Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

So Now That I Know That I Have To Watch Out For More Than Just Food...


justme

Recommended Posts

justme Enthusiast

I need to find a gluten free shampoo.. unfortunately I have to use head & shoulders.. does anyone know if that is gluten free? or does anyone know of a gluten free alternative? is it possible that the gluten is drying out my scalp?

conditioner.. i'll use anything as long as it's not for thin hair or added body whatever.. I have A LOT of hair and do not need any added body!

face wash.. I am 22 but unfortunately I have the skin of a 13 year old and still get acne.. but everything seems to dry out my face at the same time.. so i need a gluten free face wash that will help with acne..

along with face wash comes face moisturizer..

toothpaste? whats gluten free? right now i use colgate.. well i think its colgate.. pretty much anything anti-cavity and whitening...

so where can I start? where is there a list of mainstream products?

also i guess deoderant?

perfumes aren't an issue right?

wow.. i thought avoiding gluten sucked before.. now it's even worse.. jeeeze..


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Ursa Major Collaborator

For a while I thought I needed shampoo to control dandruff, too. I was severely allergic to the stuff, and it made my hair fall out in bushels.

The real reason for my 'dandruff' was the gluten. I had psoriasis on my scalp, which will produce the same flakes coming off as dandruff. Once I stopped eating gluten, and starting using gluten-free shampoo, conditioner and gel, the itchiness stopped, and the rash is much better.

So, now that you are gluten-free, try a gluten-free shampoo like Dove (that's what I use). It is much healthier for you than those anti-dandruff shampoos, and might be helpful in other ways, too.

Your acne may be gluten related, too. Even at my age (54 next month) I will get 'acne' when I get glutened or eat something like peppers.

I find using Dove or Ivory soap on my face (gluten-free) won't irritate my skin, and I rarely get outbreaks on my face now.

And yes, everything is an issue, including perfume. Make sure your lipstick, chapstick and everything else you put on your skin is gluten-free.

meemers Newbie

Okay you guys are scaring me a little. :( My doctor has only talked about what I digest, not what I use. Of I'm still new to this, maybe he didn't want to over whelm me - I'm in the middle of my fith week and I've only had one melt down this week.....

Ursa Major Collaborator
Okay you guys are scaring me a little. :( My doctor has only talked about what I digest, not what I use. Of I'm still new to this, maybe he didn't want to over whelm me - I'm in the middle of my fith week and I've only had one melt down this week.....

Most doctors don't have a clue about non-food gluten issues (and most of them don't have a clue about nutrition and food, either). So, it doesn't surprise me that he didn't tell you about it.

Nantzie Collaborator

I use Pantene products. They will also label everything. Read the ingredients thoroughly. If there's no gluten listed, it's fine.

There's also a company that specially makes gluten-free shampoos = www.gfsoap.com I LOVE their stuff, but it's always easier to just grab the pantene at walmart, ya know?

Nancy

simplicity66 Explorer

On Feb 16th this year i got a call from my MD...he told me i tested positive for Celiac Disease...then replyed i will see you at your next visit which was 3wks away....i thought ok now what???....i was over-whelmed as well...if it wasnt for this forum i would be lost....i wasnt sent to a dietition nor did my MD provide any information on what i can and cannot eat or a explanation of this disease and what part of my body this has effected.....this list of CANNOT EAT!!!...is a long one just like the list for shampoo and conditioners as well as hair gel and deordrant etc....there is also gluten in putty for wall board....manufactures are hiding gluten everywhere think about it....we not eating it they have to do something with it....NoGlugirl has posted on here a list of products she has researched and uses everyday... its worth the time to scroll through the postings...this way you will have alittle bit of a starter on what to use that wont make you sick...leave nothing to guess check everything out ... i started which my food first then worked through my beauty products...make yourself a start and finish point....its costly but in the long run you will feel better ....best of luck too you and make everday a adventure instead of a stuggle.....there will be alot of bumps in the road....but soon the ride will be very smooth....eat well and stay healthy.

meemers Newbie
Most doctors don't have a clue about non-food gluten issues (and most of them don't have a clue about nutrition and food, either). So, it doesn't surprise me that he didn't tell you about it.

