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Does This Happen ?


georgie

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georgie Enthusiast

I heard some encouraging news yesterday. The person I was talking to about my weight gain since being gluten-free - told me her sister was dx with Celiac, gained weight, then about a year later lost that weight relatively easily plus all the other weight she had carried for years , and is now a Size 8 ! Does this happen ? Sort of a healing process ?


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holdthegluten Rising Star

Ive lost 15 lbs in 3 months not even trying to lose weight. I think some people lose weight and some people gain weight on the diet. I have been eating very plain and simple though, and i work out every day so that might be why im losing weight. Just eat clean and the pounds will come off.

wowzer Community Regular

One thing to remember is that as we heal, we actually begin to absorb some nutrients. I think everyone's body just deals with it in it's own way. The key is feeling better.

georgie Enthusiast

I think what this person meant was that her sister felt better almost straight away on gluten-free. But instead of losing her excess weight she actually ballooned out more. Almost like fluid retention she said. Then after a while - nearly a year - she suddenly started to lose all that puffiness and weight - and now she is Size 8 ! This was her sister dx with celiac disease, and their mother has had bowel cancer. So I suggested that this person better be tested for Celiac too, and even try gluten-free to see if she is Gluten Intolerant. She thinks she maybe - as she gets a lot of IBS and 'bloat' if she eats certain foods containing Gluten.

But - just thought it interesting to see how the body heals.

annie-is-GF Newbie

This is just my humble opinion, but I do think that people who eat relatively normally on the gluten-free diet after being diagnosed probably lose or gain weight for awhile and then come back to a balanced weight. The body is good at balancing itself out and if you don't tend to overeat or to eat nothing but junky gluten-free food, I think the body will normalize itself. This is what I've experienced, anyway, and also what I've observed in other celiacs. Unless there are other hidden sensitivies or if your body is REALLY wrecked from years of gluten, anyway... those people seem to be sickly and underweight even after going gluten-free!

NWLAX36Mom Rookie

I was wondering the same thing. Since going gluten-free I've gained about 5 pounds and am about the heaviest I have ever been and my clothes are too tight. Even though it is only a slight weight gain, it is making me miserable. I eat a very healthy, balanced diet and exercise almost every day. My dietary changes have not been especially significant.

I'm thinking it might just be my body finally absorbing nutrients it has been missing and just sucking everything in while it can. I'm wondering (and hoping) that maybe once my body realizes it is getting what it needs, it will stop holding onto everything and go back to a normal weight for me. I sure hope so! !

annie-is-GF Newbie
I was wondering the same thing. Since going gluten-free I've gained about 5 pounds and am about the heaviest I have ever been and my clothes are too tight. Even though it is only a slight weight gain, it is making me miserable. I eat a very healthy, balanced diet and exercise almost every day. My dietary changes have not been especially significant.

I'm thinking it might just be my body finally absorbing nutrients it has been missing and just sucking everything in while it can. I'm wondering (and hoping) that maybe once my body realizes it is getting what it needs, it will stop holding onto everything and go back to a normal weight for me. I sure hope so! !

I think it will! The body isn't supposed to be chunky so I think your weight will go back down after a bit :)


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    • Scott Adams
      This is a very common question, and the most important thing to know is that no, Guinness is not considered safe for individuals with coeliac disease. While it's fascinating to hear anecdotes from other coeliacs who can drink it without immediate issues, this is a risky exception rather than the rule. The core issue is that Guinness is brewed from barley, which contains gluten, and the standard brewing process does not remove the gluten protein to a level safe for coeliacs (below 20ppm). For someone like you who experiences dermatitis herpetiformis, the reaction is particularly significant. DH is triggered by gluten ingestion, even without immediate gastrointestinal symptoms. So, while you may not feel an instant stomach upset, drinking a gluten-containing beer like Guinness could very well provoke a flare-up of your skin condition days later. It would be a gamble with a potentially uncomfortable and long-lasting consequence. Fortunately, there are excellent, certified gluten-free stouts available now that can provide a safe and satisfying alternative without the risk.
    • MogwaiStripe
      Interestingly, this thought occurred to me last night. I did find that there are studies investigating whether vitamin D deficiency can actually trigger celiac disease.  Source: National Institutes of Health https://pmc.ncbi.nlm.nih.gov/articles/PMC7231074/ 
    • Butch68
      Before being diagnosed coeliac I used to love Guinness. Being made from barley it should be something a coeliac shouldn’t drink. But taking to another coeliac and they can drink it with no ill effects and have heard of others who can drink it too.  is this everyone’s experience?  Can I drink it?  I get dermatitis herpetiformis and don’t get instant reactions to gluten so can’t try it to see for myself. 
    • trents
      NCGS does not cause damage to the small bowel villi so, if indeed you were not skimping on gluten when you had the antibody blood testing done, it is likely you have celiac disease.
    • Scott Adams
      I will assume you did the gluten challenge properly and were eating a lot of gluten daily for 6-8 weeks before your test, but if not, that could be the issue. You can still have celiac disease with negative blood test results, although it's not as common:  Clinical and genetic profile of patients with seronegative coeliac disease: the natural history and response to gluten-free diet: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5606118/  Seronegative Celiac Disease - A Challenging Case: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9441776/  Enteropathies with villous atrophy but negative coeliac serology in adults: current issues: https://pubmed.ncbi.nlm.nih.gov/34764141/  Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If your symptoms go away on a gluten-free diet it would likely signal NCGS.
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