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kelscross

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kelscross Newbie
kelscross
Posted

Hello..

I was searching the web for some info and I found this site. I saw my GI doc this morning and he mentioned Celiac Disease. He didn't give me any details just a quick explanation.

I went to my family doc for a physical. Apparently my bloodwork came up with iron deficiency anemia Iron level of 13 and a decreased Hgb and Hct. So he sent me to a GI specialist. I had an endoscopy which showed no bleeding but showed esophagitis, gastritis, and a hiatal hernia. My stool came up positive for occult blood in one sample of three so they scheduled a colonoscopy.

I had that today and he said it was "normal". Right after the endoscopy he sent me for a blood test for Celiac Disease. He explained today that part of the test results were ready and it is positive for the "gene" but he also said that 36% of the general population have the gene so he was waiting for the other part of the test to confirm. In the meantime he wants to do another endoscopy where I swallow a little camera and they attach a device to my waist and it takes 50,000 pictures through my digestive tract.

I never had any major GI upset prior to this diagnosis of Iron Deficieny Anemia. I had a milk allergy when I was a baby but outgrew that. So now I'm wondering how likely does it sound that I am experiencing the Celiac Disease. If it comes back positive should I get my children tested? My youngest was lactose intolerant as a baby as well and my older one is very small for her age.

Thanks for the input.

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tarnalberry Community Regular
tarnalberry
Posted

I'm not sure that the camera would help diagnosing celiac disease... you've got to take biopsies, but it's useful to help dx other things. Hopefully you'll get the bloodwork back soon.

Yes, if you do have celiac disease, you should have your daughters tested, as it's genetic, and not everyone has symptoms.

gf4life Enthusiast
gf4life
Posted

Also, milk "allergy" and lactose intolerance is common in people (and children) who are gluten intolerant. I've heard that they are using the camera pill for diagnosing celiac disease, but I agree with Tiffany, I don't see how? Most doctors agree that a tissue sample biopsy is necessary for diagnosing and they can't do that with the camera. it might be a good idea to have it anyhow, since it would give a clear picture of your entire GI tract and would rule out a bunch of other diseases.

God bless,

Mariann

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