Basically he said that I watch everything that goes in my mouth. He put me on the Paleo diet due to additional issues. So all grains, dairy, and legumes are out of the picture right now. I have ann appointment on Thursday of this week, I'll ask him about the other products you guys are mentioning. Thanx :unsure:


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



darlindeb25 Collaborator

Meemers, just remember, your doc may tell you it doesn't matter what you use on your hair or skin. The doc is wrong. To begin with, anything your hands come in contact with can cause a cross contamination issue. Shampooing and conditioning your hair can gluten you. I find it very difficult to never get a taste of shampoo or conditioner, as you are rinsing, it is running pass your lips. It's best to just learn to use gluten free products for everything. Besides the fact, some of we celiacs are also allergic to gluten on the skin. I get hives or burning when gluten, oats, or soy touch my skin.

Take care. Listening to others experiences are much better teacher than talking to someone who has never had an intolerance.

gfp Enthusiast
wow.. i thought avoiding gluten sucked before.. now it's even worse.. jeeeze..

Its nowhere near so hard.... seriously

Food wouldn't be hard if we could use the same food everyday.... but obviously we'd get bored outa our heads and probably nutritionally miss out...

It might seem a big deal but its not the same, using the same shampoo or soap isn't like eating the same thing everyday...

The hardest thing is using "other peoples soaps" etc. like resto restrooms... however for this I just (unless its labelled as containing gluten) use it and try and make sure not to get it under my nails etc and then make sure I really really rinse and use a paper towel or 10 to make sure.... its not 100% but neither is eating out ....

Take care. Listening to others experiences are much better teacher than talking to someone who has never had an intolerance.

Amen....

meemers Newbie
Meemers, just remember, your doc may tell you it doesn't matter what you use on your hair or skin. The doc is wrong. To begin with, anything your hands come in contact with can cause a cross contamination issue. Shampooing and conditioning your hair can gluten you. I find it very difficult to never get a taste of shampoo or conditioner, as you are rinsing, it is running pass your lips. It's best to just learn to use gluten free products for everything. Besides the fact, some of we celiacs are also allergic to gluten on the skin. I get hives or burning when gluten, oats, or soy touch my skin.

Take care. Listening to others experiences are much better teacher than talking to someone who has never had an intolerance.

Wow. I never thought about that, but you're right, just like a two year old everythng eventually ends up in our mouths......A guy I work with sent me this link yesterday, seems that there are quite a few us at work with celiac, so I've been nosing around this forum since last night and have a learned a lot ya'll already. Thanx

meemers Newbie
Wow. I never thought about that, but you're right, just like a two year old everythng eventually ends up in our mouths......A guy I work with sent me this link yesterday, seems that there are quite a few us at work with celiac, so I've been nosing around this forum since last night and have a learned a lot ya'll already. Thanx

Well, after all of this "talk" I did some checking it looks like my hair products, toothpaste, and soap are fine. But the skin care system I use on my face has gluten. Never thought to ask myself (I'm the sales consultant) if the products had gluten in it....go figure. We have other products that are gluten free, but none of the face washes seem to be. Sent the company an email on that, we'll see what they say.

Thanks to all of you for widening my gluten vision.......meemers

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      49

      My journey is it gluten or fiber?

    2. - catnapt replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      6

      results from 13 day gluten challenge - does this mean I can't have celiac?

    3. - catnapt replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      6

      results from 13 day gluten challenge - does this mean I can't have celiac?

    4. - xxnonamexx replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      49

      My journey is it gluten or fiber?

