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What Did I Do Wrong This Time?!?!?!?


Walter S

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Walter S Explorer

Hello All. I had another party yesterday. It was a second birthday for my friend's son. I have a lot of friends with young children and many godchildren, so I attend a lot of parties. Well, I thought for sure I had everything planned out to be safe this time. I brought all of my own food (wrapped) and onl ate what I brought. I had a gluten free bagel before the party (I was there very eraly helping set up for the party and picking things up because the boy's mother and I are very close friends and she is going htrough a divorce so I try to help her as much as possible!) So then during the party I had a plain baked chicken cutlet (which I cooked at home) on gluten free bread. I drank decaf tea (black), which I have been drinking right along, and water. The only other thing I had was a handful of blue organic corn chips which I understood to be gluten free as per the literature I received from my nutritionist. I have been having blue corn chips on accassion for a snack or with a sandwich at lunch. The only thing different is that I got a different brand at the supermarket when I was picking up the food for the party. Could that be the problem? The fact that it was a different brand. I was doing ok most of the day, but after most guests had left I was helping to clean up when the diarrhea struck very bad. I was running in and out of the bathroom and just barely making it. Eventually I had to leave without being able to help finish cleaning up. I felt bad about that, but of course I couldn't help it. Basically anytime I eat away from home (even though I bring my own food) I still get sick. It's frustrating and embarassing. I'm not sure what else to do or what I am doing wrong? The only thing I can think of is that the brand of blue corn chips was different and so next time I will take care of that, but is that likely to be the culprit here? I'm just not sure. Thanks in advance for any input you might offer. I know people have said I should give it time becasue it takes months to heal and feel better, but it doesn't seem like a coincidence that everytime I eat away from home that I get sicker than usual. Perhaps it is just a matter of time, but I wonder if I am doing something wrong and not realizing it.


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MySuicidalTurtle Enthusiast

Different companies have different ingredients and policies. You should always call or write companies to see if they are gluten-free. Good luck and good job on bringing you own food and having fun and I am sorry you got sick, WalkterS.

Kristina Marie

Carriefaith Enthusiast
The only thing different is that I got a different brand at the supermarket when I was picking up the food for the party. Could that be the problem? The fact that it was a different brand.
Yes, sometimes gluten-free chips are produced on the same lines as gluten chips. Contacting the company is the only way to really know if they are safe.
Walter S Explorer

This may be a stupid question, but if I was to contact a company and ask about if their product is made in the same factory with other products that do contain gluten, what exactly do I ask them? How do I word it? Is there someone specific I should ask for? I just am imagining talking to someone at a factory and them sayng "I don't understand? What are you talking about?" So I want to be prepared to know exactly what to say and how to word it so I get the information I need. When I was first beginning to eat gluten-free, I would ask at stores for gluten free products and people would look at me funny and then not be able to help me. I would say, "Do you have any gluten free bread?" They would look confused and then answer and say yeah, I guess so. All of our bread is in Aisle 5" Of course they would not actually have the gluten free bread and I would soon discover that nobody knew what I was looking for.

Karen B. Explorer
This may be a stupid question, but if I was to contact a company and ask about if their product is made in the same factory with other products that do contain gluten, what exactly do I ask them? How do I word it? Is there someone specific I should ask for? I just am imagining talking to someone at a factory and them sayng "I don't understand? What are you talking about?" So I want to be prepared to know exactly what to say and how to word it so I get the information I need. When I was first beginning to eat gluten-free, I would ask at stores for gluten free products and people would look at me funny and then not be able to help me. I would say, "Do you have any gluten free bread?" They would look confused and then answer and say yeah, I guess so. All of our bread is in Aisle 5" Of course they would not actually have the gluten free bread and I would soon discover that nobody knew what I was looking for.

I've had very good luck with calling companies. The people answering the phones are usually a lot more knowledgeable than the guys at the grocery store (and if they aren't, they are sitting in front of a computer that is). After all, they only have their product line to answer for, the grocery store has everyone's product lines to answer for.

However, when I first was diagnosed, I had a ZonePerfect meal that should have been gluten-free by the label and about 20 minutes after lunch, it literally felt like someone punched me. When I called, they stalled and it took a week of daily calls before they finally admitted that they didn't make the product themselves but it probably had cross contamination. Why they wouldn't say that up front, I don't know.

If they don't seem to know what you are talking about, don't be bashful about asking them who would be more knowledgeable about their product.

Carriefaith Enthusiast

I personally don't like calling so I e-mail companies or get information from someone who has called. When I e-mail, I say something like, "Does (product names) contain gluten (wheat, barley, rye, oats)? If not, is it produced on the same line as products that conatain gluten?" I would say that almost every time I get a response, the author of the e-mail seems to know what they are talking about and I often get a blurb on what celiac disease is (I guess to prove that they know what they are talking about).

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    • Rogol72
      Hey @Butch68, I also have dermatitis herpetiformis but don't suffer from it anymore. I used to drink Guinness too but I drink Cider now when out on social occasions. I assume you are in Ireland or the UK. If it's any good to you ... 9 White Deer based in Cork brew a range of gluten-free products including a gluten-free Stout. I'm not sure if they are certified though. https://www.9whitedeer.ie/ I haven't come across any certified gluten-free stouts this side of the pond.
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      Interestingly, this thought occurred to me last night. I did find that there are studies investigating whether vitamin D deficiency can actually trigger celiac disease.  Source: National Institutes of Health https://pmc.ncbi.nlm.nih.gov/articles/PMC7231074/ 
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      Before being diagnosed coeliac I used to love Guinness. Being made from barley it should be something a coeliac shouldn’t drink. But taking to another coeliac and they can drink it with no ill effects and have heard of others who can drink it too.  is this everyone’s experience?  Can I drink it?  I get dermatitis herpetiformis and don’t get instant reactions to gluten so can’t try it to see for myself. 
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