Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Symptoms After Going Gluten Free


Guest maddiesmom

Recommended Posts

Guest maddiesmom

My daughter has been g.f. for two weeks now... she has done pretty good so far.. she is getting to where she isn't complaining hardly at all.. my question is how long does it take to be symptom free and is there any side effects from beeing gluten free... for example for the past week she has been really tired and has taken long naps after school.. I know that sounds silly and it may just be a growing spurt or change in the weather.... I have felt this way too and I am g.f. with her.. just wondering...


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



pedro Explorer

Hi Maddiesmom

I've been reading and the literature saids that for kids it takes them at least 6-8 months to recover adult it takes a year or more dependent on the severity of the digestive destruction. I have one of my kids is showing many symptoms and we started the entire family in gluten-free diet. I have been in the diet for 5 weeks, I've noticed changes for the better in me. My 5.5 years old daughter have only been in the diet for a little more than week, no changes yet.

With me I will tell you, I need to take vitamins everyday. If not I will be tired, and sleepy all the time. I tell my wife I will fall asleep like the elefant standing up.

I understand what you are going thru. I have the same thing in my house. I have 3 daugthers one 10, one 5.5, and the youngest is 2.5 years old. I have have gluten sensitivity, and that we know one of the kids is showing sings also.

Is your daugther taking vitamins?

Good luck to you, and your precious one, I hope she feels better soon.

Amanda Thomas Rookie

Kaitlyn Grace started having problems also, we took her into her pedi because her hair started falling out (on top of the being tired) she was tested and put on an iron supplement, he said she was anemic. We are taking her in again next week to make sure her levels are going up.

momof2sn Apprentice
Kaitlyn Grace started having problems also, we took her into her pedi because her hair started falling out (on top of the being tired) she was tested and put on an iron supplement, he said she was anemic. We are taking her in again next week to make sure her levels are going up.

I have noticed my daughter sleeping alot more too!! She has not even been on the diet for a week. She does take a vitamin though. Could it have to do something with carbs??

Guest maddiesmom

Her bloodwork shows she isn't anemic and I should start her back on her vitamins.. she already taked Miralax, Prevacid and a flora supplement... I didn't know if the vitamins would be too hard on her belly but they haven't bothered her before and the ingrediants are fine. It could just be the absence of those carbs or maybe everything is "catching up" with her. I kept her home from school today.. you know when they just have that look about them? It's hard to send them to school when you know they feel bad. Thankfully her teacher has grandchildren that have celiac and totally understands and her grades haven't suffered at all.. straight A's all year!

I have never been tested but I am sure she gets the gene from me since I have had signs too but I figure that if I am on this diet to then it will help and it's a waste of time and money getting tested. I am anemic though.. have been forever... I had to be on iron supplements when I was pregnant with her... can you just devolop anemia overnight or is it always there.. it has only been 3 months since she was tested. She will need to be tested every year to see if the Chron's is progressing.. I am sure they will test her for anemia then too.

Thanks alot!

mcsteffi Rookie

Make sure the vitamin is Gluten Free!!! Alot of them are not.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,212
    • Most Online (within 30 mins)
      7,748

    MoiraK
    Newest Member
    MoiraK
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • trents
      NCGS does not cause damage to the small bowel villi so, if indeed you were not skimping on gluten when you had the antibody blood testing done, it is likely you have celiac disease.
    • Scott Adams
      I will assume you did the gluten challenge properly and were eating a lot of gluten daily for 6-8 weeks before your test, but if not, that could be the issue. You can still have celiac disease with negative blood test results, although it's not as common:  Clinical and genetic profile of patients with seronegative coeliac disease: the natural history and response to gluten-free diet: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5606118/  Seronegative Celiac Disease - A Challenging Case: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9441776/  Enteropathies with villous atrophy but negative coeliac serology in adults: current issues: https://pubmed.ncbi.nlm.nih.gov/34764141/  Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If your symptoms go away on a gluten-free diet it would likely signal NCGS.
    • Xravith
      I'm very confused... My blood test came out negative, I checked all antibodies. I suppose my Total IgA levels are normal (132 mg/dl), so the test should be reliable. Still, I'm not relieved as I can't tolerate even a single biscuit. I need to talk to my doctor about whether a duodenal biopsy is necessary. But it is really possible to have intestinal damage despite having a seronegative results? I have really strong symptoms, and I don't want to keep skipping university lectures or being bedridden at home.
    • Scott Adams
      They may want to also eliminate other possible causes for your symptoms/issues and are doing additional tests.  Here is info about blood tests for celiac disease--if positive an endoscopy where biopsies of your intestinal villi are taken to confirm is the typical follow up.    
    • Scott Adams
      In the Europe the new protocol for making a celiac disease diagnosis in children is if their tTg-IgA (tissue transglutaminase IgA) levels are 10 times or above the positive level for celiac disease--and you are above that level. According to the latest research, if the blood test results are at certain high levels that range between 5-10 times the reference range for a positive celiac disease diagnosis, it may not be necessary to confirm the results using an endoscopy/biopsy: Blood Test Alone Can Diagnose Celiac Disease in Most Children and Adults TGA-IgA at or Above Five Times Normal Limit in Kids Indicates Celiac Disease in Nearly All Cases No More Biopsies to Diagnose Celiac Disease in Children! May I ask why you've had so many past tTg-IgA tests done, and many of them seem to have been done 3 times during short time intervals?    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.