    5. - trents replied to Jane07's topic in Gluten-Free Foods, Products, Shopping & Medications
      2

      Gluten free Yogurt suggest

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,366
    • Most Online (within 30 mins)
      7,748

    caroljben
    Newest Member
    caroljben
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • knitty kitty
      I take Now B-1 (100 mg) Thiamine Hydrochloride, and Amazing Formulas L-Tryptophan (1000 mg).   Both are gluten free and free of other allergens.  I've taken them for a long time and haven't had a problem with them. I take Vitamin A from BioTech called "A-25".  It's gluten and allergen free and made in the USA.  It's a powder form of Vitamin A.  I was having trouble digesting fats at one point, but found I tolerated the powder form much better and have stuck with it since.   Tryptophan and Vitamin A help heal the intestines as well as improves skin health.  I get Dermatitis Herpetiformis and eczema flairs when my stomach is upset.  So I'm healing the outside as well as the inside.   I take one 1000 mg Tryptophan before bedtime.   With the Thiamine HCl, take 100 mg to start.  If you don't notice anything, three hours later take another. You can keep increasing your dose in this manner until you do notice improvement.  Remember not to take it in the evening so it won't keep you too energized to sleep. When I first started Thiamine HCl, taking 500 mg to 1000 mg to start was recommended.  If you've been thiamine insufficient for a while, you do notice a big difference.  It's like the start of a NASCAR race: Zoom, Zoom, turn it up!   This scared or made some people uncomfortable, but it's just your body beginning to function properly, like putting new spark plugs in your engine.  I took 1000 mg all at once without food.  It kicked in beautifully, but I got a tummy ache, so take with food.  I added in Thiamine TTFD and Benfotiamine weeks later and felt like I was Formula One racing.  So cool.  You may feel worse for a couple days as your body adjusts to having sufficient thiamine.  Feels sort of like you haven't cranked your engine for a while and it backfires and sputters, but it will settle down and start purring soon enough.  Adjust your dose to what feels right for you, increasing your dose as long as you feel improvement.  You can reach a plateau, so stay there for several days, then try bumping it up again.  If no more improvements happen, you can stay at the plateau amount and experiment with increasing your Thiamine TTFD.  It's like being your own lab rat.  LoL Yes, take one Benfotiamine at breakfast and one at lunch.  Take the B Complex at breakfast. Take the TTFD at breakfast and lunch as well.  I like to take the vitamins at the beginning of meals and the NeuroMag at the end of meals.   You may want to add in some zinc.  I take Thorne Zinc 30 mg at breakfast at the beginning of the meal.   Are you getting sufficient Omega Threes?  Our brains are made up mostly of fat.  Flaxseed oil supplements, sunflower seed oil supplements (or eat the seeds themselves) can improve that.  Cooking with extra virgin olive oil, avocado oil, or coconut oil is also helpful.   @Wheatwacked likes phosphotidyl choline supplements for his Omega Threes.  He's also had dramatic health improvement by supplementing thiamine.  You're doing great!  Thank you for sharing your journey with us.  This path will smooth out.  Keep going!  
    • catnapt
      good luck! vital wheat gluten made me violently ill. I will touch the stuff ever again.  
    • catnapt
      I wouldn't consider this lucky. I can NOT tolerate the symptoms. And I googled it and I was not even getting 10 grams of gluten per day and I was extremely ill. They'd have to put me in the hospital. I'm not kidding.   I will have my first appt with a GI dr on March 4th   I will not eat gluten again - at least not on purpose   they are going to have to come up with a test that doesn't require it. 
    • xxnonamexx
      What Thiamine Hydrochloride brand do you take? Is it like the other vitamins I have added? What brand Tryptophan and amount do you take. Thanks
    • trents
      I would not think store bought yogurt would contain gluten unless it possibly could be through an added flavoring or coloring ingredient. Otherwise, it should be naturally gluten free.  Keep in mind that some companies are capitalizing on people's fears and ignorance (nothing personal intended) by labeling foods "gluten free" that are just that way by the nature of what they are. They are hoping to create a marketing edge over their competitors by adding "gluten free" because they know it may catch attention of those new to the celiac/gluten sensitivity experience without having to cost them anything in the way of changing their manufacturing process or doing testing.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.