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Just Been Diagnosed

loozey

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loozey Newbie
loozey
Posted

hi,im lucy and i live in Northampton uk. I have just been diagnosed and am a bit freaked out. I know it is not the end of the world,i was just wondering if u were daunted like myself when u al found out? thanx

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NJKen Rookie
NJKen
Posted
hi,im lucy and i live in Northampton uk. I have just been diagnosed and am a bit freaked out. I know it is not the end of the world,i was just wondering if u were daunted like myself when u al found out? thanx

Hi, Lucy! Yes, it's very upsetting at first, but it gets better. I think you'll find that you can keep your home stocked with plenty of gluten-free options without too much trouble. Eating out is more of a problem, but you can find out which places are more celiac-friendly by reading the posts on this board, and by posting your own questions. (Be aware that many of the posters on this board have multiple food intolerances/allergies; you may not need to be as restrictive as everyone who posts.) If you have favorite places that you like to eat, contact the manager(s) directly to find out how they can accommodate you. If you like to travel abroad, look up the websites of the celiac societies of the countries that you plan to visit. Let your friends and family know about your new dietary restrictions, and be prepared to patiently explain again and again why you can't eat the item that they were sure was OK for you. Eating is often a social activity, and it can be challenging to safeguard your health without offending your eating companions.

Good luck!

Ken

Guest j_mommy
Guest j_mommy
Posted

Hello and Welcome!

Let me tell you, you have come to the best site ever! I am also newly Diagnosed(april 1) and it is very scary at first! I have a biopsy scheduled 5/15, I am still eating gluten until then so my biopsy is "true". I never thought I would say this but I can't wait to go Gluten free!!!!! I now know I will feel so much better. As soon as I was DX'd I went to amazon .com and bought: "Living Gluten Free for Dummies" and Celiac Disease:A Hidden epidemic" by Peter Green. Those two books and this site have made me sane agian. I really feel like I can do this!!! The "For Dummies" book has alot of Starter stuff and makes you laugh! It was a great buy! I hope this helps!!!! YOU'RE NOT ALONE! Everyone on this site is knowledgeab;e and helpful.....even if you just need a "shoulder" to lean on! Good Luck

luvs2eat Collaborator
luvs2eat
Posted

Yea, I was TOTALLY freaked out when I was diagnosed! But there's so much information here that will make you feel so much better and so many people who know the answers to just about ANY question you could ask! It doesn't take long to focus on all the foods you CAN have rather than the ones you can't. Ya just have to learn to cook a little differently, that's all.

Welcome!!

nikki-uk Enthusiast
nikki-uk
Posted
hi,im lucy and i live in Northampton uk. I have just been diagnosed and am a bit freaked out. I know it is not the end of the world,i was just wondering if u were daunted like myself when u al found out? thanx

Hi Lucy and welcome!! :)

I'm in the UK (London) and my hubby and son have celiac disease.

I know my hubby found it very overwhelming at first but it truly does get easier with time.

Have you joined Coeliac UK yet?? (their 'handbook' listing safe foods is very helpful)

Now that my hubby has been gluten-free for nearly 3 yrs, I can see that in a roundabout sort of way it done the whole family a favour.We eat so much more healthily now :) ...it just takes time to adjust.

Good Luck ! :)

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    • knitty kitty
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By knitty kitty · Posted

      @Jane02, I hear you about the kale and collard greens.  I don't do dairy and must eat green leafies, too, to get sufficient calcium.  I must be very careful because some calcium supplements are made from ground up crustacean shells.  When I was deficient in Vitamin D, I took high doses of Vitamin D to correct the deficiency quickly.  This is safe and nontoxic.  Vitamin D level should be above 70 nmol/L.  Lifeguards and indigenous Pacific Islanders typically have levels between 80-100 nmol/L.   Levels lower than this are based on amount needed to prevent disease like rickets and osteomalacia. We need more thiamine when we're physically ill, emotionally and mentally stressed, and if we exercise like an athlete or laborer.  We need more thiamine if we eat a diet high in simple carbohydrates.  For every 500 kcal of carbohydrates, we need 500-1000 mg more of thiamine to process the carbs into energy.  If there's insufficient thiamine the carbs get stored as fat.  Again, recommended levels set for thiamine are based on minimum amounts needed to prevent disease.  This is often not adequate for optimum health, nor sufficient for people with absorption problems such as Celiac disease.  Gluten free processed foods are not enriched with vitamins like their gluten containing counterparts.  Adding a B Complex and additional thiamine improves health for Celiacs.  Thiamine is safe and nontoxic even in high doses.  Thiamine helps the mitochondria in cells to function.  Thiamine interacts with each of the other B vitamins.  They are all water soluble and easily excreted if not needed. Interesting Reading: Clinical trial: B vitamins improve health in patients with coeliac disease living on a gluten-free diet https://pubmed.ncbi.nlm.nih.gov/19154566/ Safety and effectiveness of vitamin D mega-dose: A systematic review https://pubmed.ncbi.nlm.nih.gov/34857184/ High dose dietary vitamin D allocates surplus calories to muscle and growth instead of fat via modulation of myostatin and leptin signaling https://pubmed.ncbi.nlm.nih.gov/38766160/ Safety of High-Dose Vitamin D Supplementation: Secondary Analysis of a Randomized Controlled Trial https://pubmed.ncbi.nlm.nih.gov/31746327/ Vitamins and Celiac Disease: Beyond Vitamin D https://pmc.ncbi.nlm.nih.gov/articles/PMC11857425/ Investigating the therapeutic potential of tryptophan and vitamin A in modulating immune responses in celiac disease: an experimental study https://pubmed.ncbi.nlm.nih.gov/40178602/ Investigating the Impact of Vitamin A and Amino Acids on Immune Responses in Celiac Disease Patients https://pmc.ncbi.nlm.nih.gov/articles/PMC10814138/
    • Jane02
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By Jane02 · Posted

      Thank you so much @knitty kitty for this insightful information! I would have never considered fractionated coconut oil to be a potential source of GI upset. I will consider all the info you shared. Very interesting about the Thiamine deficiency.  I've tracked daily averages of my intake in a nutrition software. The only nutrient I can't consistently meet from my diet is vitamin D. Calcium is a hit and miss as I rely on vegetables, dark leafy greens as a major source, for my calcium intake. I'm able to meet it when I either eat or juice a bundle of kale or collard greens daily haha. My thiamine intake is roughly 120% of my needs, although I do recognize that I may not be absorbing all of these nutrients consistently with intermittent unintentional exposures to gluten.  My vitamin A intake is roughly 900% (~6400 mcg/d) of my needs as I eat a lot of sweet potato, although since it's plant-derived vitamin A (beta-carotene) apparently it's not likely to cause toxicity.  Thanks again! 
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    • Scott Adams
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By Scott Adams · Posted

      I do not know this, but since they are labelled gluten-free, and are not really a product that could easily be contaminated when making them (there would be not flour in the air of such a facility, for example), I don't really see contamination as something to be concerned about for this type of product. 
    • trents
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By trents · Posted

      Contact them.
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