day.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,220
    • Most Online (within 30 mins)
      7,748

    billiam3some
    Newest Member
    billiam3some
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Scott Adams
      It's incredibly tough to watch a young child grapple with the frustration and sense of deprivation that comes with a restrictive diet, and your empathy for her is the first and most important step. At seven, children are deeply focused on fairness, and her feelings are completely valid. To support her mental health, shift the narrative from "missing out" to "empowered choice." Instead of "you can't have that," use language like "we choose these safe foods so your tummy feels happy and strong." Involve her directly in her own care; let her be the "Gluten-Free Detective" at the grocery store, picking out exciting new treats, or make her the head chef in baking a special dessert that everyone gets to enjoy. When eating out, empower her by having her call the restaurant ahead to ask about safe options (with your help), making her feel in control rather than a passive victim. Acknowledge her feelings—"It's okay to feel sad that you can't have the roll, I sometimes feel that way too"—and then immediately pivot to a positive action, like unwrapping the special brownie you brought just for her. This combination of validation, involvement, and reframing turns a limitation into a shared family challenge where she feels supported, capable, and loved.
    • Scott Adams
      I know that Shiloh Farms makes this product, but I don't think it is labeled gluten-free.
    • Scott Adams
      Many people with celiac disease, especially those who are in the 0-2 year range of their recovery, have additional food intolerance issues which could be temporary. To figure this out you may need to keep a food diary and do an elimination diet over a few months. Some common food intolerance issues are dairy/casein, eggs, corn, oats, and soy. The good news is that after your gut heals (for most people who are 100% gluten-free this will take several months to two years) you may be able to slowly add some these items back into your diet after the damaged villi heal. This article may be helpful:    
    • Scott Adams
      It's strange to see two very different results in what appears to be a single blood test--one is positive and one is negative for a celiac disease test. Are these results separated by time? This article might be helpful. It breaks down each type of test, and what a positive results means in terms of the probability that you might have celiac disease. One test that always needs to be done is the IgA Levels/Deficiency Test (often called "Total IGA") because some people are naturally IGA deficient, and if this is the case, then certain blood tests for celiac disease might be false-negative, and other types of tests need to be done to make an accurate diagnosis. The article includes the "Mayo Clinic Protocol," which is the best overall protocol for results to be ~98% accurate.    
    • Scott Adams
      You can search this site for prescriptions medications, but will need to know the manufacturer/maker if there is more than one, especially if you use a generic version of the medication: To see the ingredients you will need to click on the correct version of the medication and maker in the results, then scroll down to "Ingredients and Appearance" and click it, and then look at "Inactive Ingredients," as any gluten ingredients would likely appear there, rather than in the Active Ingredients area. https://dailymed.nlm.nih.gov/dailymed/   
×
×
  • Create New...