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Entrolab Vs Promethius Lab Test

ADevoto

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ADevoto Explorer
ADevoto
Posted

I have my 12 year old scheduled for a blood test later today but now I am rethinking it. It is a big deal for him to get blood tests done (autistic) and I am mad about how my own test from Promethus came back. My blood tests came back negative except for genes. I know that it isn't the labs fault but after all of your wonderful advice I went gluten-free and feel much better. So, I am concerned because it is soo expensive and he doesn't like it. And I am afraid it might not show anything anyway.The one reason I would get the blood test is that none of my doctors believe the Entrolab results. Any thoughts on this?? Thanks

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chrissy Collaborator
chrissy
Posted

why are you mad about your blood test results? if you know that you feel better gluten free, does it really matter what the blood test says? how important is it to you to know if your son has "blood test proven" celiac disease? will you try him gluten free even if the tests come back negative? do you feel like you need your doctor's approval to try the gluten free diet on him? just some questions to think about. if the blood test results aren't going to change your course of action, why spend the money? enterolab will almost derfinitely tell you that your son is gluten sensitive.

it was important to ME to KNOW if my kids had celiac disease. our doc just used a regular lab to test for IgA serum totals and Ttg levels for our family. we used promethius lab for one of our kids because he is IgA deficient and needed the specialized testing.

Nantzie Collaborator
Nantzie
Posted

I would consider the Enterolab tests. My daughter (who is 4) came back barely positive, but when we tried her on the diet just to see what would happen it improved so much that SHE is fine being gluten-free. We were recently at a family birthday party and there was the huge gluten cake. When she asked me about it all I had to say was that it had gluten in it, and she immediately lost interest.

So it's not necessarily difficult to keep a child interested in staying on the gluten-free diet. You may find that he feels so much better that it's self-restricting for him and you don't have to do anything except tell him where the gluten is.

There is a lot of controversy about Enterolab here, but without it, personally I would still be stuck in no-man's-land, not knowing if I was really reacting to gluten, or if it was "all in my head" like my family thought. Just like any other test, it is a tool that helps you make a decision.

The reason I have stayed on the gluten-free diet for so long isn't because of any test results, but because of my own response to the diet. If I had tried the diet and didn't see any difference, then I don't care what tests said, I'd go on to something else and try to figure out how to make myself feel better.

Nancy

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